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Thread: Is Dr. Kao for real?

  1. #21
    It sure does look a little suspect to me with all the meds that Kao recommends after his procedure that could have the effect of making one think their body was functioning better. Some of these Meds he recommends could actually be harmful. Urochrine for the bladder (which makes the bladder more active thereby giving someone the impression their bladder is coming back) could have the effect of creating reflux into the kidneys. Yohimbe Bark (possibly increasing sexual functions) could have adverse Cardio effects, etc. It sure does not seem too responsible to me.

    "Life is about how you
    respond to not only the
    challenges you're dealt but
    the challenges you seek...If
    you have no goals, no
    mountains to climb, your
    soul dies".~Liz Fordred

    [This message was edited by Curtis on 11-07-03 at 06:00 PM.]

  2. #22
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    Just my two cents worth. In early 2002 my sci husband (we're now separated) developed symptoms of syringomyelia. It was terrifying and, and in all my efforts to get him help, I found Dr. Kao (and btw CareCure!). Dr. Kao came to our house, showed us his video, and we were almost convinced to go. Almost.

    We both felt we needed more information. CareCure was especially helpful. Wise referred me to specialists at University of Miami and in Colorado. Dr. Kao didn't appreciate this effort on our part. He used scare tactics to get us to rush into the surgery, tactics that turned out to be manipulative lies. He also showed me on the MRI that Scott's cyst was 4-6 inches long(!) in his cord. Dr. Martinez at UofM showed me that is was actually about the size of an eraser. Slight difference.

    I've continued to receive emails from Dr. Kao's yahoo group. I know Jan is a member too. It's clear that he's done a lot of good for many people, but he has also demonstrated some questionable and seriously suspect behavior in my opinion.

    Wise, I really appreciate the tone of your post, and it has helped me to put Dr. Kao in his proper perspective. But any surgeon, I don't care how "pure" (not for $) his intentions are, his lying and manipulation during one of the scariest times of my life was not appreciated.

  3. #23
    A while back, I did a poll on the Kao forum asking whether or not his patients needed the decompression.

    Although the results were very limited, it appeared all the patients who saw some return needed to be decompressed and all those who didn't need the decompression didn't see any results.

    That's why I don't think the nerve graph works. I do, however, think Dr. Kao has very good results with his decompression/untethering portion of the surgery.

    And I agree with Marcomo that some of his actions are suspect.

    That being said, I'm still glad I had the surgery, as I did need the decompression and untethering. Dr. Kao spent hours and hours untethering my back... it was a mess. We have it all on tape. He is a very good surgeon.

  4. #24
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    Thanks for your input, Marcomo. It's stories like yours that should give people pause before they have Kao's procedure. A friend said he told Kao he hadn't gotten anything back. Kao's answer: "You have to give it more time."

    Again, my main complaint is that Kao told me that I would regain bowel, bladder and sexual function. That's quite a reach. He should not say this unless he can supply documentation that some of his patients have experienced substantial improvement. His promises almost seduced me into having the surgery.

    I took part in a Kao yahoogroups forum for his patients and those who are considering his procedure. I quit it after an intelligent patient expressed his extreme displeasure with Kao and was jumped on by some others because he wasn't being positive. This is the same guy who had a pressure sore that Kao stitched with thread. The wound became severely infected and the guy spent months in a hospital to heal it.

    It seems consistent with other testimony about Kao that he blamed lack of progress on those who didn't follow his rigid and time-consuming exercise program.

    I urge extreme caution to anyone considering his surgery. It's sad that desperate people who have suffered catastrophic injuries should be lured into this without weighing the consequences.

    As I've told you, Jan, Kao's charm and the possibility of regaining bowel, bladder and sexual function nearly seduced me into having the procedure. He also tried to rush me into the surgery, Marcomo. Deep down, I still desperately want a cure. As a result, I'm still vulnerable to anyone who promises significant recovery.

    I respect Dr. Young's balanced comments and Jan's reasonable observations that Dr. Kao has some noteworthy surgical skills, including his detethering and decompression procedures.

    Still, I wouldn't recommend Dr. Kao to anyone.

  5. #25
    i am the guy kao sewed up the pressure on,it was tunneled about 4 cm,all the doctors i have seen since have said that you have to let it heal from the inside out and if you close it,it will reopen like it did.my surgery was 2 years ago,barbara is suppose to visit to review the exercises,have not heard from her,kao is suppose to folllow up,he lives 45 minutes from me,he has not.no gain from surgery,he PROMISED bowel,bladder,sexualfunction after 2 years..nothing..barbara came into my room presssed on my foot for a few minutes and said try to move your toes,they moved from the blood flow,she said look the surgery has worked thats when i knew something was wrong

  6. #26
    Senior Member giambjj's Avatar
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    You can have unthering and decompression of your cord in the US for free. Why pay $30k for that, or for $20K, you can have it done at the same time with OEGs transplantion in China by Dr. Huang.


    Thanks:

    King Tut!

  7. #27
    When I found out a couple years ago that Barbara was working in conjunction with Dr. Kao, thats when I got real nervous.

    Anyhow, glad this post was done as it is a good warning for people to make sure to research as carefully as possible before jumping the gun and have a procedure done that may not produce any results.

    "Life is about how you
    respond to not only the
    challenges you're dealt but
    the challenges you seek...If
    you have no goals, no
    mountains to climb, your
    soul dies".~Liz Fordred

    [This message was edited by Curtis on 11-10-03 at 02:02 PM.]

  8. #28
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    Brian! Good to hear from you. I'm so sorry about that sore. Can't believe you're still dealing with that. Dr. Kao impressed me as the type who's extremely enthusiastic and interested in your case BEFORE the surgery, kind of like a car salesman.

    How are the cats? (Oh, this probably isn't the place to discuss that ... )

    Curtis, what's the deal w/Barbara? Do you know her? Your comment made me nervous.

  9. #29
    Senior Member
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    People saying they had no or minimal followup is one reason why I didn't have Kao's surgery.
    And I disagree that he isn't in it for the money.

    There's been some good comments on this topic and the discourse has been very intelligent and civil.

  10. #30
    Originally posted by overtheline ...
    Oh ya,i live about 15 minute's from project walk(escondido)and there like a bunch of whore's working a corner in carlsbad.Everything is about money there,my mom and girlfriend went in there again last week and all they talked about is money.I guess one of the therapy's there now is showing poeple how to right a check.They showed a bunch of surfer kid's how to exercise poeple for 3 hour's while they go to the bank and then club med for happy hour......whatever....they where nice though
    Thanks for the uncalled for flame.....

    Not sure how to respond to the "whore" label... Are we out soliciting customers on the street or through ads in the newspapers? Do we walk up to people in wheelchairs and ask them if they would like a little exercise tonight?

    "Everything is about money.." We are just like any other business and it takes money to run a business. Unfortunately no benefactor has offered to pay our rent, salaries, health insurance, Califorina's outrageous worker's compensation insurance, etc. so we can supply our services for free to all comers.

    "They showed a bunch of surfer kid's how to exercise people..." This is obviously a derogatory statement implying that surfers are stupid. Well, we do operate this business in San Diego, so a high percentage of the employees DO surf. In California being a surfer is a positive thing, it allows you to relax and relieve stress. ALL of our Specialists have a college degree and a few have master's degrees. 99% of them are in kinesiology, exercise physiology or a related field.

    Here is an overview of the kinesiology major

    Here you can browse through the required courses

    "...they were nice though..." HEY...a positive statement issues forth.

    Thanks.



    Eric Harness,CSCS
    Project Walkâ„¢

    [This message was edited by Snowman on 11-12-03 at 10:57 PM.]

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