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Thread: Intrathecal Drug Delivery Pump for Pain Control

  1. #21
    I gotta say after reading thru these post they scare the hell out of me , one I'm not one who enjoys trial and error with Dr.s . Two I do know there are many risk associated with having a pain pump.
    I see alot of you have severe spasms where I do not my issues are more severe central neuropathic pain coupled with a none union . Lately my pain is getting to the point where I can sit up for a few hours but after awhile my whole right side down into my butt starts hurting to where I'm unabe too sit.
    Neuropathic speaking I have severe neuro pain from mid back on down especially around my waist and it is getting increasingly hard to cope with but the idea of a pump scares the hell out of me

  2. #22
    i am able to hold off the pump for a while, i have a new pain doc , there are very few pain docs that are prescribing opiates due to the media coverage. I dont know a out the increase in od's and what is causing it, but it is having a severe affect on legitimate pain patients.
    Soon there will be a backlash by pan patients, i hope there will be or , we will all be forced to undergo surgery and implants , due to doctors fear of losing license or being imprisoned for prescribing opioids.
    cauda equina

  3. #23
    Quote Originally Posted by Sheri View Post
    what do people mean by "pain"? Both of my legs feel like: remember when you'd have a leg fall asleep but you'd ignore it instead of stretching it out immediately so then it would get to that really crazy tingling/burning sensation? I find it hard to call that pain but it interferes w my ability to relax, think, do things. Is that "central pain" and I'd love pump remedies. So far, oral low dose naltrexone and low dose amitriptyline, marijuana, NSAIDs haven't worked. I hate to go full dose cymbalta, lyrica or opiates.
    that is pain, it doesn't fir the standard definition , but it definitely is pain. I remember when first injured explaining to the nurse this feeling i had in my feet, i said it wasn't really pain, it felt like when you got real cold feet, frozen feet from hiking,shoveling snow, and your foot would start thawing out, you would get this pins and needles, weird feeling, like a frostbitten frozen foot which = neuropathic pain,
    all this stuff is true pain.
    cauda equina

  4. #24
    So, medtronycguy, did you ever try low dose amitryptoline or marijuana or cymbalta? I can totally relate to your frostbitten description! Spot on! Freezing and burning at once.

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