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Thread: Sudden return of voluntary movement well below injury level, 9 months post injury?

  1. #1

    Sudden return of voluntary movement well below injury level, 9 months post injury?

    Looking for some advice before I get overly excited here: my father was injured in early June 2016, and was initially classified as C5 B before progressing to C7 B, with some voluntary C8 function. Notably, while touch sensation was preserved right down as far as S5, pin prick sensation was initially limited to C7 and subsequently returned as far as T3.

    Just an hour ago, he regained voluntary movement the toes of his left foot. They only move a couple of centimetres - it's not like he can fully clench them or anything - but he can move them entirely voluntarily, on command, as many times as you ask him to. He's actually having a bit of fun showing off to us
    This is the first time since his injury that he has displayed ANY voluntary movement below C8, and as you can imagine myself along with the rest of our family are ecstatic.

    Just wondering, what can this mean? Does it mean that he's not as final a case as his doctors have led us to believe, or is there - as I've sadly come to expect, particularly with so pessimistic a consultant - an explanation for this which means that it's nothing significant? What about the rather strange aspect that he doesn't (that ice yet heard, he's just gone to sleep now so we'll ask in the morning) have any new movement ABOVE this level and below his injury? Should we investigate getting FES or other therapies below his injury level, which had previously been written off by his medical team on the grounds that recovery is impossible?

    Essentially, is this a game changer for us of any kind or is it just an insignificant thing? I'm very conscious that the movement is only slight, nowhere near full ROM - but then again, so was his finger movement the first time he moved his fingers after injury and now he more or less has fully functional use of his left hand back, with his right hand catching up slowly as the weeks go by.

    any thoughts or advice here would be massively appreciated!

  2. #2
    I really don't know much to help you. Just wanted to say yea. It's hard not getting emotional about stuff like that. I've been fixated on a little pain in my big toe for weeks now. So I totally understand. I hope it bodes well for ya'll. *Hug*

  3. #3
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    Quote Originally Posted by ConcernedSon View Post
    Looking for some advice before I get overly excited here: my father was injured in early June 2016, and was initially classified as C5 B before progressing to C7 B, with some voluntary C8 function. Notably, while touch sensation was preserved right down as far as S5, pin prick sensation was initially limited to C7 and subsequently returned as far as T3.

    Just an hour ago, he regained voluntary movement the toes of his left foot. They only move a couple of centimetres - it's not like he can fully clench them or anything - but he can move them entirely voluntarily, on command, as many times as you ask him to. He's actually having a bit of fun showing off to us
    This is the first time since his injury that he has displayed ANY voluntary movement below C8, and as you can imagine myself along with the rest of our family are ecstatic.

    Just wondering, what can this mean? Does it mean that he's not as final a case as his doctors have led us to believe, or is there - as I've sadly come to expect, particularly with so pessimistic a consultant - an explanation for this which means that it's nothing significant? What about the rather strange aspect that he doesn't (that ice yet heard, he's just gone to sleep now so we'll ask in the morning) have any new movement ABOVE this level and below his injury? Should we investigate getting FES or other therapies below his injury level, which had previously been written off by his medical team on the grounds that recovery is impossible?

    Essentially, is this a game changer for us of any kind or is it just an insignificant thing? I'm very conscious that the movement is only slight, nowhere near full ROM - but then again, so was his finger movement the first time he moved his fingers after injury and now he more or less has fully functional use of his left hand back, with his right hand catching up slowly as the weeks go by.

    any thoughts or advice here would be massively appreciated!
    sounds great just keep trying so quick so I understand is great

  4. #4
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    I've been dreaming for almost 13 years that my son would move a toe!!! Your dad should just keep practicing and doing as much movement as he can and try the other foot as well! You just never know how far he can go with this, but the fact that the toes are the furthest away from his injury and he is getting some return - wellllllll that is amazing!!!

  5. #5
    Celebrate and encourage his mind to keep trying to move.

  6. #6
    That's great news!!! My doctors at Craig Hospital told me it may take up to 18 month's before any new function can take place. Every bit of new function will help. Just be glad at what does come back but don't look at getting everything back like it was before accident. If it does then be so excited and happy but please don't give any false hopes until they do happen. My life is great and very happy. This is a tough time but it does get better for all involved. Take care!

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