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Thread: I'm at the end of my rope

  1. #1
    Senior Member alan's Avatar
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    I'm at the end of my rope

    What can cause the symptoms of an ascending syrinx (increasing and some ascending neuro pain, function change <in large part due to the worsening pain in my shoulder blade area, along with the sticking and popping shoulder blades, which makes moving my arms ever more difficult>) without being an ascending syrinx? Bad luck, like all the central pain I wound up with? I get an MRI every year, and they show nothing ascending from year to year, as well as compared to older scans. Increasing pains make my concentration worse (on everything except pains), and just make life miserable. It's bad enough I don't know ADLs, but even if I did, I'd be losing the ability to do them.
    Alan

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  2. #2
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    Hey, Alan,
    I have no information about ascending syrinx but have had a lot of experience with misery. So, so sorry about your worsening condition. It's really hard to keep on keeping on when new problems crop as we age. I just wanted to give you some moral support for this great battle in which we are all engaged. Hang in there & know I'm thinking of you.

  3. #3
    Have they checked your rotator cuffs for tears?You have a lot of post injury years on those shoulders.
    You will find a guide to preserving shoulder function @
    http://www.rstce.pitt.edu/RSTCE_Reso...imb_Injury.pdf

    See my personal webpage @
    http://cccforum55.freehostia.com/

  4. #4
    I too, have no experience with an ascending syrinx. I've had surgery to try and alleviate one problem only to have at least 2 more pop-up. I can only offer moral support at this time. As mentioned above, you have many miles on those shoulders. You should look at some of your muscles as the cause of your pain. The sort of pain that you're experiencing may be related more to your arm muscles than within your neck. Something to consider.
    DaDutchman
    C5/C6 since 2007 due to car accident

  5. #5
    Senior Member alan's Avatar
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    My latest pain Dr. did steroid injections into both shoulders this week, but they had no effect. Such is my life.
    Alan

    Proofread carefully to see if you any words out.

  6. #6
    I was diagnosed with an ascending syrinx back in 1994. I had a shunt put in and it is still there. Two years after the surgery however paying began to settle in. Every MRI shows that it is still dreaming but the muscle/nerve area that the shunt goes through is where my pain is and if I over use that muscle (it is either the deltoid muscle or the trapezius muscle... whichever one is located under my right shoulder blade) it hurts terribly. I am on a low dose pain medication and that takes the edge off but, again, if I over use that muscle or if I get hurt in any way in that area... I am in pain for days. I am 37 years post and it is getting old and tiring. That on top of all the other problems I am having.

    I have heard that syringomyelia only happens to about 4% of the SCI population and I do not know of that still holds true but those who are lucky enough to acquire the damn condition really suffer.

    In any case, I hear you loud and clear but have no advice to offer. :-(

  7. #7
    I'm still experiencing my pains along with a new one created by my physical therapists who have limited knowledge in trying to relieve my pain. One thought that I have is, have you tried nerve block shots to try and ease the pain? As for my initial right shoulder blade area pain it took them over 8 years and multiple MRI's to find a herniated disc between C4 and C5. Since I've had the pain there from the very first day I remember after my accident, I believe the herniated disc happened as part of the accident. Try and see if someone can tell you if you have a herniated disc between C4 and C5. Hang in there.
    DaDutchman
    C5/C6 since 2007 due to car accident

  8. #8
    All good suggestions. If your MRI is not showing the syrinx ascending, then I would look for other causes. Shoulder injury can cause neck pain. So can disc injury. Have you had these checked out?
    ckf

  9. #9
    Yes, C4-5,C5-6 innervate the shoulders, scapula. Also shoulder problems- rotator cuff, impingement syndrome, overuse/disuse and just using under the arm techniques to pull someone up- shoulder cause issues. NSAIDS helpful with heat and/or cold.
    If syrinx, no promises with that treatment/surgery and usually only done with weakness. Did your doctor say syrinx pressing on those specific nerves?

    CWO

  10. #10
    Senior Member alan's Avatar
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    I have a fusion between C-4 and C-6, and that region supposedly looks fine. No shoulder injury found so far. No idea of anything that can stop the blades from sticking on whatever bones they're catching on. The syrinx isn't pressing on anything, the doctor says.

    I'm leery about cold and heat because I don't really feel them well when I try ice pack or heating pad under my upper back. NSAIDs haven't provided any relief when I try them. The pains seem neuropathic.

    I'll mention nerve blocks again. They'd be in my neck, correct?

    Thank you for the ideas.
    Alan

    Proofread carefully to see if you any words out.

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