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Thread: can't sit

  1. #1

    can't sit

    C6-7, 20 years

    I've got a little heterotopic ossification on my right thigh, and I think there may be some on the pelvic bone, but I'm not really sure. My right leg is an inch shorter than my left. My right hip feels jammed up, but the major problem is that my right ribs are touching the top of my right hip area. I guess it's the pelvic bone. There's a gap in their. My stomach area is pushing out to my left.

    I'm constantly lifting myself up because the right side has nothing between my ribs and that bone, and it's driving me nuts. This has been going on for 18 months.

    I went to a physical therapist that has put me on a Ride cushion. It's very uncomfortable. My tone shoots skyhigh and I'm still sitting on that area. Because my stomach goes clear to my left, I am also dealing with a skin issue on my left ischial area. It's like a perfect storm of hell. I keep trying to get my body straight.

    I didn't know what to do last year went to a chiropractor which was a huge mistake. It made it worse and now I don't know what to do. All day long I'm trying to adjust my seat and get comfortable. The physical therapist told me that having a custom back would help, but it's a piece of garbage. It gave me the sore and just stuck me in a shell while my back was still messed up. It did not lift me up like I thought it would.

    This is my core muscle area. I'm trying to do all that I can to shift that area back and want to get back swimming if I can heal this sore.

    Am I totally screwed with my back in that area?

    A few years ago I was swimming at the rehab until they stopped me because of insurance liability. I was in really good shape. This is more devastating than breaking my neck! I can't even sit in my chair!

  2. #2
    Have you been to an ortho or PM&R doctor?
    I think only a specialist such as this can look at your options.
    CWO

  3. #3
    You're describing an issue I have had most of my life from Polio paralysis, however I have always had to wear a back brace to help me sit up straight. There is additional padding inside the brace to accommodate the hip bone-rib cage area.

    I guess my suggestion would be to get evaluated by an orthotist, a bracemaker, to see if a temporary or permanent solution can be fabricated. There are many types of bracing for this issue. You may want to google "back brace", etc.
    You may want to have a physician check whether a spinal curvature is devoping, and discuss whether bracing would help. An orthotist would require a prescription from your doctor, to evaluate you.

  4. #4
    Senior Member alan's Avatar
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    I've spent 33 years with no back support. The corset I use kept me from falling forward, but didn't stop me from bending forward at the rib cage level, or or help with my sideways scoliosis. The wheelchair chest strap also doesn't stop the bending. I always feel like I'm falling forward. I've seen orthotists and orthopedists, with whom I've had is much luck as I've had with pain doctors. In other words, none.

    I got a ride cushion last year, and it has done the job of protecting my butt.

    I hope you can get your problems corrected.
    Alan

    Proofread carefully to see if you any words out.

  5. #5
    Quote Originally Posted by alan View Post
    I've spent 33 years with no back support. The corset I use kept me from falling forward, but didn't stop me from bending forward at the rib cage level, or or help with my sideways scoliosis. The wheelchair chest strap also doesn't stop the bending. I always feel like I'm falling forward. I've seen orthotists and orthopedists, with whom I've had is much luck as I've had with pain doctors. In other words, none.

    I got a ride cushion last year, and it has done the job of protecting my butt.

    I hope you can get your problems corrected.
    Thanks!
    Just wanted to mention that a bracemaker can use casting material to mold the brace to the person, then once the material hardens, cut it off and fabricate the brace, customized to the patient. That's how mine have always been made. Wasn't sure if that's what you had done or not. Many folks cannot use "off the shelf" bracing.

  6. #6
    I would also encourage you to see a seating specialist. Have your buttocks pressure mapped and then try to figure out together what are the best options for you. For some, a back seating support helps, for others a brace. Still others use a cushion. Usually it is a combination of all of the above.
    Remember, each of us is different and there is no one formula for all - unfortunately.
    CKF

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