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Thread: Antibiotic-resistant UTI

  1. #11
    Quote Originally Posted by quadmarie View Post
    I have an indwelling catheter a suprapubic. I'm only sending a sample when I am getting chills and my spasticity goes up. I have never ran a fever and I'm wondering if I physically can. It seems like if I go a couple of hours without drinking a whole lot I start getting chills, headaches, twitches like I'm getting now. Should I just ignore it?
    To you guys saying you've never had a fever since your injury because of an infection, well it's simple you just never had an infection that was at the point where it was life-threatening. I assure you if it gets bad enough spreading to your kidneys and such you will get a fever, usually along with nausea and vomiting although it did not for me just a fever well over 40 ( which for an adult is apparently quite serious) And despite my body temperature being so high I couldn't stop shivering. And that is when you have no choice but to get your infection treated. But if you're just getting pain, chills, increased spasticity and have a history of chronic infections , Infections that come right back after you've treated them which you have described as the case. Guess what you're going to have to tolerate that, hell I got that right now and I have for the last year since I've had to stop taking antibiotics every time I was in terrible pain and going dysreflexic . It's just bad luck, some people get lucky with their injuries some people get lucky with how their bladder responses If you have a high-pressure bladder, and an a indwelling catheter Every time you go to get a culture/ urinalysis there will always be a few bad bugs it will always look like a complex UTI ALWAYS! When you go to the hospital you need to explain that the test will be positive, and that you should not be taking antibiotics unless it is very serious. So they can look for other things like bladder stones, gallstones, kidney stones, pancreatitis, prostatitis etc. If you don't they will just brush you off as a infection and give you some horrible drug like Cipro. and if it's none of those things well then you just have A common UTI that you will always have because of the injury and your individual bodily responds and circumstances. All you can do is manage your symptoms and prevent it from getting far far worse, which make no mistake it can if you get careless.

    All in all you're always going to have bacteria in your bladder, you're always basically going to have a minor UTI! if your body is very sensitive to stimulus like mine that means you will always have spasticity that is increasing, as well as random uncontrollable chills/AD. Daily doses of antibiotics like Macrobid are very harmful but more importantly will not help long-term, even with bladder flushes of gentamicin one of the strongest antibiotics if you are unfortunate enough to deal with chronic infections the bacteria will keep coming back and be resistant sometimes very quickly,even after one dose for the most unlucky. Urologist, infectious disease I've seen them all and they will say in some cases there really isn't much they can do. They are starting to be much more hesitant to prescribe daily preventative antibiotics, as there's not really much evidence that they help when you have a neurogenic bladder and a indwelling catheter. Adequate water is key, but if antibiotic resistance is becoming a big enough problem with you they will tell you to simply not treat an infection until it is serious, they know that's easier said than done because even A minor UTI can be quite painful and troublesome, they know that and that's why they don't get so forcible with saying that until frankly it's too late. That is why you need to ask the questions, and make bold statements! You need to tell them straight up listen I've been popping antibiotics like skittles and the infection just comes back; what's going to happen if I keep aimlessly taking antibiotics, what are my other option etc. If you just stand idly by and go doctor this hurts, Dr. I'm sick it's just going to be a vicious cycle remember they got a lot of patients you need to do your own research and be able to ask your own questions that are going to help you figure things out for better or worse!

    I have asked these questions and they don't like to say it but if you just keep getting it treated every time you feel a UTI coming you'll die eventually, and you're not gonna feel any better for more than a week well you're on the drug that's the reality of it I'm sorry. I've been dealing with this for quite some time, I've had just about ever bug you can think of and I've been on about ever antibiotic you can think of even the ones that I really should not have; the ones that are our last resorts all because of the neglect in acute care,it's possible that that sent me down the rabbit hole of chronic infections, superbugs etc. I have had urine cultures come back where no oral antibiotics would work and only one or two intervenous drugs can kill each bug; problem is needed to take both drugs. When you have common bacteria that that is completely resistant to almost every antibiotic we have you know you have a serious problem, and you and your doctors done fucked up. Why did it get so serious, to wear simple bugs are now all of a sudden superbugs well I just kept doing what the doctors/specialist told me which was taking antibiotics like their candy. Now when I go to see my urologist I make the suggestions she gives me her input, and I don't beat around the bush anymore if something can get out of hand I want to know!

    The final defence is to get a urostomy, a very invasive surgery but that is the steps you have to take when you're severely disabled and dealing with chronic infections.

    I had this guy I knew in rehab, same injury as me but I always envied him right from the gecko his bladder was just calm as can be it would hold 1000+ cc and not bother him at all, he had decent wrist function so he do an ic drain his bladder and he'll be good for six hours. Meanwhile when I was doing instrumented catheters, after I did one not even 30 minutes later my bladder would be forcing urine out my penis causing a UTI and autonomic dysreflexia , Which led me to switch to a suprapubic which gave me a little bit of a more open schedule in regards to bladder management but did nothing to prevent infections. Btw this guy didn't take any medication, didn't have Botox; his bladder just responded that way to the injury. Luck of the draw.
    Last edited by JamesMcM; 09-04-2016 at 06:22 PM.

  2. #12
    After flushing with Renacidin this morning my symptoms have alleviated. I am still getting some chills but they are more external than internal. Some may know what I'm talking about but when I am getting a true UTI my chills feel like they're coming from inside out where as if I need to be say repositioned my chills feel like they are on the surface of my skin. I am on oxybutynin XL and I just ordered some d-mannose to try. I think sometimes I need to try to deal with my symptoms for a little while before I send in a sample. Also another test that I tried this morning was Flushing. If I have a bad UTI my bladder does not like having the renacidin in and I will get intense chills but this morning my bladder tolerated it fine. I need to be more cognizant of The Facts of antibiotic resistance. One of the reasons I was on multiple antibiotics was because I was having an allergic reaction to Bactrim which I've never had before. I always thought that I had to drink at least a liter of day but as I have been reading I should be drinking more. I drink a whole CamelBak a day and I think mine holds at least a liter. Time to start drinking more. I think I have been checked for stones last year but I will do a follow-up. Thank you everyone.
    Marie
    Unbroken by the grace of God

  3. #13
    Quote Originally Posted by JamesMcM View Post
    To you guys saying you've never had a fever since your injury because of an infection, well it's simple you just never had an infection that was at the point where it was life-threatening.
    It is mostly about colony forming units (CFU) as identified in a culture & sensitivity (C&S) lab test of a urine specimen. In my case, each urinary tract infection I have had has been well above 100,000 CFU and no fever. The symptoms I experience are full blown autonomia, chills, dangerously high blood pressure, etc. If I ignored (it would be impossible) these symptoms and didn't get treatment for the infection, I would die from complications of autonomia.

    "Typically, the presence of a single type of bacteria growing at high colony counts is considered a positive urine culture. For clean catch samples that have been properly collected, cultures with greater than 100,000 colony forming units (CFU)/mL of one type of bacteria usually indicate infection. In some cases, however, there may not be a significantly high number of bacteria even though an infection is present. Sometimes lower numbers (1,000 up to 100,000 CFU/mL) may indicate infection, especially if symptoms are present. Likewise, for samples collected using a technique that minimizes contamination, such as a sample collected with a catheter, results of 1,000 to 100,000 CFU/mL may be considered significant." https://labtestsonline.org/understan...ture/tab/test/

    All the best,
    GJ
    Last edited by gjnl; 09-04-2016 at 07:51 PM.

  4. #14
    Quote Originally Posted by gjnl View Post
    It is mostly about colony forming units (CFU) as identified in a culture & sensitivity (C&S) lab test of a urine specimen. In my case, each urinary tract infection I have had has been well above 100,000 CFU and no fever. The symptoms I experience are full blown autonomia, chills, dangerously high blood pressure, etc. If I ignored (it would be impossible) these symptoms and didn't get treatment for the infection, I would die from complications of autonomia.

    "Typically, the presence of a single type of bacteria growing at high colony counts is considered a positive urine culture. For clean catch samples that have been properly collected, cultures with greater than 100,000 colony forming units (CFU)/mL of one type of bacteria usually indicate infection. In some cases, however, there may not be a significantly high number of bacteria even though an infection is present. Sometimes lower numbers (1,000 up to 100,000 CFU/mL) may indicate infection, especially if symptoms are present. Likewise, for samples collected using a technique that minimizes contamination, such as a sample collected with a catheter, results of 1,000 to 100,000 CFU/mL may be considered significant." https://labtestsonline.org/understan...ture/tab/test/

    All the best,
    GJ
    I thinkI am doing Clean Catch right but would like confirmation When all or most of symptoms of UTI are present Iam para neurgenic bladder managed by IC I insert catheter drain into urinal then pull out catheter a litle reinsert fill specimen cup then back to urinal completely drain. Doing all of this in as sterile a manner as possible i.e. thorough wash hands ,gloves hand sanitizer wipes never touch catheter. Is this what is considered clean catch it was how i was taught so just checking.

  5. #15
    Quote Originally Posted by pete4sake View Post
    I thinkI am doing Clean Catch right but would like confirmation When all or most of symptoms of UTI are present Iam para neurgenic bladder managed by IC I insert catheter drain into urinal then pull out catheter a litle reinsert fill specimen cup then back to urinal completely drain. Doing all of this in as sterile a manner as possible i.e. thorough wash hands ,gloves hand sanitizer wipes never touch catheter. Is this what is considered clean catch it was how i was taught so just checking.
    As I understand a "clean catch" it applies to an able bodied person who can us a sanitary wipe, void an amount of urine, then catch a specimen of urine in a sterile cup.

    No one who uses a catheter/neurogenic bladder can get a "clean catch" because the urine does not come straight out of the urethra, the urine is diverted through a catheter.

    Whenever you submit a specimen of urine for a urinalysis (UA) and/or culture & sensitivity (C&S), you need to indicate to the lab that the specimen you are submitting was acquired via an intermittent or indwelling catheter.

    All the best,
    GJ

  6. #16
    Senior Member CapnGimp's Avatar
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    catheter candy

    Went to do labwork today in preparation for surgery tomorrow. My urologist's office had 3 douette caths they had gotten by mail as samples for me. Went and picked them up and have them here at the hut for when I get out tomorrow. Unfortunately, he has me scheduled for an IV of levofloxacin, saw it on the paperwork. All the fluoroquinalones have always made me sick, temperature, weak, sore, etc. Over the first years of my sci, they gave them to me like candy for utis and that is what destroyed my shoulders, I'm sure. I'm HOPING to get back to handcycling asap, as this makes the pain a lot more bearable. We will see. Meantime, thankful to get the stones out and get another chance to stay colony free! I actually had to clean my silver coated cath last night about midnight, it was clogged and bladder distended again. I had JUST changed to it less than a week ago. Here is a pic of the 'crystals' that came out and off of it and the connector piece. Cleaned it out(rolled it between thumb and fingers, squeezing hard) for a few minutes, in a small black tub, like the ones ya get in a horsepital for bed baths. Bought at wal mart for a couple bucks.Suds on top, crystals piled up in bottom and a few small pieces scattered to the sides.
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    Last edited by CapnGimp; 09-06-2016 at 08:19 PM. Reason: I heard editing will make you wise and wealthy...

  7. #17
    Senior Member CapnGimp's Avatar
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    D-mannose only works on e-coli. Prevents their cilia from getting a 'grip' on the bladder walls, essentially allowing them to flush straight out with the pee. It's a one-horse killer, like the so-called flu vaccines. Bactrim, like any other long term 'preventive use' antibiotic is not effective, and just allows build up of resistance to them. You KNOW your uro isn't knowledgeable if they go that route. You should get a uro to check for stones. I get 'pain' whenever I do a room temp flush, try heating it up to body temp by putting the container into hot tap water in the sink or something.

  8. #18
    Thank you
    Marie
    Unbroken by the grace of God

  9. #19
    Okay I do think I have a legitimate UTI because I am getting intense chills and my urine has gotten cloudy but I do not want to send it for a culture just yet. I am drinking more now and started taking d-man nose. I have been doing some reading about uroquid. Can someone tell me more about this and is this something I can get over the counter or do I need a prescription?
    Marie
    Unbroken by the grace of God

  10. #20
    Yes, it needs a prescription. The premise behind this particular medication is that it acidifies your urine, causing the urine to provide an unfriendly environment for bacteria. In the past, it was used to prevent uti's, along with Vitamin C. Given that the urine needs to be in your bladder for about 4 hours for this to have any effect, it is not useful for anyone who uses an indwelling catheter.

    As far as I know, there is nothing in the literature that shows us that this works in individuals with a spinal cord injury.

    Remember also, that the d-mannose only works on certain bacteria. Specifically, e. coli.

    If you believe that you have a UTI, please do not screw around with it. Drinking a lot of fluids only masks the symptoms. Once you decrease your fluid intake, you may likely still have the infection. All the fluids did was dilute the number of colonies per cc of liquid.

    ckf

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