First off, I am not SCI and so hope this is the appropriate section to post this. I have a genetic connective tissue disorder, Dysautonomia, and a movement disorder called Primary Myoclonus. I use catheters due to spasms that prevent me from voluntarily relaxing to void and I must use my abdominal muscles to force the urine out or cath.
I'm having kidney stone surgery Monday, and I'm somewhat scared. I haven't had good experiences with general anesthesia in the past, so thats a big part of it. This started June 9th when I woke up with moderate right flank pain. I thought it was related to my chronic pain and muscle issues initallly. As the pain increased I wondered if I had a kidney infection, but the area of my back was also swollen and protruding and I didn't know that could happen from the kidneys so again wondered if it was related to my chronic pain and muscle issues. But I also had nausea, which increased to severe nausea with vomiting and the pain became quite severe so my roommate took me to the ER. They diagnosed a 5mm kidney stone by CT scan. I was discharged with Bactrim, Flomax, but no pain meds because I cannot take oral NSAIDS and already am on narcotics for chronic pain. (I already have a prescription for zofran odt) June 13th I returned to the ER around 7 pm after being unable to urinate since 10 am, and having felt like I needed to urinate since around 1pm but only managed to get a few dribbles with the catheter. The pain was also getting severe, though less so than the first time. I was discharged with more flomax, and a script for Toradol pills. On the 17th I again was unable to pee and the pain became severe, I took one of the toradol pills and waited out until I started peeing again, if I hadn't eventually began peeing I would have gone in. The 18th I was incredibly ill, not much pain but the nausea and vomiting with severe weakness but I blamed much of this on having taken the oral Toradol which I will never do again. This entire time I tried to reach my urologist as I had an appt scheduled August 7th, and was trying to get it moved up. Thursday I FINALLY received a call back and their idea of getting me in immediately was July 2nd. Wednesday I had given in and gotten a recommendation of a Uro from the ER and called them, they also called Thursday and scheduled me to see a PA on Friday morning.
At the appt Friday they took an xray and determined the location of the stone which is currently in the ureter. She said that there is only a 50/50 chance a stone of this size can be passed without surgery (something the ER never told me!) and recommended surgery. She said if I was to return to the ER again they would do emergency surgery. She said with it being friday I wouldn't be able to have surgery until the following week (barring ending up in the ER again), so I left thinking well maybe the stone will manage to pass before the surgery... But I was called rather quickly by the scheduling person who said the PA had requested to get me in ASAP and so I'm scheduled for 3pm Monday, with an arrival time of 1:30. I know that they are to put me under general, go in through the urethra, see if they can remove the stone as is or break it into smaller pieces to remove. Then place a stent in my ureter, which will be removed in 5 days. I never asked how they remove the stent? I was pretty dazed at the time and couldn't think of questions. Do I have to be put under anesthetic again to remove the stent? She said I will have a lot of blood in my urine following the surgery and thats normal. She was concerned about the infection still being present and prescribed more bactrim.
I'm someone who the more info I know, the less anxious I get about something. I like to know exactly what is happening to me.