A couple of days ago, "SCI55" wrote about his brush with a flu or cold and "Mrs.55's" bout of pneumonia and 8 day hospitalization. He said, "It has been a struggle coping, especially because I quit driving about five years ago. Depending on friends and neighbors is starting to wear on us." After wishing them well and sending hope for renewed health, some of us struggled with a jolt back to reality that occurs from time to time when your comfort zone is disrupted with thoughts of what would I do in a similar situation.
I am 35 years post injury C6/7 complete. I depend on NL for just about everything care, cooking, housekeeping, transportation, gardening, handyman. And, she is damn good at everything she does. In 50 years of knowing her (48 years of marriage) she has rarely been ill. When she needed two bunion and torn meniscus surgeries, we had weeks to plan for a home health care agency and neighbors and friends cheerfully helped with food and transportation. Our two living trust proxies for our health care (if we become incapacitated) are registered nurses and life long friends. They stepped in for a long weekend, but only in a supervisory capacity, their professional lives have take a toll on their physical capabilities.
When things are going along well and the way you manage care is working, it is hard to introduce someone from the outside and keep them occupied and compensated enough for them to be around to step in when an emergency arises. NL and I don't want part or full time caregivers around. We don't want to give up our privacy and spontaneity until we are forced into it...hopefully a long way away. We have interviewed a few agencies and signed up with a couple, i.e., filled out their paperwork and have a record on file with them, have the health kit (silly state requirement) they gave us at home in a convenient location. Aside from that what else can we do in case of one of these unforeseen emergencies?
Your experiences and plans would be a great help.