Don't ask what clinical trials can do for you, ask what you can do for clinical trials.
Fenexy: Proyecto Volver a Caminar
http://www.fenexy.org (soon in english too)
... never mind ...
I have submitted my resignation as moderator. I have also cut all ties to CareCure on my Facebook page. Sorry, but it's time for me to move on.
Tired of the snarky, snide and unnecessarily rude comments on here. Good luck all.
Last edited by lynnifer; 05-01-2010 at 09:25 PM.
I think over again my small adventures,
Those small ones that seemed so big,
For all the vital things
I had to get and to reach;
And yet there is only one great thing,
The only thing,
To live to see the great day that dawns
And the light that fills the world.
Anonymous (Inuit, 19th century)
T-11 Flaccid Paraplegic due to TM July 1985 @ age 12
Sigh. Now the newcomers get a first-hand look at the reason the old advocates learned to stay a step away from CareCure. I was beginning to hope things had changed. Somebody always gets their feelings and opinions stomped on, be it through excessive enthusiasm, paranoia, secret agendas, personal vendettas or whatever. This puts a bad taste in my mouth and gives me deja vu as well.
Lynnifer, you know you can resign as moderator and again enjoy the bliss that is the Ignore Function, right? I fully enjoy that feature that I wasn't allowed to use when I was a mod. Also, as a non-mod, you are once again allowed to defend yourself and your beliefs as opposed to rolling over and taking all the crap random jerks dish out. Believe me, it is glorious.
Leif-What. The. Fuck? You're gonna sober up and regret that. There aren't enough good ppl for you to go around alienating the ones participating in the convo! And you know perfectly well that the mods work hard, for free, for all our benefit. By definition, there are no lazy butt moderators...if they were lazy, they'd keep their free time for themselves. And without mods, there is no CareCure AT ALL. All those potential advocates worldwide, gone, the day the mods give up. Think about it.
Last edited by betheny; 05-01-2010 at 11:27 PM.
Going back to the idea of recruiting new CC members, it seems to me the obvious way is to make the various rehab centers around the country, and the people who work there, aware of CC so they can tell the newly injured about the site.
For example, I started posting a while back at allnurses.com. That site has a forum for rehab nursing, and I promote CC there at any opportunity I get. There was also a thread a few months back in the general nursing forum called "What I Learned from My Quad Patient" in which I posted about CC. In response, several nurses wrote me that they were so glad I made them aware of this "incredible resource" and assured me they would tell all their SCI patients about it.
With some targeted email and even snail mail outreach (e.g. sending a flyer about CC and asking that it be posted in patient areas and on staff bulletin boards (according to every nurse I've talked with/nursing blog I read, there's one in every women's staff restroom at health care facilities), we can start to reach some of the new SCI/Ds out there.
Lynnifer, I'm sorry. You will be missed.
It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.
Last edited by Leif; 05-02-2010 at 01:55 AM.
So everyone at CC is not perfect and we have fights. I personally regret that this fight, for lack of a better word, has occurred, and I hope Lynnifer comes back to CC. I think Lief has apologized as much as he can right now.
But, for those CC members interested in doing something for a cure, we have to keep the bigger picture in mind and keep moving forward, knowing that there will always be disagreements when you try to accomplsih something that is very difficult.
I hope CC members with an interest will keep posting what they want from the CC membership to accomplish in regard to a cure and what we should do to meet the goal. There have to be many more members of CC with this interest, and I personally want to hear from you as do others.
Let's all try to keep this simple and big picture. If someone posts something you disagree with, let's try to resolve that later.
Thanks for letting me take up your time.