Page 2 of 4 FirstFirst 1234 LastLast
Results 11 to 20 of 38

Thread: new here seeking advice pain will not go away

  1. #11
    Junior Member wrightmsw's Avatar
    Join Date
    Dec 2012
    Location
    pleasant city, Ohio
    Posts
    17
    Quote Originally Posted by ~Lin View Post
    To be perfectly honest, that can make you sound like a drug seeker/addict.

    You have to be willing to try everything and anything. And something besides heavy medications may work and be the answer! But there are reasons why Drs go through certain treatments and try specific medications first. Your best bet is going to be seeing an experienced pain specialist at a pain clinic. They will have the most tools to treat your pain. Things like tens machine, PT and OT (even if you've tried it before it can be different from ones who specialize in pain management), trigger point or joint facet injections, etc. Even if you end up on narcotics your treatment is going to be much slower than the medicaid approval. Once non narcotic medications are exhausted you would start on a low dose of an opiod. Then it can take months titrating up and switching around medications to find the right ones. Or longer, there are many people here that have spent years trying to get their pain under control.

    Start keeping a pain journal if you don't already, so you can show your pain Dr whats working and whats not, what time of day you're in the most pain, what exacerbates your pain, etc. Call the pain Drs office about whats going on right now, see if they can squeeze you in earlier than your next appt (though that usually doesn't happen, pain Drs are usually so booked up you have to wait that month between appts.)

    Have you tried any alternative type methods? accupressure or accupuncture? Meditating? Do you have a psychotherapist?

    Keep tabs on the medicaid process, call them daily if you have to. Do you have a caseworker? Here in Indiana they recently went to a new system where no one has caseworkers, everyone calls the same 1800 number and gets whoever answers the phone. Keep track of the names of anyone you talk to at medicaid and what they said to you. Look into things like surgery that are going to address the root of the problem, thats going to help you much more in the long run if treatments are available.
    I have a spine doc and a pain management doc, accupressure felt good while it was being done, but later in the day the pain intensified, same with the tens unit they used in PT, 3 rounds of trigger point injections, Monday I had a right cervical medial branch block, it was excruiating and still in pain. have a follow up next friday tried to call them today and no return call meditate everyday

  2. #12
    Junior Member wrightmsw's Avatar
    Join Date
    Dec 2012
    Location
    pleasant city, Ohio
    Posts
    17
    Quote Originally Posted by crypticgimp View Post
    so.. how are you paying for all these meds and injections?
    your pain is a result of your scoliosis. once that is corrected, then your pain will decrease. but you risk damage by leaving it uncorrected.
    meds i am getting through phizer connection to care, thank god the hospital gives a discount for self pay non insured low income people, the baklofen and tramadol isn't expensive

  3. #13
    Junior Member wrightmsw's Avatar
    Join Date
    Dec 2012
    Location
    pleasant city, Ohio
    Posts
    17
    Quote Originally Posted by tdirt View Post
    Get a Good Pain Management Doctor ,not a pill mill.....and ,sorry but.gotta learn to grin n bare it.........drugs will never put you to where you want to be
    got a spine doctor and pain management doc and yep smile through the pain

  4. #14
    Senior Member
    Join Date
    May 2006
    Location
    Somewhere in the Rocky Mountains
    Posts
    8,147
    Quote Originally Posted by wrightmsw View Post
    meds i am getting through phizer connection to care, thank god the hospital gives a discount for self pay non insured low income people, the baklofen and tramadol isn't expensive
    So...again, why not correct the scoliosis to alleviate or at least make the pain better?

    I realize Medicaid is an issue but why else decline? At least plan on getting the curvature fixed.

    Drugs should only be used when everything else has not worked. For most of us, drugs don't even relieve the pain.

    Never heard of "better living through chemistry". Sounds like you just want narcotics.
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  5. #15
    Junior Member wrightmsw's Avatar
    Join Date
    Dec 2012
    Location
    pleasant city, Ohio
    Posts
    17
    Quote Originally Posted by darkeyed_daisy View Post
    So...again, why not correct the scoliosis to alleviate or at least make the pain better?

    I realize Medicaid is an issue but why else decline? At least plan on getting the curvature fixed.

    Drugs should only be used when everything else has not worked. For most of us, drugs don't even relieve the pain.

    Never heard of "better living through chemistry". Sounds like you just want narcotics.
    I think the main reason for declining is I am freaking scared!!! I have been dealing with this pain for at least 15, with it getting progressivly worse, then finally got to the point that I deceided to go to the doc almost 2 years ago. Started treating myself with 800 mg of Ibuprofen twice a day and tried everything over the counter. the spine Doc started me on Neurotin and Flexeril and that didn't work, so we switched to Lyrica and Baklofen and Ultram, that isn't working so started with a pain management doc who doubled the ultram and baklofen doses and we did 3 sessions of trigger point injections, then the procedure last monday but that didn't work either. I am sorry if I give u the impression that I am looking for drugs, that was not my intention and I never want to come off sounding like that. and the better living through chemistry quote came from an old boyfriend of mine who had 2 hips replaced, he used to often say that b4 the hips where replaced. My wish (if wishes came true) would be that EVERYONE would not have to suffer pain of any type ever again

  6. #16
    Senior Member
    Join Date
    May 2006
    Location
    Somewhere in the Rocky Mountains
    Posts
    8,147
    Quote Originally Posted by wrightmsw View Post
    I think the main reason for declining is I am freaking scared!!! I have been dealing with this pain for at least 15, with it getting progressivly worse, then finally got to the point that I deceided to go to the doc almost 2 years ago. Started treating myself with 800 mg of Ibuprofen twice a day and tried everything over the counter. the spine Doc started me on Neurotin and Flexeril and that didn't work, so we switched to Lyrica and Baklofen and Ultram, that isn't working so started with a pain management doc who doubled the ultram and baklofen doses and we did 3 sessions of trigger point injections, then the procedure last monday but that didn't work either. I am sorry if I give u the impression that I am looking for drugs, that was not my intention and I never want to come off sounding like that. and the better living through chemistry quote came from an old boyfriend of mine who had 2 hips replaced, he used to often say that b4 the hips where replaced. My wish (if wishes came true) would be that EVERYONE would not have to suffer pain of any type ever again
    That is all our wishes too.

    BUT if there was a correction surgery that would even 50% fix most of us here...I believe we would try.

    I have had pain 23 years and just recently last year had to go to stronger drugs.

    If there was a surgery that could fix at least half my pain..I would try it.

    You seem young, so the odds of you finding a doctor that will put you on narcotic medicine without trying a surgery to fix the scoliosis is "iffy" at best.

    We are all scared of surgery but at some point the pain gets to great and that pain is more than the fear.

    You have not described your pain so is it neuropathic/nerve pain? or bone type pain in your back? Different drugs help different pain.
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  7. #17
    Junior Member wrightmsw's Avatar
    Join Date
    Dec 2012
    Location
    pleasant city, Ohio
    Posts
    17
    The pain is nerve and muscle, its a hot ripping tearing throbbing sometimes radiating. At times I feel like the muscle is creeping under my skin between the right shoulder blade and spine and in my neck on the right side. Then at times I get the prickly's and little shocks. When it gets really bad I feel like "Let's do surgery right now" sometimes the pain feels like I am having my muscles cut right off my skeleton. Am considering surgery and I think I will bring it up to my spine doctor and my pain managment doctor (which I will b seeing both on Friday) The pain is also located in my right lower rib cage and back of rib cage about mid way down, sometimes makes me feel like I can't get my lung to expand fully, and I can feel the muscles spazzing out between the ribs That's the best I can describe it
    Everyday it's something new, be honest with me and I'll be honest with you

  8. #18
    Senior Member
    Join Date
    Apr 2010
    Location
    Rochester, NY
    Posts
    3,864
    Quote Originally Posted by wrightmsw View Post
    The pain is nerve and muscle, its a hot ripping tearing throbbing sometimes radiating. At times I feel like the muscle is creeping under my skin between the right shoulder blade and spine and in my neck on the right side. Then at times I get the prickly's and little shocks. When it gets really bad I feel like "Let's do surgery right now" sometimes the pain feels like I am having my muscles cut right off my skeleton. Am considering surgery and I think I will bring it up to my spine doctor and my pain managment doctor (which I will b seeing both on Friday) The pain is also located in my right lower rib cage and back of rib cage about mid way down, sometimes makes me feel like I can't get my lung to expand fully, and I can feel the muscles spazzing out between the ribs That's the best I can describe it
    this pain is classic of scoliosis that has gone uncorrected for years. as i said earlier, you do more damage to your nerves/spine the longer you wait to have surgery. it also becomes a bigger surgery the longer you wait and if you wait too long, the spine will be so curved no one will touch you. you need to start having this discussion with your doctors NOW and have them try to expedite, if possible, the transition onto medicaid
    "Smells like death in a bucket of chicken!"
    http://www.elportavoz.com/

  9. #19
    Junior Member wrightmsw's Avatar
    Join Date
    Dec 2012
    Location
    pleasant city, Ohio
    Posts
    17
    thats part of the problem, I have applied for ssi or ssdi was denied the first time and am in the middle of the first reconsideration, I have to be declared disabled b4 I can get medicaid. Right now we live on my husbands disability check so we are considered "low-income" thankfully the hospital I go to (Genisis) offers financial aid so I am getting almost 80% off of office visits. My Lyrica I get through the pharmecutial company (thank god cause its almost 300 a month) the baklofen is affordable and so is the ultam, Do u think maybe I should take 150 mg of Ultram at one time, now I am taking 100 mg at a time. The doc doesn't want to raise the level of the Lyrica due to it making me dizzy and lightheaded and I am only on the minimum dose. We tried Neurotrin and got it up to 600 mg 3 x day but again the side effects of dizzyness and nausea.

    The MRI of my neck revealed cervical stenosis not sure what that is? Will ask on Friday I need answers and hopefully not more temporary procedures that are painful and have not worked, if anything the pain is worse.

    Am keeping a pain diary and noting when the level goes up to be discussed on Friday
    Everyday it's something new, be honest with me and I'll be honest with you

  10. #20
    Junior Member wrightmsw's Avatar
    Join Date
    Dec 2012
    Location
    pleasant city, Ohio
    Posts
    17
    Oh yeah, the doctor said I was probably born with it and the degree of twist is 45
    Everyday it's something new, be honest with me and I'll be honest with you

Similar Threads

  1. Seeking new chair advice for Tilite ZRA
    By petertan in forum Equipment
    Replies: 22
    Last Post: 06-01-2011, 12:32 PM
  2. desperarely seeking help/advice
    By brockit79 in forum New SCI
    Replies: 2
    Last Post: 05-01-2011, 10:09 AM
  3. Seeking Advice
    By michaelm in forum Care
    Replies: 2
    Last Post: 02-08-2009, 09:21 PM
  4. Seeking dressing aid advice
    By singin_intherain in forum Care
    Replies: 2
    Last Post: 03-24-2007, 12:57 PM
  5. Seeking Advice
    By Caryn in forum New SCI
    Replies: 6
    Last Post: 07-06-2004, 01:02 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •