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Thread: Sitting Problems

  1. #1

    Sitting Problems

    Quadriplegic C6-7 injured in 1994. I use a manual wheelchair.

    December 21, 2012
    While I am on my back on the bed letting my left leg down, a pop occurs in my lower right back.

    March 2013
    The injured area in my lower core is not getting any better, right rib is starting to go near the right hip, and so I get a Jay 3 back and use it with my Roho cushion. This helps stretch that area back out and into alignment. However, too much pressure gives me a sore on my left ischial.

    November 2013
    I heal the sore. I am fitted for a Ride cushion, which reopens the sore. Being placed on the hard surface.

    March 2014
    Again, I heal the sore after being down 3 months. Super fancy $4000 custom back is combined with ride cushion. Sore reopens. $4000 custom back is making my right arm inoperable. Nerve stuff. Vendor switches to Jay3, which was on his shelf. Should have tried that first before $4000, but it's only a $300 piece of equipment.

    Sore heals but not great.

    Sit in Ride cushion for eight months hating every day in it. Set off nerve pain. I can put up with a lot but that was miserable and not a long-term solution.

    March 2015
    Getting an MRI and left leg is dropped hard off table. Sore goes Stage 3 super bad. Left lower back pops. I get down in bed for 8 months. Was told by nurse of 30 years has never seen someone with as much diligence and trying to figure it out as me. Waste of time though. Got infection because they left some type of packing material in the wound. It was blue and was melting. Fantastic surgeon fixed my rear. Heavy antibiotics created skin rash on my face, which is better, but areas of my scalp are dry. Never had skin problems like this before.

    March 2016

    I start getting up again on Roho and sling back, which is what I have used for years. Can't transfer to my left anymore because of leg drop and blowing out my back. My guts are sticking out the left side, and the right side of my core is caved in.

    Today
    Because of that leg drop, the core area of my back is now constantly trying to twist and pulls to the left. I fight it all day. 3.5 hours now to get out of bed on bowel day. Used to take me 2 hours before my leg was dropped. After my stretch in the morning, I will cath and that makes the tightness worse. I also now get erections, which pull to the left. That leg drop hurt something.

    I was injured in 1994 and got a sore during an airplane ride in 1995. Didn't know what I know now or it would have been healed. The witch doctors here were worthless. Failed flap surgery that I dealt with for 20 years.

    Their idea will probably be to put me in an electric chair. I will be a tightened up mess if I do that.

    Not sure what to do. I have many more potential years to live.

    I first have to address this twisting and tightening of my torso. I have a baclofen pump, s what could be causing this strong muscle pulling? How can I relax it just a little?
    Last edited by ouch; 10-15-2016 at 04:53 PM.

  2. #2
    Senior Member zagam's Avatar
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    I have scoliosis from the deformity caused by my injury. If my back is not extended I spaz up bad. Airline seats, which do put you in a stress position are the worst. In the seating clinic see how you go if you keep your back straight.

    My chair has flat back and squeeze angle of 80deg and a fair bit of dump so gravity holds me against the flat back.

  3. #3
    Thanks for the input. I have a good amount of dump. I also have slight scoliosis. The problem is this constant pulling to one side. I don't know which muscles are engaged, but they won't stop.

    I can stretch them some by the end of the day. I am constantly trying to straighten my back and lift my body. In the morning, it takes me an hour to try and loosen.

  4. #4
    I'm not sure how to respond or where to begin. You have been through a lot
    Do you still have a wound?
    Muscle spasms are the result of something that is out of alignment, a frayed nerve...

    Who is following you for your baclofen pump? A physiatrist (physical medicine and rehab physician)? Are you followed by a physical therapist?

    pbr

  5. #5
    Quote Originally Posted by SCI-Nurse View Post
    I'm not sure how to respond or where to begin. You have been through a lot
    Do you still have a wound?
    Muscle spasms are the result of something that is out of alignment, a frayed nerve...

    Who is following you for your baclofen pump? A physiatrist (physical medicine and rehab physician)? Are you followed by a physical therapist?

    pbr
    Thank you for your reply. It is best if I don't go over every challenge that has occurred.

    I have a physiatrist that I have not seen in maybe 10 years. My baclofen pump refills are handled by her nurse practitioner who I see every three months. I have verbalized what is going on. He okay'd the MRI March 2015. Wish that I had not asked for it. It showed nothing wrong... normal wear and tear for a quadriplegic of 20+ years. The leg drop occurred 5 min. after the MRI. I am flat on the table. My spine is fine. It is muscles/ligaments/? that have been twisted/pulled/out of place that is the problem, and I don't know if an MRI shows that.

    When I am sitting up, there is a hole on my right back area where there should be ligaments, muscles etc., because it is pushing left.

    The wound is gone! Thankfully I had a fantastic trauma surgeon perform the procedure. I do constant pressure releases all day and have for years.

    I would be fine in the Ride cushion if it didn't cause that nerve pain. For 20 years I have sacral sat stretched out. The physical therapist who put me in the Ride cushion told me to ''crush it.'' My body does not like that position. However, I was not having my right rib hit my right hip, which was causing pain. I traded one pain for another.

    For the past 6 months, after rehabbing from the November surgery, I am not in pain. That is good. However, because my left stomach is extended out, and constantly pulling, I cannot transfer to my left. I use a car for transportation. I am not sitting straight anymore and transfers are doable with the aid of a caregiver but my leg hits the switch on the front of the Roho, pushes it and it starts to leak air. I have only gone to a appointments because of this. Shower chair transfers and sitting has changed too. Fortunately I can still do it. I rolloff of the shower chair to the bed. From wheelchair to bed requires a Hoyer lift now.

    Also, with the constant pulling, it goes throughout my body. When my caregiver put on shoes or pants or moves my legs, I can feel every movement, because the tightness kicks in harder. It's the same when I am stretching. Stretch stretch stretch and loosens a little. Move one way and it retightens.

    I can go swimming again. I could probably stretch this out. I am afraid of being in pain again if I stretch it out and end up on my right hip and right rib. That's why I don't know what to do. Right now, I think that I am choosing the lesser of two evils, but it is driving me nuts. I have a high amount of energy in me that needs to be released. I try meditation, but there is nothing the same as good physical exercise.
    Last edited by ouch; 10-17-2016 at 02:50 PM.

  6. #6
    what about a good massage therapist who can work on the really tight places a little at a time. have you tried applying heat on very low setting for 10 -15 minutes at a time and of course checking for burning and such?
    T6 Incomplete due to a Spinal cord infarction July 2009

  7. #7
    I have tried massage, but it did not help. of course, that depends on who you get too. I had a great massage therapist that I went to years ago, but she retired. Related, maybe an acupuncturist would help.

  8. #8
    The area is above or below the insertion site of the baclofen pump. Have you tried capsaicin cream? Heat usually helps but you might need botox to the area/muscle you describe as pulling.
    CWO

  9. #9
    I don't go out anymore because of this. I had an appointment yesterday at the Gen. Dr. for a checkup, so I traveled the 10 min. there and back. Today, my back is wound up locked tight and pulling. They do Botox at my physiatrist's office but pinpointing which muscles are pulling would be difficult.

    I will look into capsaicin cream. In high school, I remember using cramergesic. I think I have some icy hot around here, I'll try that. The challenge is trying to figure out what muscles are pulling. I hadn't thought about using one of these products, so glad I asked.

    Hopefully I can be optimistic and there will be an answer for this.
    Last edited by ouch; 10-20-2016 at 04:17 PM.

  10. #10
    Another product you may want to try is Tiger Balm. I've found it to work better than Icy Hot. The Tiger Balm seems to penetrate deeper and lasts longer. They can also determine which muscle(s) to inject Botox into. I've had this done in the past for the same reason. Good luck!
    DaDutchman
    C5/C6 since 2007 due to car accident

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