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Thread: Why do SCI patients develop neuropathy?

  1. #1

    Why do SCI patients develop neuropathy?

    I can understand some other condition causing neuropathy like diabetes. I have no other "cause" for neuropathy in my feet. My health is good, and generally always has been. Halloween of 2012 I got very very sick somehow while I was doing a bowel prep for a colostomy procedure. Ever since then I've been dealing with the neuropathy pain in both of my feet. I don't know why the bowel prep triggered this problem? Nobody does. I went to the emergency room that morning with symptoms of dysreflexia. They just gave me fluids and a couple of shots for pain and I went back home None the worse for wear Except for the neuropathy.

    What are the reasons that we Would develop neuropathy years after our spinal cord injury?

  2. #2
    Quote Originally Posted by CraigP View Post
    I can understand some other condition causing neuropathy like diabetes. I have no other "cause" for neuropathy in my feet. My health is good, and generally always has been. Halloween of 2012 I got very very sick somehow while I was doing a bowel prep for a colostomy procedure. Ever since then I've been dealing with the neuropathy pain in both of my feet. I don't know why the bowel prep triggered this problem? Nobody does. I went to the emergency room that morning with symptoms of dysreflexia. They just gave me fluids and a couple of shots for pain and I went back home None the worse for wear Except for the neuropathy.

    What are the reasons that we Would develop neuropathy years after our spinal cord injury?
    I had a colostomy ....drank that shit golytely....after didn't feel good for 2 years after.....lost 30 pounds....they ran all sorta of test never found anything. I told them I had a uti but everytime they check no uti.....I told them it was only when I woke up in the morning it be cloudy and finally saved a urine sample from the morning and it was a uti. After 2 days of taking cipro I felt myself for the first time in 2 years. Still to this day I don't feel like I used to. Never again well I take that poison ever again.
    Art

  3. #3
    I think you are confusing peripheral neuropathy (damage to the peripheral nerves) and neuropathic pain due to spinal cord lesions.

    Peripheral neuropathy is usually associated with diabetes, chronic alcoholism, peripheral vascular disease, chronic renal failure, peripheral nerve compression, or certain diseases of the peripheral nerves (like Guillan-Barre Syndrome, shingles, or polyneuropathy). Most often, peripheral neuropathy also has associated neuropathic pain (burning, electric shock), although it can result in loss of sensation as well.

    People with SCI are not more subject to peripheral neuropathy than people without SCI, but they can get it from the same causes as above. Most often the pain that people with SCI have in their legs, buttocks, trunk, etc. is due to central (spinal cord) damage and is properly call central neuropathic pain. It is not due to peripheral neuropathy...there is usually not anything wrong with the peripheral nerves; instead it is due to damage to the sensory tracks from the peripheral nerves within the cord that transmit sensation to the brain.

    Have you seen a neurologist, physiatrist, or chronic pain specialist? Are you taking any medications designed for neuropathic pain (Tegretol, Neurontin, Lyrica, etc.)?

    (KLD)

  4. #4
    Quote Originally Posted by Art454 View Post
    I had a colostomy ....drank that shit golytely....after didn't feel good for 2 years after.....lost 30 pounds....they ran all sorta of test never found anything. I told them I had a uti but everytime they check no uti.....I told them it was only when I woke up in the morning it be cloudy and finally saved a urine sample from the morning and it was a uti. After 2 days of taking cipro I felt myself for the first time in 2 years. Still to this day I don't feel like I used to. Never again well I take that poison ever again.
    Colostomy or colonoscopy? Two very different procedures....

    (KLD)

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