Seems like once a week my catheter gets clogged and I get autonomic dysreflexia. I'm drinking enough water so I don't know why it's happening and this never used to happen before I switched to latex catheters so maybe it's that, but anyway my blood pressure goes up and then drops back to normal after 10 to 15 seconds when it happens. My systolic doubles and my diastolic sometimes triples. This happens every 15 to 20 minutes before I either end up pissing myself or I get my catheter changed.
I'm concerned because I'm in a nursing facility and they won't treat autonomic dysreflexia because they don't really know what it is and I've told them multiple times, but I guess how we treat autonomic dysreflexia is against their protocol. Total BS in my opinion.
My questions -
Are these normal autonomic dysreflexia symptoms and should I worry about getting it treated? I'm getting the head and neck tingling, goosebumps, high blood pressure, but only for 10 to 15 seconds. No headache or sweating, but I do get a pounding heartbeat.
How do you treat your autonomic dysreflexia? I was originally tought the nitropaste way, but apparently that takes a while to kick in and I would imagine it would be hard to do independently. I'm a c5-6 quad and I've never had to use the nitropaste. I've heard of people using the nifedipine tablets and nitroglycerin spray