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Thread: Pain - giving up the search

  1. #11
    Phantom Pain is real! I have a friend that has it! It's pretty cool, actually.

  2. #12

    Cool Medication is freaking me out now!

    Duragesic and Dalaudid, mixed, is getting me really sick. Checking out for now, but will come back in the morning. God Night Everyone!!!

  3. #13
    Quote Originally Posted by Godbewithus2 View Post
    Phantom Pain is real! I have a friend that has it! It's pretty cool, actually.
    No one said it is not real, and how you can think it is "cool" is beyond me, unless you are some type of sadist.

    Phantom pain though is primarily something that occurs in people with amputation. It is not the same as the neuropathic chronic pain that occurs in SCI (such as most of our members have), nor in the type of chronic pain found in failed back surgery, such as you describe.

    (KLD)

  4. #14
    I have a baclofen pump with baclofen and bibucaine mixed in it. I get a pretty high dosage to keep my spasms from tearing me up but I do notice a huge difference when I have it turned down a little. I recently had them makes it a little more bibucaine with my baclofen which has made a little bit of a difference but with central pain every little bit counts. Living in Arizona is kind of nice because of the dry weather. I noticed during monsoon season when the humidity is high that my pain is much worse. I give up on trying to make a huge difference in my pain also and have learned to basically live with it. Percocet's can take the edge off of it but I've got a lot of other pain issues to. I have a very sore back (I have no idea how that happened) and arthritic hip so the Percocet helps significantly with my backbut not too much of my hip. Sometimes my back pain keeps me up at night. It's very dusty. I remember when I first started feeling it I thought it was kind of cool that I could suddenly feel it and that was around six years ago. Who knew? 14 years post and I still get little surprises here and there. A while ago when I tried Cialis it gave me feeling in my peepee when I was dating a girl. I haven't really tried dating anyone else because I've been on bed rest. I'm finally getting myself off bed rest after a couple of years so I think I'll give it another shot. Okay, I'm getting way off topic. LOL. Anyways, central pain and Phantom pain are two separate things. Hope you figure out a good remedy for some of your central pain
    C-5/6, 7-9-2000
    Scottsdale, AZ

    Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

  5. #15
    Senior Member alan's Avatar
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    Itching can be a side effect of opiate medications, without it being an allergic response. If you develop other symptoms of allergy along with the itching, that's a problem.

    Nausea can also be a side effect.
    Alan

    Proofread carefully to see if you any words out.

  6. #16
    Senior Member alan's Avatar
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    Quote Originally Posted by ketamine kitty View Post
    seems I'm over medicated and they will ratchet down my meds, dizzy, fall down, extremely poor gait, confusion, slurred speech.

    never did much for pain but up comes the spasticity.

    life sucks

    ket
    I'm really sorry your problems keep ratcheting up.

    Life does suck. There's a reason that my wish every new year is to be out of my misery before the next one.

    I hope they quickly get your meds to a level that help some without messing you up.
    Alan

    Proofread carefully to see if you any words out.

  7. #17
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    With the advent of the legalization of Pot is there a possibility of trying that for your pain problems. There are stories that run the gamut of the spectrum of results for control of pain. However, living my life in a stupor is not something I favor. But someone has to ask, and try to see if you can be a part of some sort of clinical study, or the like. Maybe you have already tried/asked about this option.

    I don't know where Maryland stands in the legalization/decriminalization process, if at all. But I for one am very interested in seeing just what value this drug has as a pain killing option.

  8. #18
    tried many varieties strains all greatly intensify my Central Pain issues. Sigh. Have a card for it and access to medical grade and varietals but still a bad thing. Once in a blue moon when feeling better than usual I'll try to get just a touch buzzed for relief but usually sorry I even try.

    If you read the pain boards and look at CPs you'll see many similar comments. good for some things but really detrimental for others.

    ket

  9. #19
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    Thanks for the answer, sorry I haven't a magic pill for you. Just keep your head up keep trying "stuff" and do not dispair

  10. #20
    ket,
    you tried the ketamine pain relef coma right?. didn't work i guess. when one realizes how amazing anesthesia is, with the amnesia it produces, otherwise we all would be having ptsd type brain injuries from the surgery.
    I would like to try the ketamine coma, disconnect those pain paths,
    cauda equina

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