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Thread: blindsided by lung cancer

  1. #41
    Sweet, thanks for the uplifting good news.
    I have had periodic paralysis all my life. I lost my ability to walk in 2011 beginning with a spinal block, which was used for a hip fracture caused by periodic paralysis.

  2. #42
    Quote Originally Posted by trekker6 View Post
    Well,
    I finally finished the radiation and chemo, had a brain mri and petscan with a radioactive tracer and apparently the cancer is gone, I'm going in for a pci treatment, radiation to the head to prevent brain mets from forming, it decreases the chance of cancer forming in the brain by 60% since the chemo cannot get passed the blood brain barrier. Not crazy about the pci since you get burned and it may cause brain damage, but if I get brain mets the radiation dose is a lot higher. After that I'll be checked quarterly for recurrence since small cell lung cancer is likely to recur.

    Other than that, my spasticity has gotten very bad and I'm still weak, but hopefully it'll get better and the cancer is gone for now.
    Great news, you have made my day

  3. #43
    Senior Member lynnifer's Avatar
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    That is amazing! I thought all small cell lung cancers were it ... great news! Stay positive!
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  4. #44
    Senior Member trekker6's Avatar
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    Thanks everyone, with sclc it's never over, but they have new immunotherapies coming now and if I can get on a cannabis oil protocol, it may suppress the sclc from coming back.

    One thing I didn't mention was after the first chemo series when I got campylobacter, I got a call a week later from the health department that I also had salmonella, I guess the only good thing I could say about that is that I wasn't constipated!
    "Would you rather reduce deficits and interest rates by raising revenue from those who are not now paying their fair share, or would you rather accept larger budget deficits, higher interest rates, and higher unemployment? And I think I know your answer." Ronald Reagan"

  5. #45
    So glad to hear that you are doing better. The way you tolerated all of this is amazing. It will take time to get your strength back, but over time you should start to feel better.
    Please let us know if there is anything we can do for you.
    CKF

  6. #46
    Senior Member Revis's Avatar
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    "The cancer is gone" Such great news, Linsey. Really hope it stays out of the brain, and that there is no burning when you receive the treatment. you are a survivor.
    CCS/Walking Quad

  7. #47
    Senior Member trekker6's Avatar
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    Quote Originally Posted by Revis View Post
    "The cancer is gone" Such great news, Linsey. Really hope it stays out of the brain, and that there is no burning when you receive the treatment. you are a survivor.
    I'm a little nervous about the pci, I have to take steroids to stop my brain from swelling, the doctor said they'll shoot behind my eyes, so it doesn't hurt my vision, kinda makes you wonder how much damage it does to brain cells.
    "Would you rather reduce deficits and interest rates by raising revenue from those who are not now paying their fair share, or would you rather accept larger budget deficits, higher interest rates, and higher unemployment? And I think I know your answer." Ronald Reagan"

  8. #48
    Moderator jody's Avatar
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    I didn't see this until now. what an adventure you've been having. Its good to know you are doing ok, and that you have had a good outcome from treatment.

    I thought the suggestion about your wife adopting your daughter was good.
    Last edited by jody; 10-06-2015 at 06:59 PM.

  9. #49
    Senior Member trekker6's Avatar
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    Quote Originally Posted by jody View Post
    I didn't see this until now. what an adventure you've been having. Its good to know you are doing ok, and that you have had a good outcome from treatment.

    I thought the suggestion about your wife adopting your daughter was good.
    My wife would do it, but the mother would never give up parental rights especially since if I die, she'll get social security for my daughter. The courts bend over backwards for mothers that shouldn't be raising children, Nothing in this world beats a wonderful mother, but many women and men have no business raising children.
    "Would you rather reduce deficits and interest rates by raising revenue from those who are not now paying their fair share, or would you rather accept larger budget deficits, higher interest rates, and higher unemployment? And I think I know your answer." Ronald Reagan"

  10. #50
    Senior Member ~Lin's Avatar
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    It's really quite sad and sick when states put the mother's rights above the child's. A friend of mine almost lost his son because of it. When he split up with the mother, she never asked to see her son. She only requested to take him for huge family gatherings where she needed to look like a mother in front of her family. Then she completely stopped. And then for some reason, she decided she wanted full custody. Initially nothing was done legally, they just split up (not married) and she didn't care for her son. So my friend searches around for the best lawyer, and gets told over and over that there's nothing he can do and if it goes to court she will get custody in this state. I had lived with them and seen her be abusive so I had planned on speaking in court on his behalf. Luckily it never happened, she dropped everything. The kid doesn't remember her at all and calls his stepmother mom.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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