My name is is Hitesh Kakkad, I am from India / Mumbai,

I am suffering from a very Rare Disorder of Brain & Spinal Cord, known as Chiari Malformation, I am keen on making a documentary for the same, Please see if you can help me for it,

This disorder is so rare that doctors & Medical Communities are not very well aware of it and often the patient gets misdiagnosed & mistreated by the symptoms they go through,

I am striving for creating Awareness & Education to everyone in Medical Community regarding the same.



Chiari Malformation



The Chiari malformation is an abnormality in the lower part of the braincalled the cerebellum. There are several different forms.In normal anatomy, the cerebellar tonsils are located just above this line called the foramen magnum. But in an individual with Chiari, the tonsils hang below the line (herniate) into the spinal canal. The degree to which the tonsils extend can vary tremendously.The most common symptom of Chiari malformation is a headache, which begins at the back of the head (neck) and radiates upward.Visual problems such as nystagmus (involuntary eye movements), double or blurred vision may occur. Balance difficulties, vertigo and dizziness also may be present. Some people may have cranial nerve compression. An operation may be recommended. This is referred to as a posterior fossa decompression. The surgeon makes more room in the back of the head by removing small pieces of the skull bones. This reduces compression of the brain stem and allows the tonsils to move back into their natural position. The specific surgical techniques will vary among surgeons; no consensus yet exists on the best variation on this surgical procedure.



Video Links for my TV Interview with a Channel to create Awareness for the same.

Hindi :-

http://www.youtube.com/watch?v=L7wlw...&feature=inbox


English :-

http://www.youtube.com/watch?v=MoXwj...&feature=inbox


Link for the Newspaper Article :-

http://tiftongazette.com/local/x2099...-rare-disorder


Website Link :-

www.whatischiarimalformation.com


I am hoping to get a positive response on the same & to work together for better prospects of the patients who are suffering from this Rare & Invisible Disorder.


HITESH KAKKAD (INDIA/MUMBAI)
www.whatischiarimalformation.com

I AM PROUD & CONFIDENT ABOUT MYSELF
& ALSO WANT TO HELP & EDUCATE PEOPLE
ABOUT THE SAME
DECOMPRESSED SEPT 2008