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Thread: Fatigue & Vent & Oxygen

  1. #11
    Senior Member
    Join Date
    Oct 2011
    Location
    California
    Posts
    190
    My Dad has had strong O sats, without being on oxygen.

    1) Previously, his sats would drop (with the accompanying temp change and/or noisy lungs) -- and, this was indicative of pneumonia.

    Thank goodness for the SCI nurse on the CareCure Forum.

    2) Earlier in the month, his sats dropped for less than 24 hrs or so due to a cold.

    3) Now, it's been for three days -- so, the sudden drop from strong sats is a new phenomena. His temp has changed for the past 24 hrs.

    Reason for my concern -- the drop is usually indicative of something being wrong... and I'm really worried about another round of pneumonia.

    No offense to nurses (they're definitely not all equal) -- but, my Dad has had a bunch of health professionals who don't give good advice (euphemism).
    Last edited by Joey_SF; 10-21-2012 at 10:00 PM.

  2. #12
    Senior Member
    Join Date
    Oct 2011
    Location
    California
    Posts
    190
    Ashleigh,

    I am dismally sad that it's not as easy as it seems.

    Unfortunately, my Dad's insurance "locks" him into a certain set of doctors and though they are not "experts," they "pretend" to be and the insurance company will support them (and there are other issues as well). In other words, my Dad does not have easy access to SCI specialists unless I pay out of pocket.

    But, I'm hoping to change this.

  3. #13
    Joey, how is your dad doing?

  4. #14
    Joey, were you able to acquire a CoughAssist for your Dad?

    That can help significantly. Vitamin D3 gels also help with my energy. I take THESE.

    (If you already mentioned before that you got a CoughAssist, I apologize, I haven't kept up with all your threads.)
    Wheelchair users -- even high-level quads... WANNA BOWL?

    I'm a C1-2 with a legit 255 high bowling game.

    Checkout the below CareCure thread about a new way to bowl!
    http://sci.rutgers.edu/forum/showthread.php?t=87066

  5. #15
    Senior Member
    Join Date
    Oct 2011
    Location
    California
    Posts
    190
    Hey Bill,

    Last week, we finally got a cough assist for my Dad. But, I'm a bit nervous since the RT mentioned that Medicare may not cover it.

    Btw, what are your settings?

    I also ordered the Vitamin D3 gels -- my Dad found them very helpful.

    Any other great tips for supplements?

  6. #16
    You will have to experiment with the settings on the Cough-Assist. Does your father have any history of emphysema or other lung disease? If so, then a lower inhalation setting pressure must be used. You should have received a good CD-Rom or DVD training program with your Cough-Assist, but in general, I usually start patients out on about 25 for their inhalation pressure about about 35 for their exhalation pressure, and about 3 seconds for inhalation duration and 2 seconds for exhalation duration, with a pause of about 3-4 seconds. Try that and if he can tolerate this and does not feel too uncomfortable, then try setting both pressures a little higher. The durations should be set for his comfort, but exhalation should always be shorter than inhalation. Do you have a respiratory therapist who can work with you on getting the settings set up properly the first few times?

    (KLD)

  7. #17
    Senior Member
    Join Date
    Oct 2011
    Location
    California
    Posts
    190
    The RT put my Dad on 40 for both inhalation and exhalation. My Dad wanted it to be higher, so the RT said to use 45 for both.

    45 seems to work better. The odd thing was that the secretions came out his trach opening -- twice. Since I never saw this happen at the other facilities where he used it, is this normal?

    My Dad was wondering about making it higher, but the RT said that 45 was the max.

    I'll ask the RT again.

  8. #18
    Hi Joey,

    I describe my settings, how we CoughAssist, why, etc... in an item posted on this page of my website:

    http://www.lookmomnohands.net/Life_with_an_SCI.htm

    Sorry for the delay replying; was finishing up school, graduating, among other projects, but that's no excuse.
    Wheelchair users -- even high-level quads... WANNA BOWL?

    I'm a C1-2 with a legit 255 high bowling game.

    Checkout the below CareCure thread about a new way to bowl!
    http://sci.rutgers.edu/forum/showthread.php?t=87066

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