View Poll Results: Should a C5-C6 injury (even complete)be able to self catheterize, transfer, Drive..

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  • Yes as long as they work hard enough, they should be able to do these tasks at that level

    1 4.00%
  • No every injury is different, even at the same level

    21 84.00%
  • A C-5 C6 even complete should be able to drive and Cath themselves

    2 8.00%
  • Most incompletes should be able to with rehab

    1 4.00%
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Thread: A question for the community

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  1. #1

    A question for the community

    My goal,my quest is to be independent, I watch instructional videos, I've spent tens of thousands of dollars on physiotherapy, pursue experimental treatments, and keep myself up at night thinking of what I need to be doing what I'm doing wrong etc. this is an obsession for me. I've seen people in my injuryMove as if they were paraplegics,i've seen others that can barely move their arms. Dependency is the ultimate disgrace that is what is motivated since day one, it's also why I begged to be left in that swamp. After so much effort and so much money spent true independence for myself will require return of function. Thought when I first joined this place I was attacked constantly told I was making excuses, that I wasn't doing what I could Be doing. Assumptions were made, I was hearing this was the same time the physiotherapist well I was in rehab wouldn't try anything like transfers because I "l lacked the function" The words that were said to me on here motivated me to try harder, Find better physiotherapy spend a lot more money, they also really fucked with my head when I wasn't getting anywhere... Anyways I'm here to get the communities consensus on the matter. Either way I'm still going to pursue Independence, it'd be shameful if I didnt. C1-Lumbar section completes incompletes Abs please give your votes, share your explanation or opinion if you wish.
    Last edited by JamesMcM; 12-12-2015 at 05:41 PM.

  2. #2
    Senior Member
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    I'm assuming your level of injury is C5-6 complete? What month and year were you injured?

    From the very beginning I listened to what others had to say about what they thought was best for me. And then I tossed 95% of their opinion in the trash where it belongs.

    Do whatever you think is best for you. If I listened to other people, I'd probably be dead by now. You can do this, you can do that. You won't be able to do this, you won't be able to do that. Coming from people that often prove themselves to be full of bs.

    I'll wait to see your injury date before I comment further.

  3. #3
    I have not made a poll selection. Functionality depends on a lot more than injury level and I did not approach my peak until 15-20 years after my injury. For instance when I was in rehab there were two C5,6 quads who had been jockeys. They probably did not weigh more than 80 lbs. and had been real athletes. I am a 6'1" C7 quad and they could whip my ass at just about anything. Transferring, rolling, etc. were so much easier for them because they did not have the weight to contend with. I could run circles around mid-level paras who were obese. So body type can have a significant impact on functionality. The reason it took me that long to peak is because learning body mechanics and applying laws of physics like leverage can be used to compensate for limited strength. It takes time to learn these things. Also, once I fully understood what my muscles could and could not do I was able to develop aids that helped to extend their capability. It also takes patience and practice, practice, and that takes time. It also took about 15 years for my body to adjust to the point that I had plenty of energy or stamina and in sum, to feel good again. On top of that it took at least 10 years for me to get my head together so I could take advantage of everything I had going for me. I understand your impatience, but in my experience there are some things that take time. The really frustrating thing is not knowing what the future holds.
    You will find a guide to preserving shoulder function @
    http://www.rstce.pitt.edu/RSTCE_Reso...imb_Injury.pdf

    See my personal webpage @
    http://cccforum55.freehostia.com/

  4. #4
    Quote Originally Posted by SCIfor55yrs. View Post
    I have not made a poll selection. Functionality depends on a lot more than injury level and I did not approach my peak until 15-20 years after my injury. For instance when I was in rehab there were two C5,6 quads who had been jockeys. They probably did not weigh more than 80 lbs. and had been real athletes. I am a 6'1" C7 quad and they could whip my ass at just about anything. Transferring, rolling, etc. were so much easier for them because they did not have the weight to contend with. I could run circles around mid-level paras who were obese. So body type can have a significant impact on functionality. The reason it took me that long to peak is because learning body mechanics and applying laws of physics like leverage can be used to compensate for limited strength. It takes time to learn these things. Also, once I fully understood what my muscles could and could not do I was able to develop aids that helped to extend their capability. It also takes patience and practice, practice, and that takes time. It also took about 15 years for my body to adjust to the point that I had plenty of energy or stamina and in sum, to feel good again. On top of that it took at least 10 years for me to get my head together so I could take advantage of everything I had going for me. I understand your impatience, but in my experience there are some things that take time. The really frustrating thing is not knowing what the future holds.
    Agreed body mechanics makes a world of difference. Another thing people disregard is subtle functional differences. For example some C5s they have good shoulder function, good bicep function, forearm function and wrist extension in both arms, where is another may only have one good arm One, one Bad arm.like I said I have this problem with my right shoulder and forearm do not possess the same function my left does ( my left is standard C-5 complete arm function) but it's as if my right side took more damage and loss more function, this affects everything I try to do. After many years of trying, intense daily physiotherapy, rehab, alternative therapies acupuncture, electro stim, FES I know that this is sadly not going to functionally improve, or even provide pain relief that the further paralysis in my shoulder causes no amount of practice is going to change that.

    Quote Originally Posted by NorthQuad View Post
    I'm assuming your level of injury is C5-6 complete? What month and year were you injured?

    From the very beginning I listened to what others had to say about what they thought was best for me. And then I tossed 95% of their opinion in the trash where it belongs.

    Do whatever you think is best for you. If I listened to other people, I'd probably be dead by now. You can do this, you can do that. You won't be able to do this, you won't be able to do that. Coming from people that often prove themselves to be full of bs.

    I'll wait to see your injury date before I comment further.
    Be 3 1/2 years this month

    Quote Originally Posted by Silvio GS View Post
    There's this video on YouTube of a man claiming he's C5 complete
    http://youtu.be/2CN6p3nTvaw
    I studIed That video intensively,that Man is and anomaly plain simple you won't see this very often unfortunately and he is obviously very incomplete. First off he has slight gripwith full use of his forearms as in supination and pronation as well as extension obviously no flexion. Now from what I read This is common in C5 injuries more so in incomplete injuries though. He also has no spascisity Which is critical for all this stuff mind you he could simply just be flaccid paralysis. But the two main indications are first He clearly has At least some sensory function of the hands and arms, this is how he manages to utilize the wrist extension grip without looking for example the lube behind his head Also he must have at least partial sensation of the anus.how could someone insert a tiny suppository in their anus ( small target ) with no sensation down there using a device with no sensory function in the hands or arms. Talk about trying to hit a bull's-eye with a broken bow and arrow in the back of a moving truck while blindfolded haha. How do you even know where it is, if you're close let alone if the thing was in... Secondly at many points in the video You can evidently see that he has core stability, And even slight activation that you can notice if you look carefully, I see these kind of movements or differences in incompletes my friend I went through rehab with moves the same way we have the same injury but he is incomplete.

    https://www.youtube.com/watch?v=cOGsQLaPFgg

    This is another great transfer video, one I've tried to learn from. His core stability and core activation is evident.

  5. #5
    Quote Originally Posted by JamesMcM View Post
    My goal,my quest is to be independent, I watch instructional videos, I've spent tens of thousands of dollars on physiotherapy, pursue experimental treatments, and keep myself up at night thinking of what I need to be doing what I'm doing wrong etc. this is an obsession for me. I've seen people in my injuryMove as if they were paraplegics,i've seen others that can barely move their arms. Dependency is the ultimate disgrace that is what is motivated since day one, it's also why I begged to be left in that swamp. After so much effort and so much money spent true independence for myself will require return of function. Thought when I first joined this place I was attacked constantly told I was making excuses, that I wasn't doing what I could Be doing. Assumptions were made, I was hearing this was the same time the physiotherapist well I was in rehab wouldn't try anything like transfers because I "l lacked the function" The words that were said to me on here motivated me to try harder, Find better physiotherapy spend a lot more money, they also really fucked with my head when I wasn't getting anywhere... Anyways I'm here to get the communities consensus on the matter. Either way I'm still going to pursue Independence, it'd be shameful if I didnt. C1-Lumbar section completes incompletes Abs please give your votes, share your explanation or opinion if you wish.
    telling people what they "should" or "shouldn't" be able to do is a bad idea, in my opinion. you have to do as much for yourself as you possibly can so that you can feel good about yourself, but if you absolutely can't do something, you can't be ashamed either. i think the only shame is in not trying. it sounds cliche, but by not trying because you're afraid (not you individually, you collectively) of failing, you've already failed. hopefully in any attempt to do something, you learn from it even if you fail. and at least you can say you tried.

    it's easy to make excuses but that runs rampant in our society, it isn't limited to people with SCI. a lot of society is more than willing to give you pity or make excuses for you not doing something, so that trap has to be avoided. try not to ask people what they think too often. decide for yourself what you want to do and what will make you happy and then try. if it works, wonderful. if it doesn't, try something else.

  6. #6
    Senior Member lynnifer's Avatar
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    Rehab sure has changed. 30yrs ago there was a list be each patient's bed and you would tick them off as achieved:

    Feed self
    Brush teeth
    Dress self
    Get in out of bed by self, etc

    Like military barracks ... quad and para.

    Have you thought about seeking better care and rehab in the US? If you can prove that you're not getting what you need here, OHIP will pay for your stay in the US. Like Rehab Institute of Detroit?
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  7. #7
    Quote Originally Posted by lynnifer View Post
    Rehab sure has changed. 30yrs ago there was a list be each patient's bed and you would tick them off as achieved:

    Feed self
    Brush teeth
    Dress self
    Get in out of bed by self, etc

    Like military barracks ... quad and para.

    Have you thought about seeking better care and rehab in the US? If you can prove that you're not getting what you need here, OHIP will pay for your stay in the US. Like Rehab Institute of Detroit?
    right?! i was at Craig Hospital in 1980 and it felt like it was run like a boot camp. i remember thinking it was a little harsh at the time, but it has served me well over the years. i am dumbfounded at the way rehab is run there now. it's nothing like it used to be. you can lie in bed all day with the drapes drawn, turn down all your classes and pitch a constant fit for pain meds. i think eventually you get sent home for that, but not right away, and it's only cheating oneself to behave like that. none of us signed on for SCI, but the world can be a cruel place sometimes. my attitude is figure out how to deal with circumstances the best way possible and move on so i can get on with my life.

  8. #8
    I too was at Craig right after my accident 1975, I was getting out of bed with halo after the first week for an hour or so. The up time increased along with daily living chores so you could figure out what you could or couldn't do on your own. A little later you could spend the weekend with wife/family member in apartments across the street to see how you could get through the day with no or little help. This was the motivation I needed to achieve total independence. If you over do it, you will stress yourself out both physically and mentally.
    Quote Originally Posted by absinthia darkbloom View Post
    right?! i was at Craig Hospital in 1980 and it felt like it was run like a boot camp. i remember thinking it was a little harsh at the time, but it has served me well over the years. i am dumbfounded at the way rehab is run there now. it's nothing like it used to be. you can lie in bed all day with the drapes drawn, turn down all your classes and pitch a constant fit for pain meds. i think eventually you get sent home for that, but not right away, and it's only cheating oneself to behave like that. none of us signed on for SCI, but the world can be a cruel place sometimes. my attitude is figure out how to deal with circumstances the best way possible and move on so i can get on with my life.

  9. #9
    Senior Member TomRL's Avatar
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    My doctor was bitching during my last at the current state of rehab. He was saying he often fielded phone calls from insurance companies as soon as two weeks after injury. They are, of course, looking to save money.
    Tom

    "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

  10. #10
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    its all unique to 1 self I am as independent as I can be that said there are thing I choose to have done so I have a better quality of life I am also 65 YOUNG

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