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Thread: Online Chordoma Support Group

  1. #1

    Online Chordoma Support Group

    http://groups.msn.com/Chordoma

    This is an online support group for people affected by clival, spinal or sacral chordoma, a rare tumour occuring in about one in two million population.

  2. #2

    my son

    Hi my name is peggy and i have a nine year old son with chordoma and im want some advice on what it is and how can it be cured

  3. #3

    Contact with support group

    Quote Originally Posted by peg1974
    Hi my name is peggy and i have a nine year old son with chordoma and im want some advice on what it is and how can it be cured
    Please contact the Chordoma support group here:

    http://groups.msn.com/chordoma

    or here:

    chordomamanagers@gmail.com

    We have been trying to contact you but email is bouncing.

  4. #4

    Arrow The online Chordoma Support Group

    The Chordoma support group has moved to

    www.chordomasupport.org

  5. #5
    Hello ! My name is Betsy and I am a 7 year clival chordoma survivor! I had 3 resections (brain surgeries) and completed Proton Beam Radiation in 2005. I am looking for others who have walked the walk so to speak that I can communicate with.

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