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Thread: new here seeking advice pain will not go away

  1. #1
    Junior Member wrightmsw's Avatar
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    new here seeking advice pain will not go away

    Hi My name is Melinda, but everyone calls me Mel. I have scoliosis in T-3 and T-4 with a 45 degree twist. Recently found out that I also have cervical stenosis. Have tried PT, tens unit, neurotin, flexeril. Am now on Lyrica, baklofen and tramadol, but they do not seem to be helping, had 3 rounds of trigger point injections that failed, Monday I went in for a right cervical medial branch block. OMG I thought I was gonna pass out on the table. 4 injections but 3 holes injections in c-2,c-3.c-4 and c-5. The next day I experience the worst pain ever in my mid spine area and into my right rib cage area, this seems to get worse at night. Also I seem to have pressure on the right side of my body from my head down through my neck into my right shoulder under the shoulder blade and wrapping around the right rib cage, can someone explain or suggest something for me to suggest to my pain management docs? Or even offer a suggestion of what to do. Still in pain so I think that procedure failed also

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    Junior Member wrightmsw's Avatar
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    I will do that tomorrow, was kinda waiting to see if the situation improves but so far it has not I have used ultram 100 mg every 4 hours and its like taking candy does nothing for me. I just don't understand why the pain management docs act like they are scared to prescribe something that will work

  3. #3
    Junior Member wrightmsw's Avatar
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    and I do NOT want to undergo another procedure like the last one and the doc is insisting that the rib cage pain is from posture, I am making a concious effort to sit as upright as possible, but this makes my neck hurt also
    Last edited by wrightmsw; 12-13-2012 at 06:08 PM. Reason: to add more info

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    have you talked to anyone about correcting the curvature. that is the cause of your pain so why hasnt this bee addressed?
    "Smells like death in a bucket of chicken!"
    http://www.elportavoz.com/

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    Senior Member ~Lin's Avatar
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    Quote Originally Posted by wrightmsw View Post
    I will do that tomorrow, was kinda waiting to see if the situation improves but so far it has not I have used ultram 100 mg every 4 hours and its like taking candy does nothing for me.
    Do not exceed 400mg of ultram a day.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

  6. #6
    Junior Member wrightmsw's Avatar
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    Quote Originally Posted by crypticgimp View Post
    have you talked to anyone about correcting the curvature. that is the cause of your pain so why hasnt this bee addressed?
    it was brought up and I declined (I do not have any insurance have applied for medicaid but u know how long that takes. we rely on my husbands disability check each month) would like to control the pain through meds.....better living through chemistry (so I have heard)

  7. #7
    Junior Member wrightmsw's Avatar
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    Quote Originally Posted by ~Lin View Post
    Do not exceed 400mg of ultram a day.
    Thanks for that info I don't need anyother complications

  8. #8
    Senior Member ~Lin's Avatar
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    Quote Originally Posted by wrightmsw View Post
    it was brought up and I declined (I do not have any insurance have applied for medicaid but u know how long that takes. we rely on my husbands disability check each month) would like to control the pain through meds.....better living through chemistry (so I have heard)
    To be perfectly honest, that can make you sound like a drug seeker/addict.

    You have to be willing to try everything and anything. And something besides heavy medications may work and be the answer! But there are reasons why Drs go through certain treatments and try specific medications first. Your best bet is going to be seeing an experienced pain specialist at a pain clinic. They will have the most tools to treat your pain. Things like tens machine, PT and OT (even if you've tried it before it can be different from ones who specialize in pain management), trigger point or joint facet injections, etc. Even if you end up on narcotics your treatment is going to be much slower than the medicaid approval. Once non narcotic medications are exhausted you would start on a low dose of an opiod. Then it can take months titrating up and switching around medications to find the right ones. Or longer, there are many people here that have spent years trying to get their pain under control.

    Start keeping a pain journal if you don't already, so you can show your pain Dr whats working and whats not, what time of day you're in the most pain, what exacerbates your pain, etc. Call the pain Drs office about whats going on right now, see if they can squeeze you in earlier than your next appt (though that usually doesn't happen, pain Drs are usually so booked up you have to wait that month between appts.)

    Have you tried any alternative type methods? accupressure or accupuncture? Meditating? Do you have a psychotherapist?

    Keep tabs on the medicaid process, call them daily if you have to. Do you have a caseworker? Here in Indiana they recently went to a new system where no one has caseworkers, everyone calls the same 1800 number and gets whoever answers the phone. Keep track of the names of anyone you talk to at medicaid and what they said to you. Look into things like surgery that are going to address the root of the problem, thats going to help you much more in the long run if treatments are available.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

  9. #9
    Get a Good Pain Management Doctor ,not a pill mill.....and ,sorry but.gotta learn to grin n bare it.........drugs will never put you to where you want to be

  10. #10
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    Quote Originally Posted by wrightmsw View Post
    it was brought up and I declined (I do not have any insurance have applied for medicaid but u know how long that takes. we rely on my husbands disability check each month) would like to control the pain through meds.....better living through chemistry (so I have heard)
    so.. how are you paying for all these meds and injections?
    your pain is a result of your scoliosis. once that is corrected, then your pain will decrease. but you risk damage by leaving it uncorrected.
    "Smells like death in a bucket of chicken!"
    http://www.elportavoz.com/

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