Page 5 of 9 FirstFirst 123456789 LastLast
Results 41 to 50 of 83

Thread: New Spinal Cord Procedure Offers New Hope To Patients(Dr.Huang)

  1. #41
    Senior Member Leo's Avatar
    Join Date
    Jul 2001
    Location
    Yankton, South Dakota
    Posts
    4,005
    Cool, Now we need that combo.

    The Chaoyang hospital in central Beijing is an unlikely place to seek cutting-edge treatment. Orderlies in the shabby five-story building pile surplus furniture in the crowded hallways and push patients around on jerry-rigged gurneys made with bicycle wheels. Yet Nan Davis has traveled halfway around the globe to undergo a new procedure available only here. Six hours ago, Dr. Huang Hongyun injected 1.5 million fetal cells into her damaged spinal cord. Davis, a teacher from Ohio, hasn't walked since 1978 after a car crash left her paralyzed from the bottom of her rib cage down. Shortly after she awakens, Davis signals with a thumb and index finger that she can feel nearly two inches lower than before. "My goal," she says, "is to regain my stomach and back muscles enough to sit up straighter."

    That might not sound like a breakthrough, but more strength in her trunk would significantly ease the pain in Davis' joints. And she's not alone in pinning her hopes on Huang. In three years, Huang says, his cell-transplant surgery has helped nearly 500 paraplegics and quadriplegics regain functions that received medical wisdom said were lost forever. Word of his success has spread, and Huang has already drawn 40 patients from the U.S., with about 200 more Americans on the waiting list. Near the hospital, a dozen recovering foreign patients have turned a hotel's fifth floor into a Hall of Miracles. Bob Wolfbauer of Michigan can use his index finger well enough to write his signature for the first time since a bicycle accident two years ago; Jake Giambrone of Alabama can move his right wrist for the first time since a wrestling injury four years ago; and Cade Richardson of Washington State can feel his rag-wool socks for the first time since his paraglider accident in 2001-"my feet itch," he says, "and it feels great.

    "All you have to decide is what to do with the time that is given you."
    Gandolf the Gray

  2. #42
    wow,...200 more americans on the waiting list..
    +150 euro. ppl.....(wihtout me)
    --------------------------
    =234 years +/-2years ?

    that´s a long way to go!!!

    dyonisos

    be dazed and confused

  3. #43
    Senior Member Max's Avatar
    Join Date
    Jul 2001
    Location
    Montreal,Province of Quebec, CANADA
    Posts
    15,036

    Paralyzed Americans travel to Chinese doctor implanting fetal cells

    Paralyzed Americans travel to Chinese doctor implanting fetal cells

    BY MICHAEL A. LEV

    Chicago Tribune


    BEIJING - (KRT) - A Chinese neurosurgeon has been besieged by desperate Americans willing to pay $25,000 for an implant of cells from aborted fetuses, a controversial and scientifically unproven procedure that the doctor claims has helped patients with spinal injuries or the nervous-system disease known as ALS but has alarmed Western researchers
    <A HREF="http://www.kansascity.com/mld/kansascity/news/world/9535057.htm" TARGET=_blank>
    http://www.kansascity.com/mld/kansascity/news/world/9535057.htm[/url]


    But top American researchers express deep concern that Huang is forging ahead without first testing the technique's safety or scientific basis in clinical trials with independent review.

    They also are puzzled why some patients claim to see results within days when the body takes far longer to regenerate nerve endings. Without clinical proof, they warn that any improvements felt by patients could be the result of the placebo effect.

    Both severe spinal cord injuries and amyotrophic lateral sclerosis (ALS) generally are considered irreversible, and Huang is treating people based on a laboratory theory that many researchers have failed to reproduce in rats, said Dr. Naomi Kleitman, a program director for spinal cord injury research at the National Institute of Neurological Disorders and Stroke.

    "Snake oil is not too strong a word," said Dr. Jack Kessler, chairman of neurology at Northwestern University. Kessler, who began studying spinal injuries after his daughter was paralyzed in a skiing accident, said three patients with whom he has worked have gone to China to have Huang's treatment but he has seen no good evidence of its effectiveness.

    "I'm ticked off because of what this does to patients," Kessler said. "It takes a desperate person and exploits them for financial gain. It puts them through an onerous process for no better reason than to line someone's pockets.

    "I have a personal interest in this. If I thought there was anything to this, I'd be the first to defend it."

    Many of the patients are traveling to China because they do not believe the treatment will become available in the United States any time soon. Religious and moral objections have slowed research into the use of fetal cells, and Huang's procedure harvests cells from second-trimester aborted fetuses.

    In China there are fewer restrictions on this research, and Huang is being allowed to proceed without having conducted clinical trials that in the U.S. would take years.

    American doctors "don't want to confront the political sensitivities of using fetal tissue," said Steve Byer of Dodgeville, Wis., whose 33-year-old son, Ben, has ALS and had the surgery in July. Byer says Ben has seen some improvement in his voice, chewing ability and balance, and his fingers have straightened.

    Don Sacco, 48, who was left a quadriplegic by a 2001 car accident, had the surgery in June and says he has regained some movement in his hips and knees, and feeling has returned to one arm.

    "I'm sweating, and I haven't sweated in 3 1/2 years," said Sacco, who owns a scrap yard in Alliance, Ohio.

    As for the ethical issues, Sacco said, "All these baby huggers in this country ought to be in this (wheelchair) for a while."

    A number of top American researchers said their concerns with Huang's practice go beyond questions of using fetal tissue or even whether Huang's most dramatic claims can be proved eventually. They warned that it is perilous to sacrifice the principle of testing because the next doctor's claim of a miracle could be bogus.

  4. #44
    Senior Member Belle's Avatar
    Join Date
    Jun 2004
    Location
    NW Ohio
    Posts
    498
    Interesting article. It quotes Dr. Young too.

    *************
    AB wife of T8 complete para

  5. #45
    Senior Member Max's Avatar
    Join Date
    Jul 2001
    Location
    Montreal,Province of Quebec, CANADA
    Posts
    15,036

    Exclamation Controversial Chinese neurosurgeon gives hope to paralysis patients

    Controversial Chinese neurosurgeon gives hope to paralysis patients


    BEIJING : When Leo Hallan woke up in a hospital and found out he was paralysed from his chest down from a motorcycle accident in 1976, he thought his life was over.

    The 20-year-old had also lost sensation in both his arms and hands.

    Doctors told him he would have to live with the disability for the rest of his life.

    Sitting in a wheelchair in Dr Huang Hongyun's clinic in the Beijing Xishan Hospital recently, the 49-year-old American told of a miraculous moment when he was able to regain some of his sense for the first time in 29 years.

    Shortly after Huang injected Olfactory Ensheathing Cells (OEC) into his spinal cord, he started noticing changes - within a week, he started perspiring below his chest and could feel the chill of the wind for the first time when he went outdoors in his wheelchair.

    "When I was outside, I felt cold in my arm, the hair of my arm was moving, I had to look down to believe it," said a cheerful-looking Hallan. "Words cannot express my emotions.

    "It was total amazement, just unbelievable," he said. "Twenty-nine years ago ... many doctors said I'd never walk again. At least now I can say there is quite a bit of hope."

    Hallan is just one of some 800 patients who have been seen by Huang, whose controversial approach to treating Amyotrophic Lateral Sclerosis (ALS) and spinal cord injuries by injecting cells from aborted foetuses has been sceptically received by many western medical experts.

    Almost all of his patients are foreign, from countries including Spain, Germany, France, Japan, New Zealand, Singapore and Pakistan, though most are from the United States.

    Huang's centre said most of its spinal cord injury patients have regained some sensory and motor function, as well as the control of urine and bowel movement, while most ALS patients had seen indefinite stabilisation in their neurological function.

    "Most of our patients have obtained significant functional improvement to various degrees and about 70 percent of the patients have obtained some improvement in the quality of their lives," his centre's website said.

    But Huang's Western sceptics say the effectiveness of his approach has not gone through rigorous tests and some even accuse him of exploiting desperate patients as laboratory mice.

    "I haven't come across anyone in the field who considers his procedures safe and effective," said Professor Geoffrey Raisman at the Institute of Neurology, University College of London, who is pioneering research on OECs.

    "He is the only one who claims it works, other people who have examined some of his patients said they saw no improvement."

    Moreover, western doctors say Huang doesn't systematically keep track of his patients so there is no statistical data on how many experience lasting benefits, and he fails to perform controlled studies considered necessary in western circles.

    But that doesn't bother his hopeful patients.

    Hallan, who had been told by western doctors his condition would never improve, swore by Huang's treatment.

    He said didn't mind "at all" being a laboratory mouse and that many other patients like him were desperate to try out new treatments, even if they had not undergone enough tests.

    "The fact that this has moved on from rat (to human) is one of the most exciting prospects," he said. "There is risk in anything. You have more chance of dying just walking on the street."

    From his spartan office decorated with calligraphy extolling his work ("Miracle hands bring back life"), an exasperated Huang argued impassionately and defensively against the criticisms.

    He said the placebo-controlled trials that some critics say he should conduct were unethical and not permitted under Chinese law because it would mean effectively deceiving patients into believing they had been treated when they hadn't.

    "For someone like Mr Hallan who had been ill for 29 years, it would be cruelty to let him have that done to him," Huang said.

    "What is the priority here? Science or the patients?"

    He also lashed out at the hyprocrisy of those who criticise him for his use of nasal linings of aborted foetuses, arguing that western countries such as the US are already using embryonic cell implants to treat Parkinsons disease.

    "So only you are allowed to do this and we are not allowed to do this?" he said.

    Another American patient, Doug McGuiness, who had two tiny holes drilled into his skull and then an injection of two million OEC cells, said even if his improvements were only temporary, the US$20,000 treatment fee would still be worth it.

    Eight years after being diagnosed with ALS, the 59-year-old engineer was overjoyed when he could button his own shirt and raise his legs without help just two days after the operation.

    "This is a terminal disease, it's worth it even if it is three months, six months, a year," he said, remarking that most ALS patients only have three years to live.

    Even though it is still unknown exactly how the foetal tissue might work on damaged brains and spinal cords, Huang argued that this shouldn't stop the technique being used when it has been proven to work.

    "Why do we need to eat and sleep, do we know? Is that a reason to stop eating?" he challenged.

    Huang put the wide scepticism down to discrimination.

    "They have a prejudiced attitude. They think it is implausible that a developing country like China can develop something that America and European countries haven't done yet.

    "They can't accept that China is ahead of them."

    With more trials of combinations of different techniques, Huang said it might be a possibility for his patients to walk in the future, but carefully emphasised that this was only one step in a very long process.

    "Maybe eventually, but we don't have the solution here right now," Huang said.

    But his critics remain unconvinced.

    "I would be delighted if he would present evidence his OECs are working in his patients and ... it would have enormous impact on the field," Raisman said.

    "But unless he can provide data to convince other experts in the field, it is pointless." -



    http://www.channelnewsasia.com/stori...180679/1/.html

  6. #46

  7. #47
    Quote Originally Posted by KiranA
    This story was posted in Yahoo news:

    http://news.yahoo.com/s/afp/20051127...a_051127225052
    Kiran, I moved your post to this thread because it is about Hongyun Huang and not about Woo-suk Hwang. Max had already posted a version of it here.

    I am a little disappointed by the criticism by Geoffrey Raisman. I know several people "in the field", including myself, who believe that the procedure is doing something. Raisman himself is initiating a clinical trial of OEG.

    Wise.

  8. #48
    Senior Member Max's Avatar
    Join Date
    Jul 2001
    Location
    Montreal,Province of Quebec, CANADA
    Posts
    15,036

    Chinese surgeon gives hope to the paralysed

    Chinese surgeon gives hope to the paralysed Dec 6, 2005 When Leo Hallan woke up in a hospital and found out he was paralyzed from his chest down from a motorcycle accident in 1976, he thought his life was over.
    The 20 year old American had also lost sensation in both his arms and hands.
    Doctors told him he would have to live with the disability for the rest of his life.
    Dr. Huang with Leo HallamSitting in a wheelchair in Dr. Huang Hongyun‘s clinic in the Beijing Xishan Hospital recently, Hallan, now 49, told of a miraculous moment when he was able to regain some of his senses for the first time in 29 years.
    Shortly after Huang injected Olfactory Ensheathing Cells (OEC) into his spinal cord, he started noticing changes-within a week, he started perspiring below his chest and could feel the chill of the wind for the first time when he went outdoors in his wheelchair.
    “When I was outside, I felt cold in my arm, the hair of my arm was moving, I had to look down to believe it,“ said a cheerful-looking Hallan. “Words cannot express my emotions.“
    “It was total amazement, just unbelievable,“ he said.
    “Twenty-nine years ago, many doctors said I‘d never walk again. At least now I can say there is quite a bit of hope.“
    Hallan is just one of some 800 patients who have been seen by Huang, whose controversial approach to treating Amyotrophic Lateral Sclerosis (ALS) and spinal cord injuries by injecting cells from aborted fetuses has been skeptically received by many Western medical experts.
    "They can´t accept that China is ahead of them." - Dr. HuangAlmost all of his patients are foreigners from Spain, Germany, France, Japan, New Zealand, Singapore and Pakistan, though most are from the United States.
    Huang‘s centre said most of its spinal cord injury patients have regained some sensory and motor function, as well as the control of urine and bowel movement, while most ALS patients had seen indefinite stabilization in their neurological function.
    “Most of our patients have obtained significant functional improvement to various degrees and about 70 percent of the patients have obtained some improvement in the quality of their lives,“ his centre‘s website said.
    It was the first time that the College of Physicians & Surgeons of British Columbia has heard of Huang‘s practice of using cells from aborted fetuses.
    “If this treatment were to be practiced here, it would cause significant ethical concerns,“ Dr. Morris VanAndel told The Asian Pacific Post.
    He is the registrar of the college, the statutory body created to regulate medical practice.
    VanAndel said that Huang‘s practice is “similar to the use of stem cells“ from human embryos, a practice banned in the US.
    “It is never ethically acceptable to intentionally destroy a human being, no matter how small,“ said a previous position paper by the Canadian Physicians for Life to the debate on stem cell research.
    Western skeptics say the effectiveness of Huang‘s approach has not gone through rigorous tests and some even accuse him of exploiting desperate patients as laboratory mice.
    “I haven‘t come across anyone in the field who considers his procedures safe and effective,“ said Professor Geoffrey Raisman at the Institute of Neurology, University College of London, who is pioneering research on OECs.
    “He is the only one who claims it works, other people who have examined some of his patients said they saw no improvement,“ Raisman said.
    Moreover, Western doctors say Huang doesn‘t systematically keep track of his patients so there is no statistical data on how many experience lasting benefits, and he fails to perform controlled studies considered necessary in Western circles.
    But that doesn‘t bother his hopeful patients.
    Hallan, who had been told by Western doctors his condition would never improve, swore by Huang‘s treatment.
    He said didn‘t mind “at all“ being a laboratory mouse and that many other patients like him were desperate to try out new treatments, even if they had not undergone enough tests.
    “The fact that this has moved on from rat (to human) is one of the most exciting prospects,“ he said. “There is risk in anything. You have more chance of dying just walking on the street.“
    From his spartan office decorated with calligraphy extolling his work (“Miracle hands bring back life“), an exasperated Huang argued impassionately and defensively against the criticisms.
    He said the placebo-controlled trials that some critics say he should conduct were unethical and not permitted under Chinese law because it would mean effectively deceiving patients into believing they had been treated when they hadn‘t.
    “For someone like Mr Hallan who had been ill for 29 years, it would be cruelty to let him have that done to him,“ Huang said. “What is the priority here? Science or the patients?“
    He also lashed out at the hypocrisy of those who criticize him for his use of nasal linings of aborted fetuses, arguing that Western countries such as the US are already using embryonic cell implants to treat Parkinsons disease.
    “So only you are allowed to do this and we are not allowed to do this?“ he said.
    Another American patient, Doug McGuiness, who had two tiny holes drilled into his skull and then an injection of two million OEC cells, said even if his improvements were only temporary, the US$20,000 (C$23,000) treatment fee would still be worth it.
    Eight years after being diagnosed with ALS, the 59-year-old engineer was overjoyed when he could button his own shirt and raise his legs without help just two days after the operation.
    “This is a terminal disease, it‘s worth it even if it is three months, six months, a year,“ he said, noting that most ALS patients only have three years to live.
    Even though it is still unknown exactly how the fetal tissue might work on damaged brains and spinal cords, Huang argued that this shouldn‘t stop the technique being used when it has been proven to work.


    http://www.asianpacificpost.com/news/article/948.html

  9. #49
    Senior Member wang's Avatar
    Join Date
    Jul 2001
    Location
    Linthicum, MD, USA
    Posts
    104
    Geoffrey Raisman is a hypocrite. I would like to see what he would do if it was his child who was paralysed.

  10. #50
    I don’t know whether the word “ Prof Raisman: 'It will open the door'” is really spoken by Prof Raisman. If it is true, here are some facts.
    In fact it is Dr. Huang who is the first doctor have already successfully opened the door in clinic to repair complete chronicspinal cord injuries by using olfactory ensheathing cells (OEC) transplantation since four years ago (2001) in the world.
    (http://www.cmj.org.cn/PDF/2003/2003101488.pdf)
    People can easily find that Geoffrey Raisman visited Dr. Huang' s Clinic, Beijing , China in June of this year from the website (http://www.nrrfr.com/news.asp?newsid=277&btname=%20 and http://www.nrrfr.com/english_news_xx...1&btname=News). At that time Geoffrey Raisman admitted that he was very impressed by the patients’ neurological functional recovery after the OEC transplantation.
    Also the paper just published at recent issue of Spinal Cord (2005), 1-8 (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&li st_uids=16151453&query_hl=9 and http://www.nrrfr.com/english_news_xx...l%20research); as the independently evaluating doctors, Dr. Guest and his coworkers from Miami University reported the outcome of the rapid recovery of segmental neurological functions in a tetraplegic patient following OEC transplantation done by Dr. Huang in their paper.
    As a great neuroscientist, it is so unbelievable and regrettable why Prof. Raisman dared not face the truth, went so far as to disregard the facts of Dr. Huang and Mackay-Sim (http://www.ncbi.nlm.nih.gov/entrez/q...671&query_hl=6) having done and told a falsehood, "This is a door which has never been opened: to repair injuries to the brain and spinal cord caused by the disconnection of nerve fibers”. No matter Prof. Raisman whether deny or admit it, the door to repair the spinal cord injury of patients was already successfully opened by Dr. Huang. So how much we wish that Prof. Raisman could collaborate with Dr. Huang to promote development in this field, in order to give more help to the patients with spinal cord injury, ALS, Alzheimer’s disease, MS, Ataxia, Strokes, etc.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •