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Thread: Bladder + Botox

  1. #1

    Bladder + Botox

    For the past 6 months or so my bladder has not been holding as much, been having to cath much more frequently and have been leaking through my mitrofanoff. I had an appointment with my urologist today, she wants to do Botox injections in my bladder. Before I commit to this procedure or get my hopes up about it working, I want to hear from people who've had it done. Did it work for you? If so, how long did it last? Was it painful, how long did procedure take?

    Thanks for any feedback!
    -M
    C5/6 incomplete

  2. #2
    I did it in July and it is still working. 30 shots, it took about one hour, and it was very painful. But SCI nurse says that in the US they give anaesthesia. They have stopped giving that here because it is too expensive.
    TH 12, 43 years post

  3. #3
    Bladder Botox has been discussed here at length. It seems that most of the comments have been from those who use external catheters or urethra intermittent catheterization to manage their bladders.

    Some people have had great success with the procedure both in terms of it working to begin with and continuing to work with repeated procedures, usually about every 9 months give or a take. There are also those of us who had the procedure and it worked well the first couple of times and then the effects diminished so quickly or did not work after 4 or 5 procedures that it wasn't worth doing again. It seems to be a bit of a mixed bag of success.

    Are you currently taking anticholinergic medications, i.e., oxybutynin, detrol, vesicare, etc. If not, discuss these with your urologist. These medications decrease bladder spasms that can cause leaking.

    Here are a couple of threads I found on Care Cure that may interest you:http://sci.rutgers.edu/forum/showthread.php?t=176232
    http://sci.rutgers.edu/forum/showthread.php?t=158086
    http://sci.rutgers.edu/forum/showthread.php?t=160798

    Here is a Mitrofanoff support page. I searched for Botox and got quite a few hits.
    http://www.mitrofanoffsupport.co.uk/...rch&q=&q=botox

    All the best,
    GJ
    Last edited by gjnl; 03-19-2012 at 08:01 PM.

  4. #4
    Quote Originally Posted by gjnl View Post
    Bladder Botox has been discussed here at length. It seems that most of the comments have been from those who use external catheters or urethra intermittent catheterization to manage their bladders.

    Some people have had great success with the procedure both in terms of it working to begin with and continuing to work with repeated procedures, usually about every 9 months give or a take. There are also those of us who had the procedure and it worked well the first couple of times and then the effects diminished so quickly or did not work after 4 or 5 procedures that it wasn't worth doing again. It seems to be a bit of a mixed bag of success.

    Are you currently taking anticholinergic medications, i.e., oxybutynin, detrol, vesicare, etc. If not, discuss these with your urologist. These medications decrease bladder spasms that can cause leaing.

    Here are a couple of threads I found on Care Cure that may interest you:http://sci.rutgers.edu/forum/showthread.php?t=176232
    http://sci.rutgers.edu/forum/showthread.php?t=158086
    http://sci.rutgers.edu/forum/showthread.php?t=160798

    Here is a Mitrofanoff support page. I searched for Botox and got quite a few hits.
    http://www.mitrofanoffsupport.co.uk/...rch&q=&q=botox

    All the best,
    GJ
    Thank you!

  5. #5
    There is quite a range for how long it works...some as short as 6 months, some longer than 18 months. We do use either a general or spinal anesthesia to do this, as it is done through a rigid cystoscope (AD is a risk if your injury is high enough) and involves 15-30 injections into the bladder wall. It starts working within 7-10 days.

    Certainly better than having to have an augmentation surgery, but that can always be considered if Botox does not work for you. The goal is to both reduce unsafe high pressures and reduce leakage due to bladder spasm.

    (KLD)

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