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Thread: Uti

  1. #41
    Some people use the d-mannose regularly and others use it when they feel like they may be getting a uti. I know that is not helpful, but from my experiences that is the way it is. I am not sure that using it regularly is beneficial - but I do not knock what other people do that is successful for them. Remember that it is only effective on one organism - e. coli. So if your infection is from another type of bacteria, it will have no effect.
    ckf

  2. #42
    I have a spinal cord injury. I live with an indwelling catheter. I have been plagued with chronic UTI for the last 7 years since my accident. I am 30 years old and in great health on the exception of my paralysis. I am either on antibiotics or infected. One or the other. I have tried almost every supplement on the market. I have come across. I am consistent with them, and sometimes triple dose. I drink nearly 2 gallons of Kangen water daily. I take Dman, cranberry, ACV, Olive leaf capsules, Oregano capsules, and the list goes on daily! I recently started a regimen with Lugols (which gives me the most relief). However, my infections remain. To be honest, these infections are worse than my paralysis. I go hard at everything I do. These infections are so tough... I know there is an answer. Anyone, if you have some advice. Please help me! I have three boys that I continue to fight for. This is so hard for me! I become depressed and I am not as functional or productive, like a father should be. Please help me!
    Last edited by SCI-Nurse; 05-20-2016 at 12:02 PM. Reason: remove personal e-mail address

  3. #43
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    I agree MrAmbassador that UTI is one of the curses of SCI, SCI - Nurse has pointed out previously that UTI should only be treated if it is making you unwell (symptomatic) and one school of thought I read was that post an antibiotic course one needs to pump in the good flora again as the drugs kill the good and bad bacteria and that enough good flora will mean that the UTI bugs will have a harder time getting going. The other advice was to see a specialist to look at your drug regimen. The most comprehensive studies according to my GP found that cranberry was of no help and Oregano capsules have only been proven to kill harmful bacteria in a lab setting and there is no evidence that taken in capsule form that it will reach your bladder in enough concentrations to be of any benefit. IN some brands of Grapefruit Seed Extract for example it was found that it was the introduced synthetic antiseptics that was giving the product the UTI punch

  4. #44
    Can you detail for us how your physician treats your urinary tract infections? Does he do urinalysis (UA) and culture & sensitivity (C&S) urine tests before he prescribes an antibiotic? Does he order these same tests 2-3 days after you have taken the antibiotics? How long of a course of antibiotics does your physician prescribe...5 days, 7 days, 12 days etc?

    Have you consulted an infectious disease physician?

    What type of indwelling catheter are you using...supra pubic or urethral? Silicone or Latex?

    When you drink that much water, are you getting regular blood tests to tract your electrolyte balance?

    Have you been tested for bladder or kidney stones?

    Have you read (on this forum) about Microcyn Technology?
    http://sci.rutgers.edu/forum/showthr...light=microcyn
    http://sci.rutgers.edu/forum/showthr...light=microcyn

    All the best,
    GJ

  5. #45
    It is well known that most, if not all, long term indwelling catheter users are chronically colonized with bacteria. This is NOT a UTI. Colonization should no be treated (with rare exceptions) unless it develops into a true infection. This would require signs and symptoms such as fever, chills, elevated WBC in the blood, flank pain, autonomic dysreflexia, serious leakage around the catheter, and severe malaise ("SCI Feel Awful Syndrome"). Treating colonization will only lead to you developing further colonization by more and more drug resistant strains of bacteria, resulting in having no drugs available to treat a true infection once it occurs.

    Antibiotic choice for a true UTI must always be based on getting a urine culture and sensitivity (C&S) specimen to the lab first, before starting any antibiotic, and then checking the 72 hour results to be sure that the correct antibiotic was selected (and if not, changing to the correct one). True UTIs should also be treated as a "complex' UTI meaning that they require 10-14 days of treatment, not the 3-5 days of treatment used for ABs with "simple" UTIs.

    Similarly use of long term preventive (prophylactic) antibiotics is not encouraged for people with SCI, including those with indwelling catheters.

    Annual tests for stones, exams for possible prostatitis (for men) and imaging to rule out hydronephrosis or other structural problems with the urinary tract are also important for everyone with a SCI, as these may occur without symptoms, and can lead to repeated infections.

    (Mr. Ambassador, I removed your personal e-mail address above. It is not wise to post this in a public forum like this. Leaves you open to scams and spam. You have both PMs and e-mail from the site turned on in your profile, so can request people contact you this way. Thanks!)

    (KLD)
    Last edited by SCI-Nurse; 05-20-2016 at 12:05 PM.

  6. #46
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    Somebody mentioned to me that the same thing that makes D - mannose work on e coli is the same sugar molecule that makes cranberry work ( or not) does anyone know ??

  7. #47
    Not sure on that one. Will try to find out.
    ckf

  8. #48
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    As I said previous I am taking one 50,000 cranberry capsule at night and have dropped the d-mannose to 1/2 1.25 spoon twice daily as it seemed to me that it was giving me very loose bowels (although I have read that there are no side effects) I was wondering, now that Cred etc have been discredited, what has taken it's place ? Is self cath the new gold standard ?? I have a friend who ended up with super pubic due to scarring of urethra through many years of cath.

  9. #49
    Both cranberry capsules and d-mannose can cause loose stools. Not sure where you got the information that there are no side effects.

    Intermittent catheterization has been the gold standard for bladder management in SCI since the 1980s. As with any bladder management method, if not done properly, it can have problems. Your friend with the scarred urethra was probably doing excessively rough caths, or not using enough lubricant, or using the wrong type of catheters. I have clients who have done self cath for 30 years now, and have not had any urethral trauma.

    (KLD)

  10. #50
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    I read something online on a health site talking about alternative treatment of UTI, so I guess taking them at the same time must have really upset my system. Before cutting down on the d-mannose it was like a river at BP time and have had a few late arrivals after I thought things were finished. I usually sit on bog 10 minutes post MB and go pretty quick however I will of needs for a time keep sitting to avoid a mess.

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