Results 1 to 9 of 9

Thread: Fampridine-SR

Hybrid View

Previous Post Previous Post   Next Post Next Post
  1. #1

    Fampridine-SR

    https://www.drugs.com/availability/generic-ampyra.html


    I see that Fampridine SR by Accorda will lose its exclusivity this coming January. Become an orphan drug. Amazing it's still only drug available for inc. sci...Jan

  2. #2
    Hi Folks,

    I have one unopened bottle of Ampyra (60 x 10mg) with expiration in July 2017.
    If someone want it - I will mail it for Free.
    I got 2 bottles from our Forum member for free and use up one bottle.
    Than I have switched to 4-AP-3-MeOH which I have used for several months.
    When supply of 4-AP-3-MeOH start to be tricky and my dosage come up to 6 capsules by 0.5 mg
    daily I have decided to stop till things with 4-AP-3-MeOH get clear.
    I would still consider good supply and lower price for 4-AP-3-MeOH If someone knows??
    (I did pay $ 1.00 per capsule before and got it from http://mod4all.com/);

    Contact me with Private message, please.
    www.MiracleofWalk.com

    Miracles are not contrary to nature, but only contrary
    to what we know about nature
    Saint Augustine

  3. #3
    Hi Comad, I thought that website closed. I did like the new 4-ap better. -Jan

  4. #4
    Sorry People!
    I got a guy request immediately after I've posted- I will send to him...soryyyy
    z
    www.MiracleofWalk.com

    Miracles are not contrary to nature, but only contrary
    to what we know about nature
    Saint Augustine

  5. #5
    Quote Originally Posted by comad View Post
    Sorry People!
    I got a guy request immediately after I've posted- I will send to him...soryyyy
    z
    That's very disappointing and that website can't be found. I really need the better 4-AP too...Jan

  6. #6
    Quote Originally Posted by FellowHawkeye View Post
    That's very disappointing and that website can't be found. I really need the better 4-AP too...Jan
    The website is still up but I was emailed by a stand-in saying the admin is in hospital so ordering is a bit hit and miss.

    http://www.mod4all.com/zencart/index.php?main_page=index&cPath=2


    4-AP medication and stem cell treatment both target demyelinated axons for better conduction

    I noticed some similarities between wumedical's anecdotal SCI stem cell treatment case, Asteria's prelim cervical AST-OPC1 reports and reports about use of 4-AP (4-Aminopyridine), a potassium channel blocker. They all appear to target demyelinated axons with poor conduction. Asterias even mentions the target of their AST-OPC1 stem cells is demyelinated axons.

    So I got 4-AP compounded and tested it at 10mg x 4 times a day dose, after which I noticed the following benefits. I'm a C4 incomplete.

    - greatly reduced spasticity allowing noticably faster heel-to-toe walking
    - sweating for the first time down my back -> a marked improvement in sensation
    - increased firmess through the core
    - better hand dexterity and alleviation of shoulder tightness/pain

    These are similar benefits to what wumedical stories say.

    I've then concluded then that anybody contemplating stem cell therapy should consider trying 4-AP first to gauge how much remyelination potential exists, along with functional gains obtained. 4-AP is a lot cheaper than stem cell therapy though of course when your not on it, the benefit is gone. Asterias' AST-OPC1 stem cell treatment above and below the injury site is about as good as it gets. Though that's still at a clinical trial phase

    4-AP or even better 4-AP-3-MeOH support references

    http://www.sci-therapies.info/Pharm-Chronic.htm
    http://www.mult-sclerosis.org/news/May2000/4APFAQ.html
    http://sci.rutgers.edu/forum/showthr...CI-Dr-Riyi-Shi
    https://healthunlocked.com/amneasier/posts/131885870/recently-diagnosed-with-amn
    https://healthunlocked.com/amneasier/posts/133633198/4-ap-anyone-tried-it
    https://healthunlocked.com/amneasier/posts/131982109/4-aminopyridine-3-methanol-4-ap-3-meoh-.
    https://miracleofwalk.wordpress.com/...of-4ap-3-meoh/
    Last edited by Pauly1; 09-24-2016 at 02:16 AM.

  7. #7
    Pauly, thank you for posting!! I emailed mod4all and haven't heard back so I didn't know if their site was working again. I found it on a year old post. What terrific news, but not that the admin is in hospital. I have a C3/4 sci and am only on 5 mg of 4-AP, which isn't enough lately. Earlier I got benefit from using Intermittent Hypoxic Therapy, but can't afford it now. I've found 4AP-3-MeOh to be more effective, safe, less needed, and affordable with mod4all. I think you'd like it! -Jan

  8. #8
    Quote Originally Posted by FellowHawkeye View Post
    Pauly, thank you for posting!! I emailed mod4all and haven't heard back so I didn't know if their site was working again. I found it on a year old post. What terrific news, but not that the admin is in hospital. I have a C3/4 sci and am only on 5 mg of 4-AP, which isn't enough lately. Earlier I got benefit from using Intermittent Hypoxic Therapy, but can't afford it now. I've found 4AP-3-MeOh to be more effective, safe, less needed, and affordable with mod4all. I think you'd like it! -Jan
    My pleasure. What benefit did the Intermittent Hypoxic Therapy provide. Also pls advise if you managed to order from mod4all. I tried, did the skrill thing, but the stand in did reply to my pestering posts on how I order through skrill.

  9. #9
    Quote Originally Posted by Pauly1 View Post
    My pleasure. What benefit did the Intermittent Hypoxic Therapy provide. Also pls advise if you managed to order from mod4all. I tried, did the skrill thing, but the stand in did reply to my pestering posts on how I order through skrill.
    No reply yet from mod4all.com. What's a stand-in?? IHT is in clinical trial around Atlanta for people with chronic, incomplete sci at high and low levels and it's significantly helping them to stand and walk better, less seizures etc. Rehab follows IHT which is forcing better lung function and giving you more energy. Go to hypoxico.com for more info and a video. I rented the equipment and didn't get right protocol the first month, but it did give me more energy for months w/ very little 4-AP. Was hoping it would've helped heal sci better, but must take longer..

Similar Threads

  1. Use of 4-ap ( fampridine )
    By SCI PILOT in forum Cure
    Replies: 60
    Last Post: 06-09-2008, 08:28 AM
  2. Fampridine,my Only Hope
    By djas57 in forum Cure
    Replies: 6
    Last Post: 05-31-2006, 10:52 AM
  3. Fampridine-SR Update?
    By FellowHawkeye in forum Cure
    Replies: 4
    Last Post: 07-29-2004, 09:55 PM
  4. Fampridine-SR
    By grbrown in forum Cure
    Replies: 2
    Last Post: 02-20-2003, 07:36 AM
  5. fampridine-sr(4-ap)
    By john foster in forum Cure
    Replies: 6
    Last Post: 06-25-2002, 12:14 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •