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Thread: What potential therapies do you have the most interest in or questions about?

  1. #1

    What potential therapies do you have the most interest in or questions about?

    Hello.
    My name is Dennis Tesolat and I run the blog www.StemCellsandAtomBombs.org. Due to pain I had taken a year off but I?m back and will be working on some more campaigns in the hope of bringing you closer to cure information and to give you a chance to have your voice heard. The basic premise of my work and blog has been that without us, those living with paralysis, involved in a cure, it will never come about.

    Of course I also hope to hear back from old friends and make new ones that are interested in being involved becoming more active in a cure for paralysis.
    One of my first projects (http://stemcellsandatombombs.blogspo...ly-i-hope.html) will be identifying therapies that people find interesting but feel frustrated because they have questions which they can?t find the answers to, or can?t find any progress updates.
    So my question to all of you today is to let me know what therapies you are most interested in AND have questions which haven?t been answered or you want some kind of progress report. I won?t be able to take each one up, but will feature the more popular ones on the blog along with the answers to your questions. Maybe people can even share answers to people?s questions/concerns, including mine.

    So I will start?
    Mine are:
    ? Epidural stimulation and specifically the current trials being run by the Christopher and Dana Reeve Foundation (CDRF). I love the name of this programme, ?The Big Idea?, and I love the feeling they are trying to create about their work. This is the passion that I think is often missing from CDRF. While I?m not convinced about epidural stimulation, I am always willing to be convinced. Specifically, I am interested in getting more information about some of their important claims about bladder, bowel, and sexual function.
    ? Chondroitinase (aka ch'ase) and the work being done by Spinal Research in the UK and the Jerry Silver lab. Personally, I think that the work around chondroitinase is the best tested and worked with avenue to cure. It?s been played around with for a couple of decades. What we need to know now is what the plan is. Something this important requires more transparency so that we know what WE can do to move things along.
    ? In 2014 the papers blared with the story of a paralysed Polish man who had a positive outcome after being treated with olfactory ensheathing cells in a research carried out by professor Geoffrey Raisman in the UK. Since this time, we?ve heard very little about what the plans are for the future. 2014 was two years ago and seeing where this exciting research and further clinical trials going is a must for our community.
    Dennis Tesolat
    www.StemCellsandAtomBombs.blogspot.com

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

  2. #2
    So I will start?
    Mine are:
    ? Epidural stimulation and specifically the current trials being run by the Christopher and Dana Reeve Foundation (CDRF). I love the name of this programme, ?The Big Idea?, and I love the feeling they are trying to create about their work. This is the passion that I think is often missing from CDRF. While I?m not convinced about epidural stimulation, I am always willing to be convinced. Specifically, I am interested in getting more information about some of their important claims about bladder, bowel, and sexual function.
    ? Chondroitinase (aka ch'ase) and the work being done by Spinal Research in the UK and the Jerry Silver lab. Personally, I think that the work around chondroitinase is the best tested and worked with avenue to cure. It?s been played around with for a couple of decades. What we need to know now is what the plan is. Something this important requires more transparency so that we know what WE can do to move things along.
    ? In 2014 the papers blared with the story of a paralysed Polish man who had a positive outcome after being treated with olfactory ensheathing cells in a research carried out by professor Geoffrey Raisman in the UK. Since this time, we?ve heard very little about what the plans are for the future. 2014 was two years ago and seeing where this exciting research and further clinical trials going is a must for our community.[/QUOTE]

    There have been more developments on epidural simulation. Dr Harkema had 10th patient with epidural simulation. Here is the link https://www.christopherreeve.org/blo...epi-stim-study

    Also Dr Courtine in Switzerland will be starting clinical trials in the next six months or so with implanted simulation, biological agent. This is exciting. Dr. Edgerton also had 20-25 patients with implanted and over the skin simulators

    Dr. Silver came about a few weeks ago here and explained and answered very important questions. He also said he is waiting on the dog trials which will probably end in six month or so then if the results are good then he can start the clinical trials but this is my general knowledge and there are people here know a lot more and in depth.

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