Results 1 to 7 of 7

Thread: Spinal Cord Stim and (In)Complete Injury

  1. #1

    Spinal Cord Stim and (In)Complete Injury

    I know there are a lot of conflicting views on this board about SCS and its effectiveness with spinal cord injuries. With the basic premise that the Stim blocks the pain signals going to the brain am I right in thinking then that SCS therapy would work better with incomplete injuries vs complete injuries? With incomplete injuries the stimulation would still have a pathway to the brain whereas with complete lacerations of the cord there is no pathway for the stim to reach the brain.

    just thinking out loud. Any thoughts?

  2. #2
    Is there anyone here that has had good success with a scs ?
    i haven't been around in a while, in the past i do not believe there were any successes.
    Diabetes and stuff may have luck with it, sci people have a different pain.
    BTW very few sci have a complete laceration of the spinal cord. Maybe a couple Gunshot victims,but it very rare. Non sci doctors,media ,sports casters will always say severed spinal cord. the sci docs and nurses and community are always trying to get this corrected. It is a very common misinformation factoid, best word i can think of now!
    Last edited by metronycguy; 02-12-2015 at 09:56 PM. Reason: complete=
    cauda equina

  3. #3
    I want to try one but am going through the usual doctor crap. My pain specialist has said it will not work but I want to try it anyway. I am an incomplete with severe cp. The next thing I am scheduled for is Lydocane infusion. Has any one had this done?

  4. #4
    Junior Member
    Join Date
    Apr 2013
    Location
    Charleston, SC
    Posts
    2
    I'm an incomplete T12, with excruciating, constant nerve pain in both feet/lower legs since injury 2 years ago. I've tried everything on the planet ... every drug, pain pump trials including morphine, IV Ketamine, brain stimulation treatments with world experts. So of course I'm desperate so I did do a stimulator trial although there is NOTHING in the research literature that says it helps with SCI nerve pain. And it's not indicated for that by the manufacturers. My experience? It was HORRIBLE. The rep thought he had all the setting right or whatever, since I could feel buzzing in my feet while I was sitting upright in a chair. Just felt like slight electric shock but I thought maybe once I played with the settings something magic would happen. I got out to my car, sat down with the seat reclined because of back pain, and the electric buzzing/shock was so intense, not just in my feet but in my - excuse me - crotch (!) that I couldn't possibly sit. No way I could drive. There was no position I could get in and no setting that felt in any way 'good', it was just more pain on top of pain.
    I don't even know why the pain dr. agreed to try it, it hasn't worked for anyone with central neuropathic pain from SCI that I've ever heard of.
    Anyway ..... enough to say, maybe if you're as desperate as me, you'll still go ahead and try it. But I'm sorry to share my experience and take away your hope. Just want you to have realistic expectations, so many of us are given false hope by doctors who want to 'experiment' or just don't know what else to do, or maybe there's some monetary gain in giving us treatments that don't work. I don't know, but it's sad. My pain is severe enough that I don't believe I will last through the summer, to give you an idea of where I'm at, at this point, and jus 2 years post injury. I'm losing my mind with pain. But best wishes that you have better luck than I have in your quest for relief ..

  5. #5
    Senior Member
    Join Date
    Nov 2012
    Location
    Southeast, USA
    Posts
    545
    Quote Originally Posted by metronycguy View Post
    Is there anyone here that has had good success with a scs ?
    i haven't been around in a while, in the past i do not believe there were any successes.
    Diabetes and stuff may have luck with it, sci people have a different pain.
    BTW very few sci have a complete laceration of the spinal cord. Maybe a couple Gunshot victims,but it very rare. Non sci doctors,media ,sports casters will always say severed spinal cord. the sci docs and nurses and community are always trying to get this corrected. It is a very common misinformation factoid, best word i can think of now!
    FWIW, I'm a T6 complete with a severed cord. There are some of us out there, however I do agree that most media outlets always assume that they are always severed, which is annoying.

  6. #6
    Senior Member
    Join Date
    Nov 2008
    Location
    Minneapolis, MN
    Posts
    175
    I’m a T-5 complete and I tried a spinal cord stimulator for my neuropathic pain. It was largely unsuccessful.

    I was skeptical because I didn’t think that the stimulator would be able to cover my area of pain. Pretty much everything below my chest hurts almost all of the time. To my surprise the stimulator was able to cover the area. However, I had to run the device at 90 – 100% just to feel the effect. I was told by the rep that 25% is normal and 50% was considered extreme.

    The effect was a sort of tingling. Unfortunately, the stimulator effect merely competed with the pain. It didn’t mask it. So I ended up with both, the tingling and the pain. It was hard to tell what was more annoying.

    I wish I had something more positive to report.

  7. #7
    i agree , there are a few, but too many medical people use the term severed cord, i though chris reeve had a severed cord
    cauda equina

Similar Threads

  1. Replies: 3
    Last Post: 08-25-2009, 07:33 AM
  2. Replies: 0
    Last Post: 06-19-2008, 02:15 PM
  3. Replies: 0
    Last Post: 11-03-2004, 07:21 AM
  4. Replies: 0
    Last Post: 09-21-2001, 05:17 AM
  5. Replies: 0
    Last Post: 09-21-2001, 04:38 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •