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Thread: 4-ap who's taken it & how has it helped you?

  1. #11
    Senior Member Mona~on~wheels's Avatar
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    Mona~on~wheels, if you haven't tried 4AP, I would say try it. You really don't have much to lose and a lot to gain if you're one of the 33% it's effective for. Just read up on the side effects so that you know what to watch out for. Good luck.
    Thank you I'm c-4 to c-7 incomplete but I've been this way 21 yrs.
    I feel alot but move very little. I will study up on it.

  2. #12
    so does this 4ap only benefit those with ms or sci? or both? im going to go google it now. but if someone wants to give a brief summery, thatd be great.

  3. #13
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    Unless MS is caused by a flying building hitting me in the head, breaking almost all the bones in my back, ribs and neck + taking out the spleen along the way. Nada... Didn't get rejected though, Doctor thought it would be interesting to try, seeing as I was getting Botox in the legs for stiffness and there was, if very little, nerve reactions left.

    And I was kind of easy, seeing as I was still alive after all I went through, they felt if I was willing to try it, give a good shot, I still had a mind left, after the crushed skull, they let me. So far I'm one of the 33%, and the longer I'm on it the more I'm seeing. The Neuro that does my Botox thinks it actually conflicts what's going on, but, it works for me.

  4. #14
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    Oh yeah I have medicare GHI, they couldn't wait to sign me, I can't believe they haven't tried to exterminate me yet.

  5. #15
    never mind. i just saw Wises' very informative thread.

  6. #16
    Senior Member NW-Will's Avatar
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    Vancouver WA USA - - Male T4 ASIA B incomplete
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    Quote Originally Posted by alhavel View Post
    Oh yeah I have medicare GHI, they couldn't wait to sign me, I can't believe they haven't tried to exterminate me yet.
    Thanks...

    Because you've been successful, asking a huge favor I know, if it is possible would you please ask what kind of things your doctor submitted to your medicare insurance to tilt the scales in your favor. Appreciate any help before I start working on this appeal. Cheers.

  7. #17
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    Flat, out, honestly, he just looked at the papers was familiar with it, I wanted to try it again, previously had the compound version and had been successful, and he wrote it for me.

    I had tried the compounded version 2 years prior, went off it befor going to court, and than waited for the acorda version so it would be covered.

  8. #18
    Quote Originally Posted by NW-Will View Post

    I'm thinking of going back to compounded 4AP in the mean time, I recently called a few compounding pharmacists in the area to check pricing.
    Best price was Walgreens 1200mg a month $43 (120 * 10mg capsules)

    Mona~on~wheels, if you haven't tried 4AP, I would say try it. You really don't have much to lose and a lot to gain if you're one of the 33% it's effective for. Just read up on the side effects so that you know what to watch out for. Good luck.

    That's an excellent price. The best I have seen so far.

    Can you possibly post which Walgreens you are using? I wasn't aware that Walgreeens compounding pharmacies exist, and if they are able to provide meds by mail order, this may be a good place for others to order from.

  9. #19
    Does anyone know where I can order 4 ap online without a prescription from my doctor?
    2010 SCINet Clinical Trial Support Squad Member
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  10. #20
    Quote Originally Posted by Allan1 View Post
    Does anyone know where I can order 4 ap online without a prescription from my doctor?
    Allan1, Ampyra (the time-release formulation from Acorda) requires a prescription. Fampridine (4-AP) may still be available from compounding pharmacies but still requires a prescription. Wise.

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