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Thread: Spinal Cord Stimulatior

  1. #11
    My impression is that the spinal cord stimulator works for some, doesn't for others, and the only way to know is to go in for an evaluation. If it does work, it is unlikely to eliminate all pain. But having less meds in your system is always a good idea - a stimulator will have fewer side effects than meds.
    - Richard

  2. #12
    Quote Originally Posted by rfbdorf View Post
    My impression is that the spinal cord stimulator works for some, doesn't for others, and the only way to know is to go in for an evaluation. If it does work, it is unlikely to eliminate all pain. But having less meds in your system is always a good idea - a stimulator will have fewer side effects than meds.
    - Richard

    Kinda what is sounded like to me also Richard, I asked Dr. Young also and he replied to me. That's what's nice about this place!!! I'm completely off all med's for pain except for gabepentin, I do hurt quite a bit but after 10 yr's I've just learned to live with it and at least I got a clear head. Was to my understanding that the stimulator kind would have made my feet feel like they humm but they already have the tingly feeling and I personally just could not justify going through it with what I came up with but.....NO-ONE can make decisions about what's best for other's!!!! Just thought I'd share what I had found out, just wanted to kind of get some info to other's.

    Let us know what you end up deciding and if you do have it done how it works for you.

  3. #13
    I've never heard of a spinal cord stimulator so no advice from me either but
    I do hope something helps you with your pain.

    Best of luck!

  4. #14
    Senior Member Cowboys_Place's Avatar
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    Ok I think all the pain I have in my hip and back is from a pinched nerve in my lower back. If thats the case how is it that I feel that pain when I'm a c 4/5 complete?

    the reason I think it's a pinched nerve is my back is bowed pretty bad it pops alot I pray something can help
    Courage is being scared to death but saddling up anyway. .(John Wayne)

  5. #15
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    Cowboys, I have had a SCS implant since Oct. of 2011, St Jude type. I had it implanted for control of continuing and worsening nerve pain from an above-knee amputation in 1967.
    The procedure was not ha big of a deal; about 3 days of mild post-op pain but able to do most things I usually do. I am retired so I don't have to worry about going to work.
    The SCS has helped *some what* for my pain. It seems that I have fewer episodes of severe pain. I used to get nerve pain that was so severe that it would literally make me double over and scream for the duration of the cycle. The pain would come in a sequence of about every three-five minutes and last for about 15-20 seconds. Sometimes this would last for 2-3 hrs, and once for 14 hrs without relief. I have always had scripts for oxycodone which does help, but it takes about 45 min to kick in. I have also been taking tramadol at bed time (150mg) to help with the mild tingling nerve pain that keeps you from sleeping. My severe episodes only happened about once a month or more if I had been doing strenuous physical work...like up and down a ladder, working in the yard etc.
    About the SCS; I think it is worth a try for sure. I can say that is helpful on a daily basis and seems to lessen the mild pain, but when I have the severe pain there is nothing short of heavy pain meds to calm the pain.
    I live near Indianapolis and had been lucky to find an excellent pain management doctor. I worked for over 30 yrs in the operating room as an RN so I know from experience that he is good at his speciality.
    If you have any specific questions maybe I can help. Good luck!

  6. #16
    Senior Member Cowboys_Place's Avatar
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    kmc123,

    Thanks for providing me that information I go to the pain Dr. Today to discuss the stimulator. Right now however I'm not completely convinced it will help with my pain so I'm going to ask for a referral to see a spinal cord and neurological specialist. And pray he'll agree to the referral and the specialist will see me.

    Being a quad I'm not sure I could operate some of the functions on the scs plus I'm so tired of surgeries. We'll see what happens again thanks for the information, take care
    Courage is being scared to death but saddling up anyway. .(John Wayne)

  7. #17
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    Cowboy, I guess I missed the fact that you were a quad. I'm not going to lie about it, but it would be very difficult for you to do all what is required to maintain the SCS...unless you have a full-time caregiver. If you were to get a SCS with rechargeable batteries, which I would recommend) you would have to re-charge the internal battery pack about once every 5-6 days, plus recharge the recharger device every time you recharge the internal batteries. It's a little complicated and takes planning. I would *hope* that the pain docs or the St. Jude reps would tell you all of that during your consultation. Good luck with your doctor visit and keep me posted.

  8. #18
    Senior Member Cowboys_Place's Avatar
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    OK had my appointment with the pain Dr. Yesterday about the SCS and decided for right now it's not for me. I'm going to go see a spinal cord specialist first even though pain Dr. Thinks he will recommend a SCS. And if that's the case I guess I will cross that bridge when I get to it.

    Being a quad I just can't picture myself being able to use the device properly. So wish me luck that the spinal cord Dr. Finds something no one else has and takes some of the pain away otherwise it may just end up being something I have to live with like the rest of my SCI brothers and sisters.

    Thank you all for the encouraging words and personal experiences.
    Courage is being scared to death but saddling up anyway. .(John Wayne)

  9. #19
    i can't say I'm unhappy you declined. I am so sorry i have one and no MRIs with deteriorating condition is frustrating, found a doc in NYC to take it out but now it is not a minor procedure. They do work for some folks but i honestly don't know anyone who has serious issues and serious pain who is happy with it. I kept out of this as there is a lot of perjorative info posted on many things here and face it, we're fucked, so most of us will try anything and rightfully so.

    I'm still searching and in March will try prialt, the scariest shit out there right now, but who gives a fuck, i just cannot deal with this anymore.

    Good Luck

    ket
    Kindly,

    The Ketamine Kitty

    All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

    Next time I die make sure I'm gone,
    don't leave 'em nothing to work on JT

    And I ain't nothin but a dream JM

  10. #20
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    bollefen, your right we're f*cke! I've read so many posts from so many people suffering on here that at times I wonder is it all really worth it. For the most part I love life and even with SCI have a pretty good one thanks to my family and friends. How ever on those really bad days which there seems to be more and more of lately I'm ready or so I think to just say f*c! it I'M DONE

    I'm still praying and hoping something will help us but those prayers and that hope is getting slimmer and slimmer.
    Courage is being scared to death but saddling up anyway. .(John Wayne)

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