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Thread: 6 yr old boy with Syrinx

  1. #1

    Unhappy 6 yr old boy with Syrinx

    My son started losing motor skills rapidly this past school year. He had an MRI which revealed a 5 mm wide syrinx that goes from T6-T10. How bad is that? He also suffers severe constipation, incontinence, pain in his legs, headaches...

  2. #2
    How old is your son? I assume he does not have a prior SCI, so that this is primary (not secondary) syringomyelia? Any chance he has spina bifida (or spina bifida occulta)?

    Here is an organization that can provide you and him with a lot of information and support: http://www.asap.org

    Here is some additional helpful information: http://www.ninds.nih.gov/disorders/s...ingomyelia.htm

    (KLD)

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