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Thread: new device for pain management Approved by the FDA today

  1. #11
    Junior Member
    Join Date
    Dec 2011
    Location
    San ramon, ca
    Posts
    15
    Hi cljanney, I'm a T-4 complete SCI, and live with pain in lower back. My pain doc has referred me to a specialist for the Senza trial. Just wondering if you ever got anywhere with this and if it was helpful to control pain. Thanks much, Mark

  2. #12
    Hey Mark, not yet. My initial appointment for postponed a month and I just met my surgeon this morning for the first time. He normally works with Saint Jude devices but IDF looking into the possibility of having 1 trial implant lead in place and trying multiple devices with the 1 lead over the course of a few weeks.

    There's a Facebook group based in the UK of folks using the Nevro Senza Device that might be worth joining to talk to others. Problem is usually people voice complaints much more than benefits. Search "Nevro Senza Spinal Cord Stimulator UK Group" and ask to join.

    FYI my injury is a Brachial Plexus Injury with 3 nerves torn from the spinal cord, in 13 years I've never heard of anyone getting significant pain relief with a SCS device, recently someone with the same injury and ended up amputating his arm has had 85-90% relief, he's also tried 2 other implants before the Nevro Senza. Obviously 1 person doesn't prove anything, but it's enough for me to try.

    I'll post here as soon as anything changes on my end.

    Best of luck,
    Chris

  3. #13
    Senior Member
    Join Date
    Nov 2008
    Location
    Minneapolis, MN
    Posts
    174
    I have neuropathic pain in my back and legs from neuromuscular disease. I tried the Nevro spinal cord stimulator this past June. I did not work for me. Hopefully it will work for you.

  4. #14
    Quote Originally Posted by StarLord View Post
    I have neuropathic pain in my back and legs from neuromuscular disease. I tried the Nevro spinal cord stimulator this past June. I did not work for me. Hopefully it will work for you.
    StarLord, thanks for the input, I'm still in a waiting pattern and researching more. Sorry the device didn't work out for you. Hope you find relief somehow soon. Please keep us posted if you do.

  5. #15
    Mmmm. my doc is pushing it at me. I've had bad results with the old style medtronics including some serious side effects. My current thinking is to pass. Too many disappointments with too many complications. Her feeling ...what have I got to lose, nothing else is helping, easy from the dull side of the scalpel, don't misunderstand, love her, just tired. A side note, it requires frequent charging -daily for 45 minutes. If anyone does it, let me know what happens

  6. #16
    i have had zero relief from a 8 paddle laminectomy implanted scs , i wish they would work.
    not sure what my options are.
    cauda equina

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