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Thread: "Massive" UTI and possible osteomyelitis

  1. #1

    "Massive" UTI and possible osteomyelitis

    I have been having severe spasticity and severe nerve pain through out my body for about 6 weeks with the symptoms only getting worse as time passes. I tested positive for a UTI with pseudomonas bacteria although a low colony count (around 10, 000). I was given levaquin for 10 days but symptoms never improved. I had my urine cultured again last week and it was negative. After another week of spasms and intolerable pain I went to the ER. blood work shows low white blood cell count and my urine showed high WBC count. They said normal range is 0-5 and mine was 416! They admitted me and had the urine and blood cultured. It's been 2 days and results aren't back yet. Is this normal?

    They've been giving me Vancomycin and Zosyn by IV for 2 days but my symptoms aren't improving. I'm concerned..

    I had cellulitis in my foot about 6 weeks ago that was treated but the swelling never went away. They did an xray of my foot and the Dr. Said it showed possible osteomyelitis and ordered an MRI. I'm waiting for that to happen.

    I'm worried and in such severe pain. 3mg Dilaudid IV just barely takes the edge off and it wears off quickly.

    Is there anything I can say or ask for to help facilitate diagnosis?

    Is there any medication that would be better for my pain? They offered 10mg oxycodone but that is the same as a Percocet which doesn't help. They are cautious with pain meds.

  2. #2
    Senior Member zillazangel's Avatar
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    So sorry to hear this :*( You must be scared and frustrated. It sounds like you may have a UTI and osteomyelitis and that is causing all the issues. The pain is probably potentiated by the spasms, so I would push for meds that will quell the spasms - I would recommend asking for Valium or Klonopin, in combination with a narcotic like oxycodone. Taken together they are more than the sum of their parts.

    Good luck and we'll keep you in our thoughts.
    Wife of Chad (C4/5 since 1988), mom of a great teenager

  3. #3
    Quote Originally Posted by zillazangel View Post
    So sorry to hear this :*( You must be scared and frustrated. It sounds like you may have a UTI and osteomyelitis and that is causing all the issues. The pain is probably potentiated by the spasms, so I would push for meds that will quell the spasms - I would recommend asking for Valium or Klonopin, in combination with a narcotic like oxycodone. Taken together they are more than the sum of their parts.

    Good luck and we'll keep you in our thoughts.
    I am taking baclofen zanaflex and klonopin at night. The spasms aren't causing pain necesarily just an on fire burning pain. If no UTI why the super high WBC count in the urine? There's also gunk at the end of the catheter when I remove it.

  4. #4
    Thanks Ashleigh.

    My spasms increased again tonight and my temp spiked to 99.5

  5. #5
    Yes the cultures and the sensitivity which is what tell us what antibiotics to use takes 48-72 and sometimes longer if special tests are needed.CWO

  6. #6
    So they say that the blood cultures are negative and the urine culture is negative also.

    If urine culture is negative what would cause the super high WBC count in the urine? I also keep spiking fevers and the spasms seem to be the worst they've been. I can't take a deep breath or even barely touch myself without setting off violent spasms.

    What else can I ask for to help find the source of these issues? I have to be my advocate and direct these clueless doctors.

  7. #7
    Quote Originally Posted by smashms View Post
    You need to get to a hospital that specializes in SCI also an infectious disease person might be worth bringing in as well. There has got to be infection somewhere maybe your ankle that has possible osteo?
    This hospital is attached to Shepherd Center and they work together a lot. Not sure why I'm getting idiot doctors.

    I'm going for the MRI now. I will request consult with ID if this doesn't turn up anything.

    Thanks Ashleigh.

  8. #8
    Some conditions that may cause an elevated white blood cell count in the urine could be a kidney infection, prostatitis, stones is the bladder/kidneys.

    You may need to have a renal ultrasound, cystoscopy, CT scan, and/or prostate exam to rule out these conditions.

    All the best,
    GJ

  9. #9
    The presence of white blood cells in the urine, in a negative standard urine culture, is sometimes called sterile pyuria (literally, the presence of pus - evidenced by white blood cells - in the urine, without bacteria being present). Some meds can cause this, as well as several other conditions which others have mentioned. One thing seems certain, this needs to be tracked to its source - you could have an infection due to microbes that the standard culture does not test for. In order to get a fuller picture which aligns your symptoms with test results, you might indeed need to see a kidney and/or infectious disease specialist.
    Last edited by Bonnette; 01-15-2013 at 06:35 PM. Reason: clarity

  10. #10
    You typically get those condition by a uti and the organism would typically still be picked up in the urine. And they are isolated and would cause a UTI eventually. A low blood wbc can indicte a viral origin. Did you have any RBCs in your urine or any other abnormality? No increase in bands indicating an early infection but no increased WBC yet?
    What about your abdomen? You can have appendicitis and some abdominal infections and have WBCs in urine.
    CWO

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