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Thread: It sure is frusterating with all the good things that seem to have been announced

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  1. #1

    It sure is frusterating with all the good things that seem to have been announced

    And then nothing seems to become of them. I had hoped maybe Epidural Stimulation might help me, it sounded promising, but seems I never hear anything about it anymore. There have been so many other things too that never panned out. It is such a complex complicated thing for CNS healing sometimes it seems nearly impossible. I have exercised hard all 34 years I've been Paralyzed including FES since the year 2000 yet I've never seen any type of recovery. I've never seen anything with anybody else either personally, just read about things like how much better the four in the epidural trials got but never really seen any evidence it really happened. Very frusterating indeed. It's very easy to destroy Central nerves though SCI but seems impossible to ever get them back again.
    "Life is about how you
    respond to not only the
    challenges you're dealt but
    the challenges you seek...If
    you have no goals, no
    mountains to climb, your
    soul dies".~Liz Fordred

  2. #2
    I agree in the last 2 1/2 years I've been hopeful with all the studies including ALS, but it seems like only mice get fixed and money gets dipersed to more studies that are a few years from anything. Its odd to me someone can get funding for years and years with no results.
    I have run my own company for 15 plus years but 2 months of not producing I would be replaced. Power to them I'll keep hoping.

  3. #3
    Quote Originally Posted by Curt Leatherbee View Post
    And then nothing seems to become of them.
    All in it's own time... I believe there will be some very important news coming to light within the next couple of months.

  4. #4
    What's frustrating to me is constantly hearing about lab rats recovering from nearly any type of treatment.

    Quote Originally Posted by GRAMMY View Post
    All in it's own time... I believe there will be some very important news coming to light within the next couple of months.
    Oh you tease!

  5. #5
    Quote Originally Posted by GRAMMY View Post
    All in it's own time... I believe there will be some very important news coming to light within the next couple of months.
    What would that be?

  6. #6
    Quote Originally Posted by Chaz19 View Post
    What would that be?
    I'll post the articles and information when it's made public at the SCI Research blog and make a separate thread at this forum if I can remember to stop by here. It wouldn't be appropriate nor fair to the general public for it to be disclosed in this type of thread on the internet...this is the last place anyone would look for information of that type.
    Last edited by GRAMMY; 04-11-2015 at 08:42 AM.

  7. #7
    Quote Originally Posted by GRAMMY View Post
    I'll post the articles and information when it's made public at the SCI Research blog and make a separate thread at this forum if I can remember to stop by here. It wouldn't be appropriate nor fair to the general public for it to be disclosed in this type of thread on the internet...this is the last place anyone would look for information of that type.
    Grammy, does it have something to do with the epidural stimulator, or something new?

  8. #8
    Quote Originally Posted by GRAMMY View Post
    All in it's own time... I believe there will be some very important news coming to light within the next couple of months.
    So by mid June we will know what you are talking about. I can wait. Hope is really good stuff.
    In God we trust; all others bring data. - Edwards Deming

  9. #9
    Quote Originally Posted by paolocipolla View Post
    So by mid June we will know what you are talking about. I can wait. Hope is really good stuff.
    Ok gumper, get out your stop watch.

  10. #10
    Quote Originally Posted by GRAMMY View Post
    All in it's own time... I believe there will be some very important news coming to light within the next couple of months.
    Are we nearing a release of this important news Grammy?
    Last edited by JamesMcM; 06-03-2015 at 01:33 PM.

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