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Thread: How common is Dysreflexia ?

  1. #11
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    Crap, its another uti..

  2. #12
    I agree with past postings by the SCI-Nurses, prevention is the key, with bowel and bladder issues and routines commonly the cause of AD.

    I do provide home instructions for use of topical nitropaste only if blood pressure rises above 160 systolic. You cannot use nitropaste if you have taken viagra in the past 24 hours and you must be cognizant of that fact. But, nitropaste works quickly to lower the blood pressure and allow you time as the caregiver to resolve the issue that could be causing the AD (e.g. constipation, kinked catheter, overfilled bladder, etc.). If nitropaste and attempts at resolving the AD problem do not resolve by your efforts at home and the blood pressure continues to rise, then you need to go to the ER.

    It will take time to see how sensitive your spouse is to the symptoms of AD. The first year post SCI is a time of adjustments for the patient and caregivers. One day at a time and have your resources available.

    pbr

  3. #13
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    Hello, I was reading this post on ad and nitropaste. when i had severe spascisity my colon rectal dr. after a lot of testing pre cribed this in a compound for me. i was in horribal pain so this can be used for spascisity too. and funny thing after around 3 monthes i got my bowels back, and i am 3 years with TM.

  4. #14
    Quote Originally Posted by alan View Post
    Dumb question - How do you print the card page onto a card to fit in a wallet?
    Alan:
    Choose the adult option. It prints as a page that gets folded in 1/2 and then 1/3rd's. The end size it the size of a dollar bill. You will probably need someone to help you.

    If anyone wants the AD cards, send me a PM with your mailing address and I will see that you get a copy. I helped design the cards with a doctor at KKI based on an ER issue I had using the old PVA cards.

    I wrote a blog about the design and thoughts behind the card that can be found here: http://www.christopherreeve.org/site...ysreflexia.htm

    These are the first AD cards specific to children as well. The key is to know your baseline blood pressure.
    Every day I wake up is a good one

  5. #15
    Senior Member alan's Avatar
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    Thank you.
    Alan

    Proofread carefully to see if you any words out.

  6. #16
    Does he cath himself? when he gets those feelings..time to empty the bladder.I have a foley cath.in.I can flush alot of "things" out.There are a few options then inter.cath.
    Nelson.

  7. #17
    I have very bad AD it affects my bowels / bladder The spasms are horrible

  8. #18
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    Hello GL, i just read where you get spasms with AD and they are horribal. i had nerve pain but the bowel spasms are so horribal i cant sit i cant lay down i am crazy with pain. i only get them every so often now , i get them when i am nervous over something. i am a para walking with a walker so i never thought mine were caused from a d. Marge

  9. #19
    I most commonly get AD from bowel or bladder, but also have to watch in the summer time with getting overheated when outside.

    The worst time was surgery.......no one ever knew what I was talking about until I started carrying the cards from the Reeve Foundation. Now all I have to do is give them a card and they finally pay attention. I was scheduled for a surgery in the doctor's clinic for my hand until they saw my AD card. They immediately switched me to surgery in the hospital next door. They attatched my AD card to the top of my file for all to see and refer to. I ended up in ICU after my last back surgery and they were fighting my BP the whole time. They had misplaced the paper work I had given them and no one had a clue I had AD. That will not happen again with my AD cards.

    Thank you Cheesecake and the Reeve Foundation!

  10. #20
    Super Moderator Sue Pendleton's Avatar
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    Quote Originally Posted by TM from PA View Post
    Hello GL, i just read where you get spasms with AD and they are horribal. i had nerve pain but the bowel spasms are so horribal i cant sit i cant lay down i am crazy with pain. i only get them every so often now , i get them when i am nervous over something. i am a para walking with a walker so i never thought mine were caused from a d. Marge
    You might want to talk to your physiatrist and a GI doc about morphine suppositories afterwards IF you are already using KY or another lube with benzocaine or lidicaine in it. You want to prevent AD not have to treat it once it arrives.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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