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Thread: Every week when I go to the wound clinic

  1. #41
    Quote Originally Posted by eversonsail View Post
    First, Good Luck to wheeliecoach at the Sled tryouts. Hockey looks like a real kick. have a blast!!!
    Curt, I have been having the same problems with my feet. Finally, the osteo got so bad I lost part of my right leg. I have had the visiting nurses come to the house for about 9 months. It has taken wounds on my other heel to heal properly. I've been to the wound care clinics and the like and all they want to do is cut. The nurses' are all top notch. We just don't heal up as fast.
    Glad to hear you got on the bike. I'll bet it was great to go fast.
    Darn I had not idea all this was going on with you, so sorry to hear. I'm really realizing aging with this SCI is not a easy thing or for the faint of heart. All we can do is hang in there and do our best.
    "Life is about how you
    respond to not only the
    challenges you're dealt but
    the challenges you seek...If
    you have no goals, no
    mountains to climb, your
    soul dies".~Liz Fordred

  2. #42
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    I have also had the shoulder and neck problems so the only thing I could do was got to a power chair. It did help. Find the balance between manual and power. I hope the zx, pat's design is on the market soon!!!

  3. #43
    Senior Member darty's Avatar
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    Quote Originally Posted by wheeliecoach View Post
    Darty- I definitely respect what you are saying...but in our case...this method (bone scan...and debrieding every week) worked. For us we had to rule out osteo in my husband's right hip...and the bone scan showed he did not have any "hot" issues there. Since we already knew about the osteo in his left hip...this was the only way for us to determine if he had it in other places (since at that point...his blood would have tested positive for an infection).

    The debrieding has helped us...and I think it it good that Curt gets many opinons. Some work well for some...the same ones do not for others...but in the end...my hope is that he gets better...and soon!
    I agree 100% all I am saying is don't blindly follow everything every "expert" tells you. Don't put all your faith in scan results, wound clinics and antibiotics. Some of these Doctors and "wound care specialist" will have you running around till your dizzy with little or no results and they might even make things worse.

    Look at what Rybread from Phoenix has been through all the surgery, Doctors appointments, scans, clinics, drugs, years spent in bed and he still has problems and he is back in bed. I am sure he followed their instructions, showed up for appointments and jumped thru all the hoops they asked him to. They DON'T have all the answers, they are not paras or quads. The older I get the more I think as strange as this injury is most of the time they are guessing. If they had the answers problem would be solved, they would be rich end of story.

    I used to follow blindly but after almost 32 years of this I know my body and I listen to it.

    It's all good and I wish him the best of luck but like I said in my first post go with your gut. I am very happy for you and that you had a positive outcome but I will continue to pray for the rest of us.
    ^^(A)^^

  4. #44
    Senior Member wheeliecoach's Avatar
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    I agree Darty...we had some not so good experiences with another center...and at least we were smart enough to seek out another opinion...SCI/D is a bitch...and it does not get easier!
    "Unless someone like you cares a whole awful lot nothing's going to get better. It's not." - Dr. Seuss

  5. #45
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    For the wound on my heel, they treated it with a collagen patch covered by tegaderm. Before that I had a huge blister on top, it took about a month for the blister to turn into a hard ischar. Then about a month with the collagen patch. Sounds like I may have been lucky it went so well (I did spend as much time laying down and possible, just up with my sage boot for bathroom and such).

    Have they consider anything like this for you, Curt? Hope you are feeling better soon!

  6. #46
    I get a good feeling about this doctor, he seems to know what he is doing. He looked at it today and it's pretty deep, like about down to the bone, but then again where it is it does not have to be really all that deep to get there because the bone sticks out there, bad spot, just below the big toe on the side of my foot. The good news is the old one on the other side of my foot is mostly healed and drains just a tiny bit. The new one near the toe has me spooked. He read my mind about the Osteomylitis, I was just about to say something when he called the nurse over to order the CRP blood test and the foot xray, I went to the lab and radiology right after and looked at the Xray and I did not see any signs of Osteomylitis, although it is hard to tell for sure with a Xray as was said. I don't hold out a lot of hope of the CRP blood test telling anything because lately I've had pain in my left shoulder, wrists and neck, so chances are my body has a lot inflamation right now. The doc said these aches and my tiredness could be because my body is working hard to heal these wounds. My theory too is I had a bad reaction to a antibiotic (Dicloxicillion) I was on around a month ago and think my body is still recovering from that one. For now, I think I'll just take lots of vitimens, get some zinc pills, lots of sleep and exercise and pray a lot.
    "Life is about how you
    respond to not only the
    challenges you're dealt but
    the challenges you seek...If
    you have no goals, no
    mountains to climb, your
    soul dies".~Liz Fordred

  7. #47
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    This thread is so interesting because the debridement every week did not work for me either. I think it boils down to body chemistry.

    I had a skin graft in the early stages of my wound that failed. I also had urinary issues at the same time. I was taking sulfa drugs for the urinary issues and that impedes healing. I had a vein doctor who treated venous stasis/diabetic ulcers in our small town who got to the point that I was going to lose my entire leg if I did not get to a larger hospital to have it treated. This was a heel wound too. The doctor explained to my mom all about Sulfa drugs and he said that likely the skin graft failed because of it. I had it at Emory University in Atlanta and no one said anything. I developed a horrid infection in the hospital from being cathed for a 20 minute maximum surgery. But I have had numerous ulcers across the bony prominence you are describing. It is usually a shoe or a sock that does it for me. In the early years, I was young and stupid with these wounds.

    I feel your worry as I knew when I had just no "ordinary" wound. My flap surgery was at Duke and my wound was too far gone for them to do wound care. The wound clinic at Duke knew after a couple of weeks whether they were seeing signs of healing or not.

    I am glad you are feeling confidence in your doctor. I believe an experienced wound care can see immediately whether a treatment is working or not. Had I caught mine earlier, I would not have had to endure the 23 hour surgery and free muscle flap that I did.

    I don't know what rash you have been treating but sulfa drugs cause this too. I don't know if you have been on one recently as Cipro doesn't appear to be one.
    Last edited by darkeyed_daisy; 07-25-2012 at 12:06 PM. Reason: to add info about sulfa drugs
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

  8. #48
    Can you post a pic, im curious if it was anything like i had
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