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Thread: Are We Ready For a Stem Cell Trial in Transverse Myelitis?

  1. #11
    Senior Member Tbone57's Avatar
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    Well, I still get the flyer for donations to the Transverse Myelitis Assn. Nothing mentioned about this fucking stem cell trial or anything else. Way to keep the hope going, this blows

  2. #12
    Senior Member ZEN12many's Avatar
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    It seems to me that TM cases would be some of the last to get research. The first would be complete quads and then complete paras. Recent SCIs.

    With TM, you are usually incomplete. That makes evaluation of the treatment less certain. Did the treatment result in improvement or was that going to happen anyway? And first, recent SCIs will get research. Waiting for the muscles to deteriorate and then giving treatment also makes evaluation unclear. If it was unsuccessful, was it because it provided no spinal cord healing OR was it because the muscles just couldn't come back?

    When I got TM, about 12 years ago, literature suggested spinal cord cures just 10 years away. We're overdue.
    TM 2004 T12 incomplete

  3. #13
    Senior Member lynnifer's Avatar
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    Never had my hopes in stem cells anyway.
    Make America Sane Again. lol

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  4. #14
    Senior Member Vintage's Avatar
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    Quote Originally Posted by lynnifer View Post
    It's just for me personally, we'll not have enough knowledge of stem cells for many many years to come - longer than my life time. I'd be afraid of tumours, growths, etc.

    When there are so many other things in the research pipeline, I'd prefer those - including the electrical stimulation!

    Jennifer Spence ‏@lynnifer72 23h
    @AcordaNews http://www.acorda.com/products/resea...opment/rhigm22 ? When will the results of this study be coming out - was it safe?

    Acorda Therapeutics ‏@AcordaNews 15h
    @lynnifer72 we expect to announce the rHIgM22 trial findings in early 2015
    8:23 AM - 8 Aug 2014 ? Details
    I think that electrical stimulation is a good idea, too.
    Female, T9 incomplete

  5. #15
    Senior Member Tbone57's Avatar
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    https://multiplesclerosisnewstoday.c...ell-therapies/

    So much for all the projections on what's gonna get cured/treated first, and how many years it will be before stem cells are used and all the other useless shit that comes rolling out of your pie holes. Read it and see, this could be it. Nobody knows shit.

  6. #16
    Senior Member lynnifer's Avatar
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    I've heard about myelin repair in the pipelines for a decade from Sue one of the moderators here. She used to sit on a board or something and get research info early.

    I have changed my mind as I've gotten progressively worse. Give me anything.

    I've had to tame my excitement though ... this is one company. First try. Might not work.

    Moving on to MS without a cause for it disturbs me.
    Last edited by lynnifer; 09-22-2017 at 11:34 PM.
    Make America Sane Again. lol

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  7. #17
    Senior Member lynnifer's Avatar
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    Just noticed Dr Kerr is behind Q Therapeutics

    http://www.qthera.com/live/About/Sci...-Advisors.aspx
    Make America Sane Again. lol

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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