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Thread: Dr. McDonald

  1. #21
    Senior Member Schmeky's Avatar
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    I am convinced that he wants to improve our conditions, the word cure was not used.
    The word "cure" provides a lot of misconceptions on this website. A full cure is decades away, that's probably one reason McDonald refrains from using it.

    We will see small incremental improvements in therapies over the years, and McDonald is a possible step in this direction. I believe he is dedicated to improving our condition too lynnifer.

  2. #22
    Senior Member Leo's Avatar
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    Thanks lynnifer, any chance of transcripts or local papers reporting on it?

    i agree schmeky

    "All you have to decide is what to do with the time that is given you."
    Gandolf the Gray

  3. #23
    Senior Member lynnifer's Avatar
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    Doubtful, I did not see one reporter. London is also two hours away from me and I do not receive their local paper.

    The hour-long speech was taped by someone at Parkwood Hospital. That's all I know. And that Parkwood announced they would be collaborating with McDonald on some of his work ... I think they mean the FES and gait-training stuff. It's fun to see smaller hospitals trying to stay competitive ... it seems the bar has been raised.

    Please understand that I work full time shift work so I would not compare myself to most around this site with their knowledge of ES and the like .. but I learned a few things. That ES Cells don't grow as well in grey matter as they do in white matter. I am T-12 .. there seemed to be little improvement from T-7 to T-11 in rats according to a chart he had. I told the guys at work that and their immediate reaction was YET. I agree.

    There was something a bit surprising I learned about drugs specific to SCI, that these drugs limit growth from ES cells in the white matter of the rats. There just isn't a solution YET. And these are just rats anyway so who knows.

    The whole point of the thing was LONG TERM RECOVERY IS POSSIBLE and that to OPTIMIZE SPONTANEOUS RECOVERY, you should have an ACTIVITY BASED RECOVERY PROGRAM. More specifically, he spoke of FES and Aqua-therapy.

    I learned a new word lol - OUTLIER - someone who remarkably recovers things they shouldn't have i.e. Christopher Reeve.

    Something else that made me appreciate this doctor, besides the fact that he was hot with his sun-kissed blonde hair (lol), was that he understood people have gone back to their lives, had families and work etc so an ideal solution is needed to fit in - that isn't what he said word for word, but that's the impression I received.

    Something I really liked too was that he mentioned about time going by and meanwhile people are in these wheelchairs, so time is definitely a factor for him .. I was impressed by that compassionate statement.

  4. #24
    Schmeky

    If what you say is really the case then you aren't expecting ever to walk again yourself? Just wondering

    lynnifer

    that's a good point about people needing treatments to fit into their lives - that's a big problem when you consider how long the physio would need to take

  5. #25
    Thanks for the update Lynnifer, I also believe that he understands that urgency is needed, careerism seems to be less of a concern to him.

    By lynnifer:
    ...That ES Cells don't grow as well in grey matter as they do in white matter.
    If I recall correctly, this applies to OEG's as well, although I may be wrong.

  6. #26
    I'm sorry I didn't read this until today. Karen lives in London, Ontario and did her Rehab at Parkwood Hospital. She is on the wait list for doing more therapy there. She used to do Volunteer work in the Research Dept at Parkwood and I know she was going to be at Parkwood on Thursday. I'll call her tomorrow and see if she has heard anything.

    Darlene

  7. #27
    Senior Member Schmeky's Avatar
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    Chris2,

    At 47 years of age. . . .no, I no longer think I will walk again. I stay on this site because I do care about younger people that have a chance and I update several people in my area with SCI that will not visit this site.

    I may see the day I might be able to possibly stand, maybe "shuffle" a little with a walker, but no more.

    We tend to read more into the research than what it is actually promising, a perfectly normal human perception.

  8. #28
    We believe in Dr. McDonald and what he is trying to accomplish. We sent in our donation. I've been told that they have already begun and are actually ahead of schedule at this time. I hope they get the necessary funds to stay on schedule, but they need help. To anyone who is wanting to send a donation, the fund information has changed from what was posted previously on the forum.
    Tax deductable donations can be mailed to:
    BJH Foundation
    600 South Taylor Avenue, Suite 120
    P.O. Box 790369
    St. Louis, Missouri 63179-9847

    Make the check payable to BJH Foundation
    Indicate in the memo line John W. McDonald, MD, PhD, NTT fund #5293

    Every donation counts. Washington University Spinal Cord Injury Program has created and will display a plaque on the research floor at the Spinal Cord Injury Center (4455 Duncan Avenue, The Rehabilitation Institute of St. Louis) commemorating the donation team that made this dream possible.

    Linda Shultz can be contacted for further information about the program or donating. That info is on the link that MK99 added below (phone number, etc).(Thanks MK99)

    We would be happy to talk to anyone about this, if you want to email us.

    If we join together, we can make this trial a reality in the very near future. Many have complained, myself included, about how there are no human clinical trials going on and that no one is willing to do what's necessary. This is our chance. You have to begin somewhere.

  9. #29
    hope2findacure,

    thank you for all your support and information.

    i will be sending in my donation soon!!!!!!!!

  10. #30
    We spoke again with Dr. McDonald.
    We have had a couple of people ask us about rather or not a person who has had Dr. Kao's procedure, or another procedure, such as OEG, could get this procedure done. Obviously they wouldn't be a candidate for clinical trial, but it was Dr. McDonald's thought that it wouldn't ruin there chance to benefit from the therapy past the clinical trial date.

    If you'd like to know more we'll do our best to answer whatever questions you have.

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