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Thread: Don't know where to post...I'm ready to have a baby

  1. #1

    Don't know where to post...I'm ready to have a baby

    Ok so I don't want to pop one out just yet but I'm ready to start the process. I've started coming off the meds for one. I'm coming off baclofen and I'm soooo much tighter. I'm worried about low blood pressure issues since I already take the ax midodrine plus florinef. What doctors do I need to get in line and how do I keep them on the same page with one another by the time I figure it all out its going to be time!

  2. #2
    Rachelle, I wish you every success.
    Do you have a good ob/gyn doctor already? That would be a good place to start, finding someone you trust and is willing to learn more about the complexities of SCI.
    Some of the Moms here will be popping to to give you real advice and experience.

  3. #3
    If you have a good physiatrist, ask them for a referral to an OB/Gyn who has some SCI care experience (if possible). Ask that they work collaboratively in helping you manage your pregnancy. Your urologist may also need to be involved at some point.

    In addition, try to identify a nurse (often an advanced practice nurse) who can help you with teaching staff where you plan to deliver about your special needs including positioning, skin care, AD monitoring and management, and post- partum care needs. It would be important to meet with the anesthesiologist(s) ahead of time so that there is a plan for an epidural if you should have AD or need a C-section.

    Congrats on moving on to the next stage of your life. Being a mother can be so rewarding (and challenging too!).

    Here are some additional resources:

    http://www.spinalcord.uab.edu/show.asp?durki=41588

    http://www.spinalcord.uab.edu/show.asp?durki=22442

    http://www.bcm.edu/crowd/national_study/PREGNANC.htm

    http://sci-pregnancy.org/

    http://www.modernmedicine.com/modern...date=&pageID=5

    http://www.centralpasci.com/id137.html

    http://nurs211f07researchfinal.blogs...nt-client.html

    http://www.newmobility.com/articleView.cfm?id=11851

    http://www.amazon.com/Disabled-Woman...927500&sr=8-28

    http://www.amazon.com/Mother-To-Be-G...927807&sr=8-42

    KLD

  4. #4
    Those are great resources! Thanks!

  5. #5
    I don't have answers to your questions on medication as I do not take any, nor do I know how the medical system works in the states, but just wanted to wish you luck.
    Emily, C-8 sensory incomplete mom to a 8 year old and a preschooler. TEN! years post.

  6. #6
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    Quote Originally Posted by ECUrach85 View Post
    Ok so I don't want to pop one out just yet but I'm ready to start the process. I've started coming off the meds for one. I'm coming off baclofen and I'm soooo much tighter. I'm worried about low blood pressure issues since I already take the ax midodrine plus florinef. What doctors do I need to get in line and how do I keep them on the same page with one another by the time I figure it all out its going to be time!
    Congratulations to you and your husband. Hope your pregnancy goes well w/o any problems. Don't spoil the baby to bad when he/she is born. LOL!!

  7. #7
    I would definitely have a high risk obstetrician ( or at least one that has worked with women who have Neurologic disabilities), a physiatrist, a PT and OT, and an anesthesiologist. Depending on other issues you may have, you may need to add a specialist or two, like a urologist. I would do mynbest to keep the number to a minimum- easier to control! Lol
    Good luck - and IMHO, babies are meant to be spoiled as ,uch as you want to!
    CKF

  8. #8
    My nerve pain is a big issue but my biggest fear is BP. How will I control it if I can't take midodrine?

  9. #9
    unless you take a huge dose of baclofen (i was on 40-60 mg/day), i don't see why that's an issue. to control bp during labor, an epidural blocks AD. i wasn't on pain meds at the time so can't nelp there. good luck!

  10. #10
    Quote Originally Posted by cass View Post
    unless you take a huge dose of baclofen (i was on 40-60 mg/day), i don't see why that's an issue. to control bp during labor, an epidural blocks AD. i wasn't on pain meds at the time so can't nelp there. good luck!
    I think the blood pressure concern above was how to keep her bp up if she stops taking midodrine throughout the day during her pregnancy. Rachelle, I would start weaning off of it as much as you can. Even if you can start doing say 10mg before you get out of bed and then a 5mg later in the day and 2.5mg after that [or start out weaning not as drastic. i would def keep the full 10mg in the am to begin with]. I'm not sure your dosing, but at max I guess 10mg 3-4x/day? You need to keep track of what makes your bp tank and try to work around it. If meals make it worse, plan your meals around the time you're taking your midodrine. Use your binder. Drink A LOT of water. Try TED hose if your legs and feet swell.

    Of course, consult your dr before messing with your meds.
    Last edited by november; 05-27-2012 at 02:09 AM.
    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

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