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Thread: Crack in butt burning like hell.

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  1. #1
    Senior Member forestranger52's Avatar
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    Crack in butt burning like hell.

    Sorry, my problem is nowhere close to how bad most of yours is and I DO KNOW that a lot of folks get screwed over about meds.

    My butt burns like hell. Sounds stupid I know but it feels like the absolute worse diaper rash you ever had. The kind where you run from your vehicle upstairs to the bathroom for a large handfull of vasaline.

    It has been bad for years and the only way I can get relief is covering every inch of my crack with bag balm. Cheaper than vasaline and my butt is as soft as a babys. Makes a terrible mess out of everything including ROHO cover. Used Butt Paste at VA Spinal Cord Center.

    Anyone have this problem or know how to fix such a thing? I take 90mg of morphine and it barely does anything. Like sitting on a blow torch.
    C 5/6 Comp.
    No Tri's or hand function.

    Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

    Teddy Roosevelt

  2. #2
    Is it red and irritated or just burns?
    I've had "burning butt" since soon after my accident 17yrs ago.
    Often feels like sitting on a grill, some days are worse than others.
    I take 20 mg of Amitriptyline twice a day.
    Exercise and laying on stomach help.

  3. #3
    I agree. Do you actually have a rash or skin redness, or is this a burning hypersensitive buttocks neuropathic pain (allodynia), and the skin actually looks normal?? These would be treated very differently.

    (KLD)

  4. #4
    Senior Member forestranger52's Avatar
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    My rear looks very good and I am fortunate that my skin has held up well. Had visiting nurse check it today. It started soon after injury and never really knew what causes the unrelenting burning. Sitting on a grill is good comparison. I am sure now that I have been told that it appears to be the burning neuropathic pain. Always thought it was just me. Thank goodness the bag balm numbs it somehow but the mess my poor caregivers deal with is terrible. Not cheap either.

    It would be wonderfull if I could take a medicine to dampen the burning somewhat. It does help to lay on my side. Sometimes I almost pass out when turned because the pain relief allows me to sleep after a long difficult night of pain.
    Last edited by forestranger52; 03-29-2013 at 07:34 PM.
    C 5/6 Comp.
    No Tri's or hand function.

    Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

    Teddy Roosevelt

  5. #5
    A lidocaine patch might be effective in treating this pain. Have you tried that or discussed it with your provider??

    (KLD)

  6. #6
    Senior Member forestranger52's Avatar
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    Quote Originally Posted by SCI-Nurse View Post
    A lidocaine patch might be effective in treating this pain. Have you tried that or discussed it with your provider??

    (KLD)
    Today my nurse called and the pharmacy refused to formulate a lidocaine patch for me because I had not tried capsaicin cream to relieve the burning neuropathic pain that I have in my butt.

    I tried capsaicin cream on my painfull knees in 1999 before I had 3 surgeries, 1 on right, 2 on left to remove and reshape the severely damaged cartilage. It really hurt and did in fact burn my skin before I was able to remove the cream as quickly as possble.

    I am extremely reluctant to put something that burned my skin so bad before on the tender skin between my buttocks. I have nerve pain in my right hand and if I need to I will try it there. Has anyone tried this cream on their pain before? If it worked may be another option to try as it's cheap and easily available but be very carefull and try a very small amount first.

    Still, news to me.
    Last edited by forestranger52; 04-04-2013 at 03:26 PM.
    C 5/6 Comp.
    No Tri's or hand function.

    Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

    Teddy Roosevelt

  7. #7
    My Dad has burning butt too. Neurontin helps him, but he had to increase it to a high enough dose. Now he is on 800mg 3 times a day (he used to be on 800mg 4 times a day). Sometimes he just has to get off the butt... Ice packs help a little, but be careful not to "burn" yourself with the ice.

    Who prescribes the Neurontin? What dose of Neurontin are you on? Probably it is too low and you need to increase it.

    Caspascin cream might help..... you could try it again carefully. Ask for very specific instruction on how to apply it... don't use too much... wash your hands immediately after using it. It is true that in can cause a burning sensation that is supposed to decrease the more you use it. If you can't tolerate it, then you can't tolerate it and ask for something else.

    So if I were you, I would ask about increasing the Neurontin and meanwhile you can try the caspacin carefully to see if it helps more.

  8. #8
    C-cream or patches - Yikes! Last thing you probably need is something that gives a heat feeling. That's one thing the capsaicin does. While a sore muscle or an arthritic hand may benefit, it certainly did not help my neuropathic pain, not at all.

    Few places could something called 'Burning Butt' be seriously deliberated

  9. #9
    Senior Member ChesBay's Avatar
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    Quote Originally Posted by forestranger52 View Post
    It does help to lay on my side. Sometimes I almost pass out when turned because the pain relief allows me to sleep after a long difficult night of pain.
    Do you sleep on your back or your side?

    I've had "the burns" for years... I routinely sleep on my side. If I sleep on my back I am in severe pain upon waking and throughout the day.

    As Arndog mentions I use diazepam as needed to take a bit of the edge off.

  10. #10

    burning butt

    I have also had the "sitting on the burner" feeling since i was work up from surgery, on really bad days it goes down the backs of my legs and my feet. has been almost 9 years. For a while zanax and norco helped. Not so much anymore. I am now going to Stanford University, have the Chief head of Medicine. He put me on 150mg Oxcarbazepine and by the 29th i will be at 4 pills morning, 4 pills night. Has ordered me naltraxone. I know he's weaning me off the Norco. I was on Dilaudid for a year, stopped the norco, dilaudid did nothing, so back to norco, now will be coming back off. He also wants me to get Delsym, (cough syrup). Will get that today. Supposed to help??
    I have Cauda Equina Syndrome because my injury is L-2, and my conus was crushed. Have harrington rods. I have tried so many drugs over the years i have forgotten what they are. So....if any of this works with the Stanford Doctor, i'll pass it along. I have been there twice. Last pain Dr instantly wanted to put in a spinal cord stimultor. I read Care cure and it didnt seem like the answer. He was not happy when i refused it. This new Dr said i'm not a candidate for it. Thank God i didn't get the 40,000 dollar surgery! Ice packs do help some, sometimes. Depends on how bad it is. I empathize with you!

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