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Thread: I'm having the botox injection in my bladder muscle tomorrow...

  1. #1
    Senior Member
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    I'm having the botox injection in my bladder muscle tomorrow...

    So after putting this off for a while I'm having the botox injection in my bladder muscle tomorrow... Hopefully this will calm my bladder down, reduce the pain, spasms and autonomic dysreflexia that occurs way too much.

    Has anyone else had this done or want to?

    ----
    C4/5, incomplete, 17 years post injury.

  2. #2
    Senior Member McDuff's Avatar
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    I've done it 3 times, and am due for another. You will most likely enjoy the results, especially the first round, it added about 50% increase in capacity for me. You might pee a little blood for a day or so, but no worries.
    "a T10, who'd Rather be ridin'; than rollin'"

  3. #3
    Is this injection for sphincter or the other muscle?

  4. #4
    Senior Member McDuff's Avatar
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    Mine was the other one, the detruser(sp?) muscle I think? It was to relax the walls so that it reduces the spasms allowing for greater between pee times. They actually poke the walls 20+ times in different spots.
    "a T10, who'd Rather be ridin'; than rollin'"

  5. #5
    Lots has been written here. Below is a link to a page with a list of the threads and posts on the subject:

    http://www.google.com/search?q=Botox...ci.rutgers.edu

    When I was managing my bladder with intermittent catheterization, I had bladder Botox injections several times. The first three times were great, but after that, I got less and less response and shorter periods between each course of Botox I had, until, it just wasn't working at all.

    All the best,
    GJ

  6. #6
    Senior Member TerokNor's Avatar
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    I had the Botox injections once, and it worked well for three months. The problem I have with it is that my doctor said that insurance does not cover it and I had to pay $500 out-of-pocket! That's a lot of money every three months…
    C7 ASIA C from Transverse Myelitis. Diagnosed on 12/19/09.

  7. #7
    Senior Member McDuff's Avatar
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    It just recently has become an approved procedure by the FDA(or somebody), anyway, Medicare now covers it, so your insurance could start covering also, worth checking into.
    "a T10, who'd Rather be ridin'; than rollin'"

  8. #8
    Senior Member TerokNor's Avatar
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    ohsnap! that's wonderful news! i have medicare and private insurance.
    C7 ASIA C from Transverse Myelitis. Diagnosed on 12/19/09.

  9. #9
    I did it in July 2011 and it is still working. I never do it again and wait like crazy to do it the normal way again. We did hope it will stops the UTI, but it didn't and it was crazy painful but I hear you get anastetic in US.
    TH 12, 43 years post

  10. #10
    Senior Member fromnwmont's Avatar
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    my Dr suggested botox but said insurance will not pay since its not Fda approved he claimed botox injections last much longer up to six months? $700 out of pocket was his estimate..

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