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Thread: New Book: SCI: First 90 Days

  1. #1

    New Book: SCI: First 90 Days

    This new book, written by Sam Maddox from the Dana and Christopher Reeve Paralysis Foundation (and a founding father of the SpineWire website which was the precursor to CareCure), is available as a free PDF download on the Cure Medical website for those who have a new SCI, and their family members. Here is the information:

    SCI: The First 90 Days

    https://curemedical.com/for-the-cure...l-cord-injury/

    (KLD)

  2. #2
    Senior Member ChesBay's Avatar
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    Quote Originally Posted by SCI-Nurse View Post
    This new book, written by Sam Maddox from the Dana and Christopher Reeve Paralysis Foundation (and a founding father of the SpineWire website which was the precursor to CareCure), is available as a free PDF download on the Cure Medical website for those who have a new SCI, and their family members. Here is the information:

    SCI: The First 90 Days

    https://curemedical.com/for-the-cure...l-cord-injury/

    (KLD)
    Looks good SCI Nurse, thank you. Sam Maddox has been pretty amazing in providing resources over the years. I can remember getting my hands on an edition of "Spinewire" many years ago. Excellent resource.

  3. #3
    Quote Originally Posted by ChesBay View Post
    Looks good SCI Nurse, thank you. Sam Maddox has been pretty amazing in providing resources over the years. I can remember getting my hands on an edition of "Spinewire" many years ago. Excellent resource.
    I think you mean "Spinal Network", which was a book that Sam edited in the first several editions. It is now in its 6th or 7th edition, and produced by the United Spinal Association. When I was working, we provided a copy to all of our new injury SCI/D patients.

    "SpineWire" was a website he helped to start, with Wise Young and others, that was the original version of CareCure. This was about 1996 or 1997. That site eventually because "Cando!" and then eventually evolved into "CareCure" around 2003.

    (KLD)

  4. #4
    Senior Member ChesBay's Avatar
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    Quote Originally Posted by SCI-Nurse View Post
    I think you mean "Spinal Network", which was a book that Sam edited in the first several editions. It is now in its 6th or 7th edition, and produced by the United Spinal Association. When I was working, we provided a copy to all of our new injury SCI/D patients.

    "SpineWire" was a website he helped to start, with Wise Young and others, that was the original version of CareCure. This was about 1996 or 1997. That site eventually because "Cando!" and then eventually evolved into "CareCure" around 2003.

    (KLD)
    Yes, you've got it exactly right. "Spinal Network" and the sequence/ evolutions of the the websites . All tremendous resources, as a person with SCI can clearly remember the great feeling finding a mother lode of information with all of the excellent sources you cited.

    Along the lines of great helpers along the way in SCI journey would be remiss not to mention Barry Corbet's 1980 (?) book ,"Options". I can remember the feeling, coming across my first copy of his great work and buying several more as they'd get passed to those who might benefit from them.

    I look forward to thoroughly reviewing Sam Maddox's latest work. I did take a quick look last night. Though I am now closer to the first 90 years rather than, " the first 90 days" , I am sure he's created another great resource that will help many.

    Thanks for putting all of these excellent resources in an accurate timeline, important history to the newly injured and long time survivors. (IMHO)

  5. #5
    Yes, Barry Corbet's work should be remembered. Barry was injured in 1968, and died in 2004.

    "Options" was a book that was developed along with Barry's production of the first ("Changes" 1972?) and second ("Outside" 1978) of his 3 seminal films related to SCI (the third being "Survivors" 1989). Although the films are a bit dated now days, I still used both the two latter films through this year in education of SCI staff to help them understand better some of the issues related to SCI. "Changes" was about new injury and getting through rehab, "Outside" about living in the community with a SCI, and "Survivors" addressed many issues of aging with SCI. Unfortunately these are all out of print, as is "Options".

    Barry was also the founding editor of "New Mobility" magazine; a position he held for many years. "New Mobility started as the "Spinal Network Extra" newsletter (started by Sam Maddox). He also spoke widely at conferences and workshops for both people with SCI and health care professionals who worked with people with SCI. I was fortunate to be able to call him "friend".

    Barry became a spokesman for aging with SCI in his last 20 years of life and wrote a number of articles (for publications such as New Mobility and AARP magazine) on this topic. You might find some of these enlightening as you are addressing these issues yourself.

    http://barrycorbet.com/
    http://www.newmobility.com/2013/09/p...ed-no-regrets/
    http://www.newmobility.com/2014/12/e...-nursing-home/


    (KLD)

  6. #6
    Quote Originally Posted by SCI-Nurse View Post
    Yes, Barry Corbet's work should be remembered. Barry was injured in 1968, and died in 2004.

    "Options" was a book that was developed along with Barry's production of the first ("Changes" 1972?) and second ("Outside" 1978) of his 3 seminal films related to SCI (the third being "Survivors" 1989). Although the films are a bit dated now days, I still used both the two latter films through this year in education of SCI staff to help them understand better some of the issues related to SCI. "Changes" was about new injury and getting through rehab, "Outside" about living in the community with a SCI, and "Survivors" addressed many issues of aging with SCI. Unfortunately these are all out of print, as is "Options".

    Barry was also the founding editor of "New Mobility" magazine; a position he held for many years. "New Mobility started as the "Spinal Network Extra" newsletter (started by Sam Maddox). He also spoke widely at conferences and workshops for both people with SCI and health care professionals who worked with people with SCI. I was fortunate to be able to call him "friend".

    Barry became a spokesman for aging with SCI in his last 20 years of life and wrote a number of articles (for publications such as New Mobility and AARP magazine) on this topic. You might find some of these enlightening as you are addressing these issues yourself.

    http://barrycorbet.com/
    http://www.newmobility.com/2013/09/p...ed-no-regrets/
    http://www.newmobility.com/2014/12/e...-nursing-home/


    (KLD)
    Thank you, Kathy L. Dunn, the one and only KLD! I am indebted to many people, you in particular, for much advice and expertise. Your fingerprints are all over the First 90 Days book.

    A couple of things, for the record. First, I am no longer affiliated in any capacity with the Reeve Foundation. First 90 Days is my project. Reeve is one of my sponsors.

    Second, Barry Corbet was indeed the pater familias of SCI survival resources. My first venture in this field, Spinal Network, featured a series of articles spread through the book called "Options Revisited," a fresh look at many of the people he characterized in his great book, Options. Barry was a dear friend and a huge influence on my work. Barry and I collaborated very closely for many years, including the founding years of Spinal Network and New Mobility in Colorado, and after the "Spine," as we called it, moved to California. He wasn't the founding editor of New Mobility but was the ideal choice for the job, beginning in 1995.

    Regarding the new book, it is focused on Southern California SCI rehab and resources (editions are in the works for other locations). Much of the material will be of interest to anyone, anywhere, dealing with the chaos of a new spinal cord injury.

    The most important points: Connect with others who have been through this; get smart fast about your choices for inpatient rehab (they're not all the same); don't be a spectator when it comes to your rehab and recovery; stay active, and stay hopeful. Know your rights.

    For those who would like to see the First 90 Days book online, visit www.SCIFirst90Days.com, there's a link to a flip book that can be downloaded as PDF. I am biased toward the printed book, which may be a better way to absorb the material. Contact me at sammaddox@SCIFirst90Days.com if you want a copy.

  7. #7
    Quote Originally Posted by SCI-Nurse View Post
    Yes, Barry Corbet's work should be remembered. Barry was injured in 1968, and died in 2004.

    "Options" was a book that was developed along with Barry's production of the first ("Changes" 1972?) and second ("Outside" 1978) of his 3 seminal films related to SCI (the third being "Survivors" 1989). Although the films are a bit dated now days, I still used both the two latter films through this year in education of SCI staff to help them understand better some of the issues related to SCI. "Changes" was about new injury and getting through rehab, "Outside" about living in the community with a SCI, and "Survivors" addressed many issues of aging with SCI. Unfortunately these are all out of print, as is "Options".

    Barry was also the founding editor of "New Mobility" magazine; a position he held for many years. "New Mobility started as the "Spinal Network Extra" newsletter (started by Sam Maddox). He also spoke widely at conferences and workshops for both people with SCI and health care professionals who worked with people with SCI. I was fortunate to be able to call him "friend".

    Barry became a spokesman for aging with SCI in his last 20 years of life and wrote a number of articles (for publications such as New Mobility and AARP magazine) on this topic. You might find some of these enlightening as you are addressing these issues yourself.

    http://barrycorbet.com/
    http://www.newmobility.com/2013/09/p...ed-no-regrets/
    http://www.newmobility.com/2014/12/e...-nursing-home/


    (KLD)
    Thank you, Kathy L. Dunn, the one and only KLD! I am indebted to many people, you in particular, for much advice and expertise. Your fingerprints are all over the First 90 Days book.

    A couple of things, for the record. First, I am no longer affiliated with the Reeve Foundation. First 90 Days is my project. Reeve is one of my sponsors.

    Second, Barry Corbet was indeed the pater familias of SCI survival resources. My first venture in this field, Spinal Network, featured a series of articles spread through the book called "Options Revisited," a fresh look at many of the people he characterized in his great book, Options. Barry was a dear friend and a huge influence on my work. Barry and I collaborated very closely for many years, including the founding years of Spinal Network and New Mobility in Colorado and after the "Spine," as we called it, moved to California. He wasn't the founding editor of New Mobility but was the ideal person for the job, beginning in 1995.

    Regarding the new book, it is focused on Southern California SCI rehab and resources (editions are in the works for other locations). Much of the material will be of interest to anyone, anywhere, dealing with the chaos of a new spinal cord injury.

    The most important points: Connect with others who have been through this; get smart fast about your choices for inpatient rehab (they're not all the same); don't be a spectator when it comes to your rehab and recovery; stay active, and stay hopeful. Know your rights.

    For those who would like to see the First 90 Days book online, visit www.SCIFirst90Days.com, there's a link to a flip book that can be viewed now, or downloaded as PDF. I am biased toward the printed book, which may be a better way to absorb the material. Contact me at sammaddox@SCIFirst90Days.com if you want a copy.

    All best,

    Sam

  8. #8

    1st 90 Days ...

    Quote Originally Posted by SCI-Nurse View Post
    Yes, Barry Corbet's work should be remembered. Barry was injured in 1968, and died in 2004.

    "Options" was a book that was developed along with Barry's production of the first ("Changes" 1972?) and second ("Outside" 1978) of his 3 seminal films related to SCI (the third being "Survivors" 1989). Although the films are a bit dated now days, I still used both the two latter films through this year in education of SCI staff to help them understand better some of the issues related to SCI. "Changes" was about new injury and getting through rehab, "Outside" about living in the community with a SCI, and "Survivors" addressed many issues of aging with SCI. Unfortunately these are all out of print, as is "Options".

    Barry was also the founding editor of "New Mobility" magazine; a position he held for many years. "New Mobility started as the "Spinal Network Extra" newsletter (started by Sam Maddox). He also spoke widely at conferences and workshops for both people with SCI and health care professionals who worked with people with SCI. I was fortunate to be able to call him "friend".

    Barry became a spokesman for aging with SCI in his last 20 years of life and wrote a number of articles (for publications such as New Mobility and AARP magazine) on this topic. You might find some of these enlightening as you are addressing these issues yourself.

    http://barrycorbet.com/
    http://www.newmobility.com/2013/09/p...ed-no-regrets/
    http://www.newmobility.com/2014/12/e...-nursing-home/


    (KLD)
    Thank you KLD for the kind words, for always being "of counsel" regarding SCI care. The books is getting circulated but we're working to make sure folks see it sooner -- before they get to rehab. There are important differences in acute inpatient care, and decisions have to be made under great stress, and within very narrow timelines.

    Here's the message: Don't try to take this on alone: tap into networks of SCI support. Get smart fast: if you don't know what your options are, you don't have any. And advocate for yourself as if your life depended on it -- because it does.

    See scifirst90days.com for more, and to see the online version of the book.

    I am now at work on an edition for the Rocky Mountain states. Same formula with resources specific to the region.

    SM

  9. #9
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    KLD, thank you for the kind words, and thank you for your help with the book, and for your clinical advice over the years. Want to let you and the board know that First 90 Days for the Rocky Mountain states is being completed. Soon to other regions. Please visit https://scifirst90days.com to see the SoCal edition in PDF 'flipbook' format, and for updates, news and an occasional blog. Anybody who wants a printed book, let me know, thanks. SM

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