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Thread: Are We Ready For a Stem Cell Trial in Transverse Myelitis?

  1. #1
    Senior Member PC720's Avatar
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    Are We Ready For a Stem Cell Trial in Transverse Myelitis?

    most informative video i have seen about my disease i've seen in a long time. 30 min long but worth the watch

    http://youtu.be/tDJBl2_0_Jc

  2. #2
    Senior Member lynnifer's Avatar
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    Personally, I would NEVER do stem cells. I've been paralyzed 29yrs from Transverse Myelitis at age 12 (since 1985).
    Make America Sane Again. lol

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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    Senior Member PC720's Avatar
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    Quote Originally Posted by lynnifer View Post
    Personally, I would NEVER do stem cells. I've been paralyzed 29yrs from Transverse Myelitis at age 12 (since 1985).
    im surprised. i would. i also have ms. my hands have nearly become unusable, and i'm blind in one eye and paralyzed from t6, complete. i have nothing to lose..

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    Senior Member lynnifer's Avatar
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    Make America Sane Again. lol

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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    Senior Member PC720's Avatar
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    unfortunately I do not qualify for the test. but if anybody out there reading this has Tm and still has the ability to stand, please take a look at that study by dr. Levy

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    Super Moderator Sue Pendleton's Avatar
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    Jenn, both stress you need to be walking to join. Why no on the stem cells? Or are you just against embryonic cells?
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  7. #7
    Senior Member lynnifer's Avatar
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    It's just for me personally, we'll not have enough knowledge of stem cells for many many years to come - longer than my life time. I'd be afraid of tumours, growths, etc.

    When there are so many other things in the research pipeline, I'd prefer those - including the electrical stimulation!

    Jennifer Spence ‏@lynnifer72 23h
    @AcordaNews http://www.acorda.com/products/resea...opment/rhigm22 ? When will the results of this study be coming out - was it safe?

    Acorda Therapeutics ‏@AcordaNews 15h
    @lynnifer72 we expect to announce the rHIgM22 trial findings in early 2015
    8:23 AM - 8 Aug 2014 ? Details
    Make America Sane Again. lol

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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    Senior Member PC720's Avatar
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    rHIgM22 sounds promising for people who have relapses like myself. I'm currently having one and this type of medicine sounds like it could help me get back to my everyday activities, but it doesn't sound like it has regenerative properties. aside from my paralyzation in my back I have quite a few areas with permanent damage like my hands. this is why I'm all for stem cell. I do not believe that embryonic or fetal is going to be the choice route for this type of therapy because it will require anti rejection medicines. iPS cell I think is what its going to be used or what I hope it's going to be used. my biggest fear is thatit's decades away. at the rate of which I have relapsed throughout the last 6 years I'm not going to make it.

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    Hi all,
    i have PPMS and my wife of 35 yrs. is knocking on the door to going from RRMS to SPMS. We were diagnosed 9 yrs apart. Pretty crazy to say the least. I'm really holding out for a trial with Olifactory stem cells from me.

  10. #10
    Senior Member PC720's Avatar
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    Quote Originally Posted by Stsmark View Post
    Hi all,
    i have PPMS and my wife of 35 yrs. is knocking on the door to going from RRMS to SPMS. We were diagnosed 9 yrs apart. Pretty crazy to say the least. I'm really holding out for a trial with Olifactory stem cells from me.
    I'm hoping to see positive results with remyelination drugs and more importantly training the immune system a type of immunotherapy

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