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Thread: FDA issues alert on potential dangers of unproven treatment for multiple sclerosis

  1. #1

    FDA issues alert on potential dangers of unproven treatment for multiple sclerosis

    Published on May 11, 2012 at 11:45 AM · No Comments


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    FDA issues alert on potential dangers of unproven treatment for multiple sclerosis


    The U.S. Food and Drug Administration is alerting health care professionals and patients about injuries and death associated with the use of an experimental procedure sometimes called "liberation therapy" or the "liberation procedure" to treat chronic cerebrospinal venous insufficiency (CCSVI). Some researchers believe that CCSVI, which is characterized by a narrowing (stenosis) of veins in the neck and chest, may cause multiple sclerosis (MS) or may contribute to the progression of the disease by impairing blood drainage from the brain and upper spinal cord. continue....

    http://www.news-medical.net/news/201...sclerosis.aspx

  2. #2
    This remains a very controversial area, and I am not surprised to learn of the official warning. There was a lot of initial optimism about the procedure, but results have been disappointing overall (dire, in some cases). The theory behind CCSVI makes sense in a certain way, and it might yet prove to have merit - still, the warning is timely and important, as CCSVI is clearly no panacea or miracle cure.

    (Edited to add: I've just heard from an acquaintance who paid out-of-pocket for CCSVI because he was deemed ineligible for a clinical trial. He was ecstatic immediately post-procedure and claimed to be clearer-headed and more mobile than before, able to walk better and even hike a bit; he stopped just short of pronouncing himself cured. Now, a year later, he's almost back to where he was before. Placebo effect? It seems likely to me, at least in part. He interprets the regression as a sign that his jugular vein is becoming stenosed again, but at many thousands of dollars per procedure, he can't repeat the experience. CCSVI seems to be not only risky at this point, but a mess from the management standpoint.)
    Last edited by Bonnette; 05-11-2012 at 06:18 PM.

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