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Thread: New SCI

  1. #21
    KLD, I see....i will have to check out the exercise and recovery forum for more information. i checked out Project Walk from your earlier post, but it's in Carslbad which is nearly 2 hours away.

  2. #22
    Make sure when you check out Project Walk you ask to talk to previous patients who went through their program to get a first hand perspective.

    good luck

    pbr

  3. #23
    my brother mentioned that he has a constant feeling of pins and needles or neuropathy that runs all over his body every minute of every day. is that a typical symptom of SCI? Is it reversible? What can we do to help it? he said that waking up in the morning feels like a mack truck hit him.

  4. #24
    Is he on medication for neuropathic pain? Has he discussed with his physiatrist? The medications most likely to help with this (although not make it go away completely) are Tegretol, Neurontin, and Lyrica. Sometimes a tricyclic antidepressant like Elavil will also help.

    I hope he is not smoking. Lots of evidence that it makes neuropathic pain worse.

    (KLD)

  5. #25
    Hi KDL, he's not smoking...never been a smoker. he is on meds...he's on neurontin...and possibly one more. but definitely neurontin, though not sure if that's more for muscle spasms or the neuropathy. i don't believe he has a physiatrist. i'll have to ask. will it ever go away?

  6. #26
    Neuropathic pain rarely goes away on its own, and often gets worse with aging. How much Neurontin is he taking? It is not a very good antispasticity drug for those with SCI.

    (KLD)

  7. #27
    KLD, don't know the exact amount he's taking...but last night he told me he's taking a host of meds and vitamins...definitely neurontin and also gabapentin. he saw his neurosurgeon for a follow up yesterday...and they're going to up the dosage on both of them. but his neurosurgeon said that though it's painful, it's a good thing--means his nerves are working. i hope he's right.

    so you wouldn't recommend neurontin?

  8. #28
    Quote Originally Posted by ccsmith409 View Post
    KLD, don't know the exact amount he's taking...but last night he told me he's taking a host of meds and vitamins...definitely neurontin and also gabapentin.
    Gabapentin and Neurontin are the same drug.

    He saw his neurosurgeon for a follow up yesterday...and they're going to up the dosage on both of them. but his neurosurgeon said that though it's painful, it's a good thing--means his nerves are working.
    That is not true. Neuropathic pain does not correlate with neurologic return, and occurs just as much in those with incomplete as complete injuries. I would recommend he work with a physiatrist, neurologist, or pain specialist instead of a neurosurgeon on the pain issue.

    (KLD)

  9. #29
    Thanks for the feedback! I appreciate it!

  10. #30
    Quote Originally Posted by ccsmith409 View Post
    Thanks for the feedback! I appreciate it!
    Keep increasing the Neurontin (generic version is called Gabapentin - that is probably the version he is taking). We often use the names interchangeably.

    It is really common to develop this symptoms/nerve pain after SCI. For us, they were the worst right after injury and in the hospital. Often doctors are too conservative with the medicines. They need to be increased until the symptoms improve. He should also have other medicines to take every day for when the pain gets bad, since it sometimes takes time (days...) for the increases in Neurontin to "kick in" and start helping. Most people take "opiod" pain meds daily too (at least when they are in the hospital) for "breakthrough" pain... that means any pain that happens despite the fact that you are already taking pain meds. These include morphine, vicodin, oxycodone, dilauded etc..

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