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Thread: just arrived in beijing

  1. #1
    Member Ray F.'s Avatar
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    just arrived in beijing

    my name is Anca I'm ray's fiance. we just arrived in Beijing yesterday for the OEG surgery by dr. huang. we met with dr. huang last night and ray's surgery is expected to be next week. ther are around ten americans here that have done the surgery, some ALS and some SCI. the patients with SCI have recovered some sensory return pretty quickly after surgery. we took a lot of pictures but we can't show them until we get back. the hospital is pretty new, but all patients stay at a hotel for the first few days, then they get admitted to the hospital. all sci patients told me that they experienced severe pain shortly after surgery but it goes away. doctors do not give pain medication so it's a good idea to bring your own and vicodin is said to be too weak to relieve pain. they did a EMG test today and it was pretty painfull, but it has to be done before and after the surgery. i'll keep posting with as much as i can.

  2. #2
    Anca, thanks. Wise.

  3. #3
    Senior Member chastev8's Avatar
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    Thanks for the update Anca. It is good that he has someone there like to be there for him. I know it means a lot to him.

  4. #4
    Senior Member Leo's Avatar
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    Hi Anca and Ray,

    A friend from South Dakota with ALS leaves the 12th. His name is Nick and wife Ann, they'll make good company.

    Good luck.

    "All you have to decide is what to do with the time that is given you."
    Gandolf the Gray

  5. #5
    Member Ray F.'s Avatar
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    Thanks for the support, I'm sitting here with Jenet and Derek from LA, they are great, she says she knows Leo very well. Janet says: Derek had his surgery and his sensation dropped to his anckles and he is able to sweat, we are heading home Tuesday, sorry i haven't been writing, i've been busy helping out the doctors with patients, talk to you soon..

  6. #6
    Member Ray F.'s Avatar
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    hi everyone. just e-mailing to say hi and so far everything is ok. surgery is next week and im just hanging out till then. took alot of pics of everthing and will post later. ill keep in touch.
    ray

  7. #7
    all sci patients told me that they experienced severe pain shortly after surgery but it goes away.
    doctors do not give pain medication
    why don't they give pain medication??
    that sounds barbaric!

  8. #8
    Member Ray F.'s Avatar
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    hey guys, just want to know if their is anyone planning to come to beijing so they can bring some meds. people here say that its a good idea to bring extra antibiotics. if so, please e-mail me at rayfak2003@yahoo.com. they dont give certain pain meds because they feel that americans take too much and that massage and other techniques work better.

  9. #9
    Thanks Ray and Anca. Keep the updates coming.

  10. #10
    Senior Member giambjj's Avatar
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    The Chinese Drs are afraid that certain pain meds and antibiotics may kill the OEG transplants.


    JJG

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