Hi! My name is Liz and I am mom to Spencer, age 6. Spencer functions at L1/L2, has a VP shunt (no revisions, knock on wood!) and loves all things sports. Spencer had the MACE/mitrofanoff surgeries in 2015 and he is cathed every three hours.

I am involved with a study that is looking to improve the management of UTIs for individuals with SB or SCI. We are currently recruiting for a clinical trial that will investigate if a probiotic solution put directly into the bladder (using a catheter) can help prevent/manage UTIs. Participants must be at least six (6) years old, use intermittent catheterization and have had 2 or more UTIs in the past year.

MedStar Rehabilitation Hospital and Children's National Medical Center are conducting this study in partnership. Both hospitals are located in Washington, DC, but you do not need to live in the area or travel to DC for the study. The study is done entirely at your home and all materials are mailed to you. This clinical trial is unique because the research team includes individuals that actually have SB, SCI or are parents of individuals with SB. The hope is that by incorporating the views of individuals that actually live with SB/SCI, better treatments can be developed.

We could really use your help. If you (or your child) would like more information, please contact either Bruce Sprague (202-476-3433 or bsprague@childrensnational.org) or Inger Ljungberg (202-877-1684 or inger.h.ljungberg@medstar.net).


Here is a link to the clinicaltrials.gov listings for more detailed information:

https://clinicaltrials.gov/ct2/show/...cr=Open&rank=5
https://clinicaltrials.gov/ct2/show/NCT02748356?term=probiotics+urinary&recr=Open&rank =3