Quote Originally Posted by ~Lin View Post
Reaching out online helps. I have lots of disabled friends online, but not in person. A lot of that though is inability to get out and about and do activities where others go to meet people. In fact this is really lonely for lack of ab friends as well! I don't know what I'd do without the internet.

I think a progressive disease is a different kind of hell in how people don't understand. Even those closest to you can have trouble understanding that what you performed just fine last year you can't today, etc.
I am still trying this, too, guess i need to make the leap to Skype. I like forums but this is really the only one I come to regularly, even though I don't have SCI. In real life the few disabled people I have gotten to spend any time with were SCI people, and they were super cool, so I guess in a way i hope to meet more like them. Even they don't get the degenerative aspects of this sort of disorder, though. It is a special kind of hell for certain.