Page 1 of 37 1234567891011 ... LastLast
Results 1 to 10 of 366

Thread: Agenda for Washington April 12

  1. #1

    Agenda for Washington April 12

    We just thought it was complicated last week. Now things get hairy.

    Talking points:

    1. Who is invited? I want to be loud and clear here. AB's, wheelers, the neighbor who is tired of mowing your lawn for you, your kids, your parents. Chinese and Canadians too. I'm not the boss but I feel strongly on this. It is too hard for a lot of the wheelers to participate, unfortunately. I'm grateful for every AB that cares to represent one of us.

    2. WHO thinks they can make it? We need this info to know which legislators to schedule appointments with.

    3. We need to distill our mission. The GMHC says this: "Focus on the key issues. Don't arrive with a grocery list. When you have discussed the issues you want to discuss, give someone else the chance to speak." So when we split up and meet with our legislators, we all bear the same message.

    4. Do we plan to meet with people already on our side or take on those opposed? (Aside from our regional reps.) Assuming for the moment that our goal is simply passage of the CRPA, the CRPF website has a list of legislators in favor and those not in favor or opposed. After we meet with our local people, do we reconvene and all meet up with a few key guys?

    5. My only problem with t-shirts is that it is recommended to dress up somewhat when meeting with legislators. I find it true in the world in general, when I look better people treat me better.

    6. Do we need a committee? We all have email, im capability, we should be able to run this as if we all lived next door to one another.

    7. It would be good if one person for each state represented would "take charge" for that state...making and confirming appointments, writing and sending thank-you notes. See below...

    "Before the meeting: Schedule and confirm all legislative appointments ahead of time: send a letter requesting an appointment, include the names of who will attend, and the issues you want to discuss. Then follow up with a phone call to the office scheduler."

    "After: Immediately after the meeting, make notes on what was discussed and what your legislator agreed to do.Follow up the meeting with a thank-you letter that summarizes your understanding of what your legislator has agreed to do. Remind him or her that you are available as a resource. Always send separate letters to any staff member(s) you met, and make it a point to keep in contact with them."

    8. Route for March? (Thanks, Suzanne.) One that I found by googling is "...protesters gathered on Constitution Avenue near the Washington Monument. Protesters marched down Constitution Avenue, circled the White House, walked through downtown Washington and returned to where they began."

    9. Time? March in the morning, lobby in the afternoon?

    10. Where to all meet up? Any D.C. locals, please pitch in here.

    Note to everybody: Please note that Suzanne Poon and her husband have most kindly offered to pick up the hotel bill for 10 sci's. If money is an issue (and when is it not?) you'll never get a better opportunity to make a difference. Props to Suzanne, you go, girl.

    More?

    "You need to march. You need to demand action. You need to stop feeling unempowered and do something...Freedom is your right. Until you claim your self-confidence and know your worth, no one will give it to you. It starts with you."-LetsGo

    [This message was edited by Betheny on 01-22-05 at 04:41 PM.]

    [This message was edited by Betheny on 01-22-05 at 04:43 PM.]

    [This message was edited by Betheny on 01-25-05 at 03:55 PM.]

  2. #2
    Banned Faye's Avatar
    Join Date
    May 2003
    Location
    Jacksonville, FL
    Posts
    6,839
    Originally posted by Betheny:

    4. Do we plan to meet with people already on our side or take on those opposed? (Aside from our regional reps.) Assuming for the moment that our goal is simply passage of the CRPA, the CRPF website has a list of legislators in favor and those not in favor or opposed. After we meet with our local people, do we reconvene and all meet up with a few key guys?
    WOW your talking points are very comprehensive Betheny! Thanks

    I think it is important to speak with people on both sides. When a face is put to an issue it makes people like Wyden and Lautenberg fight even harder for us.( Hope2FindaCure and I really felt that because her husband and Jason were in the audience July 14, 2004 at the Senate committee hearing, and it was clear we wanted no avenue of research closed, that it encouraged both Wyden and Lautenberg to speak up as strongly as they did.)
    And others who oppose more money for SCI research may change their minds when they meet with us face to face.

    ~ Scrutiny of an election with many unanswered questions does not damage public confidence in the democracy; absence of scrutiny does. ~

    [This message was edited by Faye on 01-22-05 at 03:54 PM.]

  3. #3
    Banned Faye's Avatar
    Join Date
    May 2003
    Location
    Jacksonville, FL
    Posts
    6,839
    Originally posted by Betheny:


    3. We need to distill our mission. The GMHC says this: "Focus on the key issues. Don't arrive with a grocery list. When you have discussed the issues you want to discuss, give someone else the chance to speak." So when we split up and meet with our legislators, we all bear the same message.
    CAMR and JDRF develop Leave-behind packets that summarize the main points discussed and gives the legislator contact info. to work with.

    ~ Scrutiny of an election with many unanswered questions does not damage public confidence in the democracy; absence of scrutiny does. ~

  4. #4
    Senior Member poonsuzanne's Avatar
    Join Date
    Sep 2003
    Location
    Hong Kong, China
    Posts
    1,855
    What a golden opportunity for me to serve and participate in this special project!!! In the past, I can only do as much as I can in Hong Kong. Wow, I can't believe that I am now pushing for a cure for my son and everyone in the world in the Greater America...

    Beth, I have never communicated much with you before. Now that I found I like your style, your tone and, most of all, your efficiency!

    Some agenda here for the March:-

    1. Which hotel? Washington Plaza Hotel? Let's decide ASAP in order to secure reservations.

    2. What time of the day? Morning, noon, afternoon?

    3. Where is the route? Starting point: Washing Plaze Hotel??? Ending Point for gathering???

    4. Do we need to contact the Police Department and/or other related departments?

    5. Any rundown of the March?

    6. Any dress code? Cure T-shirts, bracelets etc.

    That's all for the time being! Many thanks!

    Suzanne

  5. #5
    Betheny

    Although I can't participate, You Lady are heading the charge!!!!!!

    there need's to be alot more people like you!!!

    Your Great

    Doug

  6. #6
    Originally posted by Betheny:

    6. Do we need a committee? We all have email, im capability, we should be able to run this as if we all lived next door to one another.
    if you all would find it useful, I'll set up an email list on one of my web accounts... i.e. I can create a new email address that would automatically forward all messages sent to it to everyone on the list, which would keep things simple.

  7. #7
    This is what the Doctor ordered. I wonder how many depressions this movement will alleviate. Just by taking our power and doing something about this situation is so uplifting. Beth some of your ideas are striking, and of course Faye not only do you have conviction, but the knowledge, judgment and experience to reach our goal; to get serious about a cure for SCI. And not to forget about Suzanne Poon's efforts that have spanned the continents. I hope the rest of you guys realize we got the RIGHT STUFF here

  8. #8
    Scott-
    I think that would be really helpful, having an email list that covered everybody, especially as the time draws closer.

    "You need to march. You need to demand action. You need to stop feeling unempowered and do something...Freedom is your right. Until you claim your self-confidence and know your worth, no one will give it to you. It starts with you."-LetsGo

  9. #9
    Suzanne is right, the sooner the better as far as hotel decisions go. Some points on this subject...
    1. Please don't reserve a handicapped room unless you really need one. In my case, it's a little easier but I can do without. I know some ab's like handicapped rooms for some reason, but I know nobody involved in this would stoop so low LOL.
    2. The hotel needs to have a bar. This sounds frivolous but we wandered all over nyc looking for a place to socialize and I hear D.C. isn't a city you want to traverse in the wee hours.

  10. #10
    Banned Faye's Avatar
    Join Date
    May 2003
    Location
    Jacksonville, FL
    Posts
    6,839
    2. The hotel needs to have a bar. This sounds frivolous but we wandered all over nyc looking for a place to socialize and I hear D.C. isn't a city you want to traverse in the wee hours.
    Maybe we can get some more suggestions on hotels from Clipper cause I'm really not familiar at all with Washington.

    The Washington Plaza Hotel from which we walked everywhere, however does have a bar:

    Happy Hour Promotion:
    Happy hour at the International Lounge 7 days a week between 4:00pm and 8:00pm.

    Drink Specials:

    Corona ($3)
    Draught, Domestic Beer ($4)
    Martini's ($6)



    http://www.washingtonplazahotel.com/calendar.html

    The Washington Plaza offers a unique blend of cosmopolitan ambiance and unpretentious hospitality in an uncommonly spacious setting, right in the heart of Washington, DC
    ~ Scrutiny of an election with many unanswered questions does not damage public confidence in the democracy; absence of scrutiny does. ~

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •