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Thread: Alternate Cause of Pressure Sores

  1. #1
    Senior Member lynnifer's Avatar
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    Alternate Cause of Pressure Sores

    I'm recently battling some wounds on each side of my arse .. progressively they went from scratches/blisters to all-out bleeding wounds. Most of the reason is from leaking from the bladder right around the foley, especially when laying prone. My wound care doc and my urologist are both aware.

    Plan of attack is trying Fampyra (4-ap) and if that doesn't work, botox. Can always try a bladder sling. If that doesn't work ... well the urologist said something about tubes connected to my ureters bypassing my bladder altogether (I wasn't really listening as I tuned out after the mention of more surgery).

    I see a nurse every other week and we got on to the subject of pressure sores. I've not had even one year free from any kind of skin eruption since the paralysis first appeared at age 12. It makes it difficult to lead any kind of happy life. He asked me why I thought this was and uttered something about trials way back when and a myriad of proteins found in some paralytics but not others. Also had a psychologist that I really looked up to who also felt it was something 'not discovered yet' in the blood.

    The nurse spoke up and said he read an article in Time Magazine about cytokines and how they thrive in the blood of people from the Middle East. If I didn't like him so much and respect his knowledge as a nurse, I would have thrown him out for being a racist, but he didn't denigrate or anything .. he kept insisting it was a fact that the new illnesses coming out (MRSA, etc) were due to living conditions in other countries.

    I tried to look up the article he was talking about but I couldn't find it. There can't be any truth to that? It's our abuse of antibiotics right?

    A major part of my problem is diet/nutrition. It's tough to live alone .. it's tough to do it all while working .. it's tough when you're aging and disabled. It's tough not to use that as an excuse. My biggest downfall is that I try harder when I have someone else to take care of .. not so much when it's just me.

    I'm not buying any more kitchen appliances but am looking into these:
    http://blueprintcleanse.com/

    I'd like to get more veggies/fruits in my diet without having to make a million trips to the grocery. Also, it looks like I'm getting some help weekly .. a couple hours I hope to start. First time I've ever admitted to needing/wanting help in my 27yrs of paraplegic paralysis. That will certainly alleviate some stress, I hope, which is another common theme in my life. I don't know why ... always was a worrier.
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  2. #2
    Senior Member lynnifer's Avatar
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    Ex-nay on the cleanse site - far too expensive. I'll have to find a health food store around that juices and get friendly, because I'm not buying a processor and making a thousand trips and lugging all kinds of groceries!
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  3. #3
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    i definitely think diet is a HUGE part of it. another is genes. but if your diet is poor, you aren't getting the nutrition your body needs to heal, and i am not just talking about protein. have you thought of joining a csa? it's often cheaper and some will either deliver if you explain your situation. they give you a box of veggies every week.

    also glad you're getting some help!! it's tough to accept it, especially when you're used to being hyper independent.
    "Smells like death in a bucket of chicken!"
    http://www.elportavoz.com/

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    Lynnifer,
    No suggestions-just admiration for your spirit. To the extent that there is any fun on CC you are largely responsible.
    If I believed in prayer I would pray for you.
    Get ALL the help you can. You have a right to it.
    Finbar

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    Jenn, I try to eat healthy, but don't always make it. I have been drinking a 8 0z. bottle of Boost Plus for the past year, and it seems to help. I have also been putting POL cream on spots prone to breakdown for 6 or 8 months, and it seems to help as well.
    Don - Grad Student Emeritus
    T3 ASIA A 26 years post injury

  6. #6
    I was speaking to my urologist (SCI specialist) about going on a diet a year or so ago and he shared his opinion that he thought the optimal weight for most SCI'd folks was about 5-15lbs over your ideal SCI'd weight (those amounts were based on my assumed ideal weight of 175lbs). He thought that the extra padding would be helpful, not burdensome and yet not contribute to causing pressure sores.

    After I thought about it more it seemed like he might be onto something.

  7. #7
    Super Moderator Sue Pendleton's Avatar
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    We're they talking about depression and TM? Hopkins TM Center came up with that but I never did figure out if they meant if you were predisposed to depression then TM hit or if TM hit you are more easily hit by depression (duh!).
    As for the skin, you need a skin barrier cream or lotion to protect your skin until you get the leaking stopped. I'm sure an RN knows some good ones.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

  8. #8
    Senior Member lynnifer's Avatar
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    Just regular diaper cream worked for a while - then once the wounds became larger, no dice. I alternate what side I sleep on, but invariably the other side will worsen. I usually end up on my back anyway. Already sleeping on an alternating air mattress. As well, I was concerned the back of my chair was bothering them as well (cloth sling).

    For some reason, vetericyn does nothing but make my skin look irritated and red. Miracle Mist Plus seems to soothe it (though I think it's just saline in a spray bottle, lol!)

    I need greens in any way I can get them. Anti-oxidants. And I really need to practice what I preach and invest in an electrical stimulation machine for healing.

    I just thought my nurse's theory was radical.

    Sue: TM is responsible for the depression that ensues, according to what I read. The more sparring people have, the more they seem to be depressed as well. Not sure if that's solely a TM thing or just a paralysis thing.

    Thanks Finbar ... it's sad that people here know me better than my family ever will.

    POL cream ... POL ... what does that stand for?
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  9. #9
    You have probably responded to these question in the past, and I have missed it, but...

    are you taking an anticholinergic medication? If so have you changed meds to see if another one works better than the one you are taking?

    have you played with the amount the foley balloon is inflated?

    Agree with "donno" regarding trying a nutrition supplement. When I was not eating well (I was undergoing chemotherapy and eating wasn't a pleasure, so I didn't do a good job of it) these supplements kept me going in a quick and easy fashion. If you don't like the milkshake consistency to many of these drinks, Ensure now makes one they call Ensure Clear and it is a supplement the consistency of juice. It comes in two flavors, peach and blueberry pomegranate.

    All the best,
    GJ

    All the best,
    GJ

  10. #10
    Senior Member lynnifer's Avatar
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    Quote Originally Posted by Patton57 View Post
    He thought that the extra padding would be helpful, not burdensome and yet not contribute to causing pressure sores.
    Trust me, there is far too much padding! lol

    I don't take the urological drugs as I'm completely flaccid (unless there's some reflex I'm unfamiliar with .. my uro seems to think my bladder is the size of a walnut and spasms even though I insist it doesn't - been on the foley since 2009). All I have to do is bear down and I'll leak (cough, sneeze, transfer, bend over). When I laid on the exam table prone, the uro said to bear down and I could produce urine .. but I can't hold it. I tried Detrol and Vesicare but neither seemed to do anything for me. Vesicare caused pain where my kidneys are located so I couldn't try it for long.

    I must admit, I had to stop taking vitamins/minerals before my surgery in November and I haven't really gotten back into a regular 'take them every day' regime. Good to know about clear Ensure - and sound like great flavours.

    I did play with the balloon and regularly fill it to 11 or 12cc's ... something I picked up here between a conversation with HipCrip and the SCI-Nurse. I also increased the foley size from 14fr to 16fr which helped a little, but didn't solve the problem. I have to watch my bowel output as that will make me leak as well. I'm not eager to go to 18fr as I understand, and my uro explained, that doing this just causes the urethra to 'get used' to it and will still lead to the leaking problem.

    Thanks for the ideas guys .. it's great to get advice from others in your actual situation.
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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