Results 1 to 6 of 6

Thread: Nerve blocks for bladder and related pain - is it possible?

  1. #1

    Nerve blocks for bladder and related pain - is it possible?

    Hey all,

    I was wondering if nerve blocks for bladder and related pain are a possibility? I've tried just about everything at this point catheter related minus invasive surgery (not there yet!) and the pain never leaves. I did a bit of research (though I no longer have access to PubMed), the little I found was either articles published in the 1980's or obscure one-off articles involving the Superior Hypogastric Plexus or Pudental Nerve...I'm also too tired to crack open my anatomy textbooks, not that there would be anything specific in there but yknow.

    Kind of at the end of my rope with the pain and while hydromorphone helps, I don't want to get hooked and it makes my bowel routine an absolute nightmare even with suppositories and fleet enemas and anything in between. Tramadol does nothing and Oxy makes me throw up. Either way, I don't really care if it eliminates any sexual function I have, I surely ain't using it with this pain. They said interstitial cystitis could be a possibility at this point but again, they don't seem to have any ideas how to treat the pain (whatever the source is) other than what I'm currently taking. I have a lumbar puncture coming up soon and I'm twistedly wishing they'll screw it up and I'd lose sensation - that's how bad I'm sick of the pain. Of course that won't happen but yeah. Worse even, if I can't see my specialist or there's no on call urologist, quite a few ER docs treat me no better than a pill seeker and totally don't believe in how much pain I'm in. I'm tired of stressing out wondering if I'm wasting my time in the ER and going to be treated like drug addict or being told once more they have no idea what to do with me which will just add to how depressed I'm getting over running out of options.

    Any ideas? Are nerve blocks an option? Otherwise, anything I can instill in my bladder? Uro (amazing, best I've seen and hasn't given up on me but maybe it isn't his area) seems to think there is no other options and a second opinion will take a few months...

    EDIT: The idea of spinal cord stimulator was thrown around too but I've heard so many stories that it failed, is it even worth it?

    Thanks!
    Last edited by twistties; 05-25-2015 at 12:37 AM.

  2. #2
    Senior Member
    Join Date
    Nov 2008
    Location
    Minneapolis, MN
    Posts
    175
    I, too, would be happy to have a nerve block or neurosurgical solution to my nerve pain. I'm allergic to opiods and I have tried gabapentin and lyrica without success. I even tried a spinal cord stimulator without success. I would be happy to try a direct surgical solution. Since I have no function below the middle of my chest I truly have nothing to lose.

    Every time I mention anything to my neurosurgeon he blanches. He thinks it's too extreme even though I remind him that, as far as I am concerned, it's the pain and spasms that are too extreme. Of course, he doesn't have to deal with the pain, he only has to deal with my whining.

    If you find something that works I'd like to know.

  3. #3
    This is neuropathic pain. No neurosurgeon/pain MD I know will block it. It would really mess up your bowels etc.. also. Other than Cymbalta which helps some with Gabapentin and or Lyrica at max doses. Can try instilling Lidocaine 5% via uroject -20 mls or try Lidocaine patches over bladder or Capsaicin cream.
    CWO

  4. #4
    Quote Originally Posted by SCI-Nurse View Post
    This is neuropathic pain. No neurosurgeon/pain MD I know will block it. It would really mess up your bowels etc.. also. Other than Cymbalta which helps some with Gabapentin and or Lyrica at max doses. Can try instilling Lidocaine 5% via uroject -20 mls or try Lidocaine patches over bladder or Capsaicin cream.
    CWO
    Thanks. How much would it really mess up bowels? They're already there, even more so on opioids...neuro pain meds didn't seem to help at all. I'm sure I'm chasing an answer that isn't there.

    Urojet (Instillagel here - same thing?) seems to help but I have a limited supply (it's an emergency last resort thing) and when I asked the nurse for some last time she said ''oh you won't need that'' - suppose I will ask my doc. How often is it safe to use? A few times a day?

  5. #5
    Have you seen a Pain Specialist (usually an interventional anesthesiologist specializing in pain)?
    Our doctors just won't do it. Might need a colostomy. B
    owel program with Enemeez plus recommended daily. See if this decreases neuropathic pain. Bladder and bowels share two nerves coming off the spine.
    Different formulation with patches as longer lasting and more continuous absorption.
    the other gels last for about 20 minutes but can't apply more than every 2-3 hours due to possible toxicity.
    Opioids rarely help neuropathic pain- unless they make you groggy and sleepy!
    CWO

  6. #6
    Quote Originally Posted by SCI-Nurse View Post
    Have you seen a Pain Specialist (usually an interventional anesthesiologist specializing in pain)?
    Our doctors just won't do it. Might need a colostomy. B
    owel program with Enemeez plus recommended daily. See if this decreases neuropathic pain. Bladder and bowels share two nerves coming off the spine.
    Different formulation with patches as longer lasting and more continuous absorption.
    the other gels last for about 20 minutes but can't apply more than every 2-3 hours due to possible toxicity.
    Opioids rarely help neuropathic pain- unless they make you groggy and sleepy!
    CWO
    Thanks for the info! Referral to a pain specialist will take months...as anything does around here. Hoping my current specialist will keep things in check until then because the ER is horrible they treat you like you're seeking pills, not too sure what to do. I also ordered samples of Enemeez (can't buy that OTC here) hoping it'll help.

    I'm not sure it's neuropathic pain...the kind of catheter seems to make a difference (current improved things 10X but not fully), as does constipation - well aware opioids are counterproductive here but the amount of spasms and pain I get just having a BM...well, I've lost weight from it (that I can't afford to lose). I can't seem to figure out a balance, either go multiple times a day or not at all and not sure what's worse. Working shift work ain't helping either by switching from overnight shift to 7ams to 2pm to....etc - trying to fight to keep a steady schedule for a few months and see what happens. Maybe I'm just overly sensitive down there and my bladder just reacts to things that shouldn't be that painful or it's IC maybe, who knows. I had a number of painful surgeries and chronic pain since I was a kid and I never took painkillers for it - this is a whole different ballgame. So I'm not sure what to think. I'll look into getting the lidocaine - worth a shot if I can avoid the pills half the time! Thanks.

Similar Threads

  1. Nerve Pain related to Cholecystitis and UTI
    By jbridges9 in forum Care
    Replies: 3
    Last Post: 04-17-2013, 04:20 PM
  2. Anybody have nerve blocks
    By snider in forum Pain
    Replies: 1
    Last Post: 04-11-2012, 03:30 PM
  3. nerve pain/bladder
    By wheelin 48 in forum Pain
    Replies: 5
    Last Post: 02-10-2012, 01:01 AM
  4. Nerve Blocks?
    By Danine in forum Pain
    Replies: 12
    Last Post: 05-21-2009, 04:30 PM
  5. Replies: 3
    Last Post: 06-13-2008, 09:53 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •