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Thread: Pain getting the better of me

  1. #11
    Senior Member Cowboys_Place's Avatar
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    Thanks Evonne, the support I get is fantastic but I think even if if mom is beyond frustrated! So you were on these pain patches for nerve pain did they help you with that pain at all and what are you using now for pain?

    I don't think I should use it anymore aside from dry mouth my anxiety seems to have skyrocketed. Along with just wishing I was dead and I have let this pain consume every waking minute.

    Now I believe I have another uti the third in the last 2 1/2 months bring on 2013
    Courage is being scared to death but saddling up anyway. .(John Wayne)

  2. #12
    I hope you are feeling better. The patches just did'nt do anything for me. I thought I would lose my mind on those things. I finally started going to a pain clinic and was put on ms morphine and percacet. Does'nt get rid of the pain, but most of the time I can tolerate it. I was hoping for more relief.....enough to live life again to the fullest, but that did'nt happen.

    Don't give up......

  3. #13
    Senior Member Evonne's Avatar
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    Cowboy,

    The patches did work somewhat for my nerve pain, but the side effects from them were so bad ( dry mouth, dizziness, spacy, memory loss etc.) I got off of them. I had to take methadone to ween off the patch. I only took methadone for a month or so. I now take Topomax and Cymbalta for my nerve pain, does not do great but takes the edge off.

    Evonne
    I have a spinal cord injury...a spinal cord injury DOES NOT have me!

    walking quad-Central Cord Syndrome

  4. #14
    Senior Member Cowboys_Place's Avatar
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    I had to stop using the patches after two weeks it was absolute misery, of course the Dr. at the pain clinic I go to is on vacation and we'll be back next Wednesday. However that didn't stop my morning attendant Melinda from calling his nurse and letting them know in no uncertain terms was this acceptable. So get this I don't know where he's vacationing but his nurse cannot call or fax him they can only contact him through e-mail. Melinda let them know we wanted something else done and started by noon so at 1130 I got a phone call saying of the Dr. wanted to start me on Lyrica. Yes I have read the horror stories on here about it but I'm running out of options I'm also trying to get into the spine clinic at UC Davis Medical center.

    Evonne, he prescribed methadone to me because he says it's too easy to overdose on and I'm fine with that reasoning. I will have to look up Topomax I have oxycodone but don't really isn't doesn't do anything for the nerve pain.

    PS great profile picture, take care
    Courage is being scared to death but saddling up anyway. .(John Wayne)

  5. #15
    Senior Member StevieP's Avatar
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    Quote Originally Posted by Cowboys_Place View Post
    I had to stop using the patches after two weeks it was absolute misery, of course the Dr. at the pain clinic I go to is on vacation and we'll be back next Wednesday. However that didn't stop my morning attendant Melinda from calling his nurse and letting them know in no uncertain terms was this acceptable. So get this I don't know where he's vacationing but his nurse cannot call or fax him they can only contact him through e-mail. Melinda let them know we wanted something else done and started by noon so at 1130 I got a phone call saying of the Dr. wanted to start me on Lyrica. Yes I have read the horror stories on here about it but I'm running out of options I'm also trying to get into the spine clinic at UC Davis Medical center.

    Evonne, he prescribed methadone to me because he says it's too easy to overdose on and I'm fine with that reasoning. I will have to look up Topomax I have oxycodone but don't really isn't doesn't do anything for the nerve pain.

    PS great profile picture, take care
    BE VERRY CAREFUL USING THE TOPOMAX IT WAS ONE OF THE FIRST TIMES I EVER CONSIDERED SUSIDE since I had been in the wheelchair, I think it was about 7 years to be exact.

    Methadone I have been taking for about 9 years and it is the only thing that really works. I get no dopy feeling from it and without it I would be miserable with the amount that i am taking it just takes the edge off of it so most of the time I can leave with the pain.

    to manage my pain.
    Methadone (5mg pills) 2 at 10:00am - 1 at 3:00pm - 1 at 10:00pm
    Gabapenton (600mg pills) 1 " 1 " 1 "
    Cymbalta (60mg) once a day in the am
    With the methadone I started with 5mg pills 1 in the morning and one at night and then went to 1 three times a day and then to the above dose. Methadone has been around for a long time and honestly and have so side affects from taking it and I feel that I am on a low dose that works really good.

    With the Gabapenton I left Craig hospital taking the max 1200mg three times a day and then one day I cut it back to 600mg (in Half) three times a day and my pain got better (i had less pain).

    Again I feel that Topomax is dangerous I have a friend who was a missionary in africa and they prescribed it for her and she had a real problems with it also. She also told me that they use it a lot in 3rd world countries.

    Stevie P

  6. #16
    Senior Member StevieP's Avatar
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    Quote Originally Posted by Evonne View Post
    Cowboy,

    The patches did work somewhat for my nerve pain, but the side effects from them were so bad ( dry mouth, dizziness, spacy, memory loss etc.) I got off of them. I had to take methadone to ween off the patch. I only took methadone for a month or so. I now take Topomax and Cymbalta for my nerve pain, does not do great but takes the edge off.

    Evonne
    Evonne,
    I saw after i posted in response to Cowboy about the Topomax that you actually take it. When I took it, it was not good, it took me to the edge of not wanting to go on and I am a person who does not go to that place often and untill the Topomax I had not really gone there before. But I know that not every drug effects every person the same. But I can say that I was a wreck on the Topomax. I do take the methadone for my pain and i feel that it really works great along with Cymbalta and Gabapentin.

    Stevie P

  7. #17
    Senior Member StevieP's Avatar
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    Quote Originally Posted by Cowboys_Place View Post


    Now I believe I have another uti the third in the last 2 1/2 months bring on 2013
    Cowboy,
    Since I have been using D-Mannose from the company NOW I do not get anymore UTI's and it has been about 5 years. I thought I had one once and I was going to see the Urology Clinic at Craig and they said "you have a uti" and I said "no i can't i take D-Mannose" and when they looked they found two stones in my bladder, one was as big as my thumbnail. Once they were out I was fine. Try the D-Mannose it really works great. I have a coupon code for a place on line that will give you $10 off your first order and free shipping if you spend $40 or more.

    Stevie P

  8. #18
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    Quote Originally Posted by Cowboys_Place View Post
    I had to stop using the patches after two weeks it was absolute misery, of course the Dr. at the pain clinic I go to is on vacation and we'll be back next Wednesday. However that didn't stop my morning attendant Melinda from calling his nurse and letting them know in no uncertain terms was this acceptable. So get this I don't know where he's vacationing but his nurse cannot call or fax him they can only contact him through e-mail. Melinda let them know we wanted something else done and started by noon so at 1130 I got a phone call saying of the Dr. wanted to start me on Lyrica. Yes I have read the horror stories on here about it but I'm running out of options I'm also trying to get into the spine clinic at UC Davis Medical center.

    Evonne, he prescribed methadone to me because he says it's too easy to overdose on and I'm fine with that reasoning. I will have to look up Topomax I have oxycodone but don't really isn't doesn't do anything for the nerve pain.

    PS great profile picture, take care
    Try the Lyrica. It helps me a lot. I take the max dose with no serious side effects. I also take extended and quick release Tramadol and my doc just added cymbalta.
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  9. #19
    Senior Member Cowboys_Place's Avatar
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    smashms, I hope you find something to give you some relief soon I tried gabapentin for a while 2700 mg along with oxycodone but didn't get any relief. Strangely enough The gabapentin did help with the spasticity in my feet at night.

    Previously I think I posted my pain Dr. Gave me methadone when actually he said he didn't want to because it's so easy to overdose on anyone hear anything about that?

    I've been taking this lyrica since Wednesday 75mg a day and it's helped some with the burning in my stomach. Now if I could find something to relieve the pain in my back and left hip I might be in business. .

    I'm going to ask for a script to see a seating specialist and look into getting a different cushion. One out so much dump I'm currently sitting on a ride designs which I love for the stability but it kills my hips and back.
    At least that's where I'm pointing some of the blame.
    Anyone have any suggestions? I used a Jay2 for the first 24 years of my SCI jet setting life. .

    SteveP I was taking the D-mannose as well and still getting Uti's so we're trying an antibiotic for a while thanks everyone for all the info. .
    Courage is being scared to death but saddling up anyway. .(John Wayne)

  10. #20
    Senior Member StevieP's Avatar
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    Quote Originally Posted by Cowboys_Place View Post
    smashms, I hope you find something to give you some relief soon I tried gabapentin for a while 2700 mg along with oxycodone but didn't get any relief. Strangely enough The gabapentin did help with the spasticity in my feet at night.

    Previously I think I posted my pain Dr. Gave me methadone when actually he said he didn't want to because it's so easy to overdose on anyone hear anything about that?

    I've been taking this lyrica since Wednesday 75mg a day and it's helped some with the burning in my stomach. Now if I could find something to relieve the pain in my back and left hip I might be in business. .

    I'm going to ask for a script to see a seating specialist and look into getting a different cushion. One out so much dump I'm currently sitting on a ride designs which I love for the stability but it kills my hips and back.
    At least that's where I'm pointing some of the blame.
    Anyone have any suggestions? I used a Jay2 for the first 24 years of my SCI jet setting life. .

    SteveP I was taking the D-mannose as well and still getting Uti's so we're trying an antibiotic for a while thanks everyone for all the info. .
    Cowboy I have been taking Methadone for 7 or 8 years and have no problem with it at all. My doctor thinks it is very safe. I started off using 5mg pills and I get relief with it. If it forget to take it for some reason I dont have withdraws or any thing, I just end up in a ton of pain and then I say to my self "did I take my pills" and I look and sure enough I forgot so I take them and in about 30 min I feel better depending on how long it has been and what the weather is doing.

    I have found something that has been helping a little. I have had a friend who does massage and does the taping with tape on the skin (KT Tape). when watching the Olympics you saw a lot of athletes with tape on their body. Well she has been doing it on me and it has relieved some of the pain in my neck and my back. not so much the nerve pain or the phantom pain (referred pain). The product is called KT Tape here is a link to Youtube. I thought at first it was not going to work but it has really helped with some of my pain.

    Has anyone tried the KT Tape?

    Stevie P

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